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douggreigyyc.bsky.social
Caring for loved one with complex infection-associated chronic illness incl. #MEcfs. Decades-late biomedical research funding means no end in sight. #Calgary #YYC, #Alberta, 🇨🇦. Treaty 7.
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Here is a list of companies openly supporting Project 2025. *And for those of you leary of the reliability, I have checked these companies against the donations registered on Goods Unite Us and they correspond. -Heather Cox Richardson

Updated tally and overnight change: 9,143 up from 5,700 re Trump 8,050 up from 7,000 re X 76,206 up from 38,000 re Musk bsky.app/profile/doug...

"...We often speak of the fight or flight tendency. But when faced with an overwhelming breach of our certainties, there is another defence mechanism – to try and normalize a reality that we know is not normal at all. We anesthetize legitimate fear by sticking with comfortable strategies..."

Watch the Solve - Bateman Horne Center webinar “Severe #MECFS Research: Removing Barriers to Access” w/ @sabrinapoirier.bsky.social of @icancmeresearch.bsky.social & Dr. David Putrino (Dept. of Rehabilitation & Human Performance @ Icahn School of Medicine at Mount Sinai). youtu.be/65apr_RsdFM

Huge thanks to @scishow.bsky.social for warning all the new folks out there dealing with early M.E. as a result of Covid: ***Exercise makes ME/CFS worse.*** Big props to @diatoma.bsky.social for proposing this topic! REALLY wish I had seen this a decade ago 😭 youtu.be/wxSwYUennBA?...

“How much could it matter to Canadians?” This was moments after McDavid 🏒 scored the winning goal at an Our Lady Peace concert in Edmonton:

Donald Trump says Canada has no right to exist. I take the threat seriously. With our sovereignty on the table I support a national discussion on next steps. But CBC thinks it would be fun to have an American DJ co-host whether we should exist as a nation. Fuck that @ianhanomansing.bsky.social

🇨🇦 petitions signed: - bar Trump from entry www.ourcommons.ca/petitions/en... 5,700+ so far - get government off X www.ourcommons.ca/petitions/en... 7,000+ so far - rescind Musk citizenship www.ourcommons.ca/petitions/en... 38,000+ so far

Two medical education wins to share! The Anki Flashcards we created about ME/CFS & infection-associated diseases have been recommended by CDC on its new ME/CFS page for medical students! We have upcoming Reddit live Q & A on Feb. 24! H/T to #MEAction GA! Article: meaction.net/2025/02/20/m...

Walk gently on the earth and do each other no harm. Wagamese

Umberto Eco put together a now-famous list of 14 attributes of fascistic states. I'm going to discuss each of them in hopes this helps ppl understand that fascism is not just a buzzword. We're going to go through these by theme, so strap in. 🧵

Great stories at davidsuzuki.org/stories/ but why no English-language presence on Bluesky, just French-language @fonddavidsuzuki.bsky.social ?

"Do you know any courageous and innovative change-makers who strive to create a more just, peaceful and sustainable world for those around them?"

Multiple doc friends are saying: influenza A cases are both higher than usual and they're seeing worse cases than usual. Wear a mask in public! If you haven't been for awhile, it's time.

(Repeat) Most Troubling Symptoms in ME/CFS and Long COVID Patients. The bar graph shows the frequency of symptoms reported by patients with ME/CFS (blue) & #LongCOVID (red) From: "Patient-Reported Treatment Outcomes in ME/CFS and Long COVID" www.medrxiv.org/content/10.1... #MEcfs

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC

An important new study on PEM showing abnormal spinal fluid metabolites before and after an exercise challenge: In controls, metabolites were created in response to exercise, in ME/CFS they were consumed. As with other research this shows an aberrant metabolic response to exertion in ME/CFS

Big Data and Artificial Intelligence (AI) have great potential to advance precision medicine for #MECFS and #LongCOVID. Dr. Chris Armstrong and his colleagues have recently published a paper titled “Machine learning and multi-omics in precision medicine for ME/CFS”. 🔗 Learn more: ow.ly/ZLx950UTffw

🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.

The year ahead will not be an easy one for US advocates hoping to move our health agencies forward in research, outreach, education, and the many services that we so desperately need. Please read what MEAction has planned for the coming year and join in if you can.

Despite years of work and input from the IAG & new author group, Cochrane fails to address critical issues in its review of exercise therapy for ME/CFS. Worse, Cochrane has not followed its own stated processes & principles. Now the IAG has a message for Cochrane. www.meaction.net/2025/01/24/c...

First post! And it’s about something that is near and dear to me - our Long COVID Connect program. This is a non profit, peer facilitated program open to anyone living with Long COVID. Registration link is here: docs.google.com/forms/d/e/1F...

Hey everyone. I have updated my starter pack of community leaders, advocates, researchers, clinicians, patients and carers from our #LongCOVID and #MyalgicEncephalomyelitis community. Please check it out and feel free to share. go.bsky.app/6R7bqc7

Hey, I wrote stuff canadahealthwatch.ca/newsletter/2...

Person in Switzerland (on Reddit): Neurologist: "before the pandemic, his whole team of 3 people, who deal with the ME/CFS cases here, treated 10 patients PER YEAR. Now, after Covid19, he alone sees 5 patients PER WEEK to determine and/or treat patients for ME/CFS" #MEcfs #LongCovid

Hilda Bastian’s open letter to Cochrane, written on behalf of the Independent Advisory Group, highlights major concerns about Cochrane’s handling of #MECFS reviews. It’s the first step in a series of planned actions. hbprojecttalk.wordpress.com/2025/01/24/i...

Thousands demand withdrawal of review article recommending exercise therapy for chronic fatigue syndrome — my latest for @retractionwatch.com: retractionwatch.com/2025/01/23/t... @hildabast.bsky.social

Devastating for scientists and their research, and everyone who benefits from that research. I’m not sure if everyone outside academia is aware that a delay or “pause” in grant funding often means the researchers themselves are lost from the field, along with their expertise.

Please join me in welcoming @defendpublichealth.bsky.social to BlueSky. This is a group I’m involved with. We’re just getting started but already I can tell you that there are many brilliant and deeply passionate individuals who care about science and fighting misinformation and disinformation.

Today @thesicktimes.bsky.social: great story by @mileswgriffis.bsky.social about research into Long COVID biomarkers, focusing on one group working on a potential blood test. thesicktimes.org/2025/01/21/f...

Well done to Mark Vink on getting another piece published: this one has the provocative title, "CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that" www.frontiersin.org/journals/hum... #MEcfs #CFS #PwME

"Meta-analysis of 429 studies published from 2021-2024 estimated a pooled global long COVID prevalence of 36% in COVID-19 positive individuals." Global Prevalence of Long COVID, its Subtypes & Risk factors: An Updated Systematic Review and Meta-Analysis (Jan 6, 2025) www.medrxiv.org/content/10.1...

"ME/CFS is a diagnosable sequela that develops at an increased rate following SARS-CoV-2 infection." link.springer.com/article/10.1...

Upcoming Webinar: Severe ME/CFS Research: Removing Barriers to Access Learn how patient advocates & researchers are breaking barriers to make research more accessible for severe ME/CFS patients. 📅 NEW DATE: Tuesday, Jan 21, 10:00 am PT, 11:00 am MT, 12:00 pm CT, 1:00 pm ET 🔗 Register: bit.ly/3Xa4IyW

A great webinar on severe ME research with @sabrinapoirier.bsky.social and @putrinolab.bsky.social. Please register and participate!