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electric-katie.bsky.social
Built on hope.✨ Writer | Multidisciplinary Creative | Mom Droid Patient Advocate: ASMP & CoMO Meningitis and SCI Survivor ♿️⚡️ Author: Little Beaver Builds a Bed, Women of Woodworking Project and lots of poems. https://linktr.ee/electric_katie She/her
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Next weekend is 20 years since I had bacterial meningitis. I want to mark the occasion but no idea how. Suggestions welcomed. ❤️

submitted 17 hours ago • 1 comment

“The pain is always present. This is why I’ve learned to live with it, to use it to my advantage as a way to help make this world a little bit brighter.” This week I reflect on the challenges bacterial meningitis has caused in the 20 years since my diagnosis. ktthompson.com/2025/02/22/c...

submitted 22 hours ago • 0 comments

Meningitis vaccines were to be discussed in the now delayed Feb. ACIP meeting. Disappointed would be an understatement. This makes grassroots efforts even more important now - parents and young people deserve to know how to protect themselves and prevent this disease. apnews.com/article/vacc...

submitted 1 day ago • 0 comments

Currently listening to a Test of Courage and if there is one thing a Star Wars High Republic book is going to have it’s some sort of disaster, smh. Zero chill whatsoever.

submitted 1 day ago • 1 comment

Most days sharing my experience as a patient advocate makes me feel strong and purposeful. Other days it can make me want to burrow into my electric blanket. Both are valid.

submitted 2 days ago • 0 comments

FINALLY Mitch is returning to the turtle farm.

submitted 2 days ago • 0 comments

Watching American Primeval on Netflix and it is good but wow it is pretty intense.

submitted 3 days ago • 0 comments

I understand it’s hard and terrifying right now. A lot of us are protecting our light, and rightfully so. But I beg of you, in the comfort of your safe space wherever that may be, still burn as brightly as you can.

submitted 3 days ago • 1 comment

New poem: Joy Rising ktthompson.com/2025/02/19/j...

submitted 3 days ago • 0 comments

I did not do well in high school physics but still. The plane in Toronto. It flipped. Over? And landed. Like, what?

submitted 5 days ago • 1 comment

All of these long days in isolation again have me starting to parse out what is internalized ableism, what is internalized capitalism, and what is my genuine need as a creative to always be engaging something.

submitted 5 days ago • 1 comment

Feels like Coming Home (mini poem) ktthompson.com/2025/02/16/f...

submitted 6 days ago • 0 comments

I am grateful for meningitis. ktthompson.com/2025/02/15/g...

submitted 7 days ago • 0 comments

I am basically chocolate and cheese at this point.

submitted 8 days ago • 1 comment

I don’t always share what I do as a vaccine advocate because of the possible mixed reactions. Then some days like today you get a sigh of relief from someone that needed to know there are others out there still fighting the good fight. Advocates in all forms bring hope, and that is powerful too.

submitted 8 days ago • 0 comments

#Breaking - Trump administration to fire thousands at health agencies. Employees across agencies who were hired in the past one to two years are being targeted

submitted 8 days ago • 3 comments

Happy Valentine’s Day! Make sure you eat a chocolate for breakfast!

submitted 9 days ago • 0 comments

I love dogs. Ours has taught himself deep pressure therapy and instinctively knows where to lay and apply pressure when I’m hurting. He really is a smart goodest boy.

submitted 9 days ago • 0 comments

Stuck in bed again with a spicy nerve flare. At least I could still do my Valentines nails! Some days it’s all about the little things. Trying to keep my spirits up after a stretch of rough health days.

submitted 9 days ago • 0 comments

“Be humble. Sit down” -it appears my chronic pain is a Kendrick fan as well

submitted 10 days ago • 0 comments

If y’all need me I’ll be in Pelican Town for the rest of the evening.

submitted 11 days ago • 0 comments

*peeks around corner* “MUSTAAAAAARRRRRRDDD”

submitted 11 days ago • 0 comments

Would you identify Grand Admiral Thrawn as an example for inclusionary leadership? Let’s talk about it in my latest Access the Magic review of Book 1 in the Star Wars: Thrawn trilogy. ktthompson.com/2025/02/11/a...

submitted 12 days ago • 1 comment

Hell yea

submitted 12 days ago • 0 comments

Point proven. Like clockwork.

submitted 12 days ago • 0 comments

Saw a tiktok of R2D2 continually screaming at a set of stairs at Disneyland and when I tell you that activated something deep within my half-droid, wheelchair user soul…

submitted 12 days ago • 0 comments

The thing that gets me is not that people don’t understand what it’s like to live with a disability, it’s that people don’t care enough to try.

submitted 12 days ago • 7 comments

Philly has always been nothing but good to me. GO BIRDS! 🦅

submitted 14 days ago • 1 comment

“I studied the ceiling tiles from my hospital bed…It had been weeks of torture and I couldn’t fully comprehend what I was going through. I did know in that moment that one day…I was going to do everything I could to help others avoid the same hell...” Advocacy: ktthompson.com/2025/02/08/a...

submitted 14 days ago • 0 comments

Starting the process of getting a new wheelchair again and prepping for the months-long effort. Last time insurance denied my prescribed chair despite multiple appeals. I had to buy my own. I need what will help me live the most independently and I hope I’m able to get it this time.

submitted 15 days ago • 1 comment