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ellainez.bsky.social

Waiting to see the end of the greatest MEdical scandal of the century ME/CFS

3 posts 40 followers 136 following

Posts 11 Comments 3

The case for ramping up ME/CFS research, through both public and private funding, is absolutely compelling 📈 Especially in light of the COVID-19 pandemic, which has significantly worsened this humanitarian crisis happening under our noses A visual thread 🧵

submitted 4 days ago • 2 comments

The GET fanatics didn't like a study last year about muscle abnormalities in Long Covid. So they sent in a response full of nonsense, and the authors' cogent responses makes the critics look silly: virology.ws/2025/02/15/t...

submitted 7 days ago • 0 comments

What these nihilistic vandals are doing to dismantle science & medicine—generations of expertise & public service & life improving benefits—is cultural revolution level national self harm. No foreign foe could inflict such brutal damage & senseless suffering on US so fast & effectively & unresisted.

submitted 8 days ago • 510 comments

If this were Just Stop Oil, there'd have been dozens of arrests, furious denunciations in the billionaire press and, perhaps, long jail sentences. Farmers have a right to protest, and the police respect it. Other people, it seems, not so much. The real #TwoTierPolicing www.bbc.co.uk/news/videos/...

submitted 11 days ago • 101 comments

#LongCovid research from Japan demonstrating a possible autoimmune aspect. 🖇️ to study: tinyurl.com/yc68hhs2

submitted 12 days ago • 2 comments

Please consider supporting Line with her legal costs to avoid her being detained in a psych ward when she has M.E. (she’s found a supportive and nice lawyer to help) you can PayPal her here: www.paypal.com/paypalme/neb...

submitted 22 days ago • 1 comment

This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵

submitted 25 days ago • 22 comments

NHS Devon has released its plan for how to address the case of severe ME patients.

submitted 73 days ago • 1 comment

PNAS: 'Transcriptional reprogramming primes CD8+ T cells toward exhaustion in Myalgic encephalomyelitis/chronic fatigue syndrome' Maureen Hanson et al. www.pnas.org/doi/epub/10....

submitted 82 days ago • 0 comments

Call my cynical but whenever someone refers to me, a woman disabled by #LongCOVID, as “resilient,” it just feels like they’re giving themselves cover for not doing a single thing to help me and people like me. “Oh, she’s resilient. She’ll be fine.” No, we need able-bodied allies beating the drum.

submitted 90 days ago • 9 comments

New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment. youtu.be/RiwX9Y0NbiQ?...

submitted 94 days ago • 48 comments