emmadimps.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

In preparation for ‘I Open My Own Front Door, Do You?’ launched today, I asked people to share what ‘front door’ means to them. The blog is about what people told me - beautiful, heartfelt, thoughtful quotes. www.gloriouslyordinarylives.co.uk/gloriously-o... @learningdiseng.bsky.social

submitted 1 day ago • 0 comments

For #RareDiseaseDay, here's a series of posts I wrote a while ago about how #FragileX Syndrome affects our family. #FragileX is a chromosomal abnormality & is the most common form of inherited learning disability. It's called Fragile X as the end of the chromosome looks like it's about to drop off.

submitted 4 days ago • 1 comment

Such cruelty at the hands of the system #carers www.theguardian.com/society/2025...

submitted 5 days ago • 0 comments

As well as showing deep systemic failures, this piece is so devastating and terrifying to me as the parent and full time carer for an adult child with epilepsy. The sheer lack of understanding outside of specialist services is truly unacceptable. What a heartbreaking and needless loss of life.

submitted 10 days ago • 0 comments

Why is it important that #Curae exists?

submitted 15 days ago • 0 comments

I have many pieces of @beckyrwhin.bsky.social beautiful artwork and would encourage everyone to take a look through her back catalogue as she captures the essence of things in a remarkable way.

submitted 16 days ago • 1 comment

Meet Blossom and his harem: Blossom is the giant and flamboyant cockerel, named by my mum when still an unhatched egg in our incubator (it’s a tradition). Honestly, the most inappropriate name for that brute, but here we are.

submitted 16 days ago • 0 comments

#curae - It matters. It REALLY matters. Shining a light changes lives and makes community - no not me; the brilliant people who enter do all that - and it is the ONLY national initiative for unpaid carers in this area. It’s also unfunded by Arts organisations. Still. Two weeks left to enter! 💙📚

submitted 16 days ago • 0 comments

Make no mistake, the detention of people with learning disabilities in secure hospitals is a HR issue. There will be more claims and settlements. www.doughtystreet.co.uk/news/justice...

submitted 17 days ago • 0 comments

This makes for a difficult listen but is so important, the brilliant @ellychapple.bsky.social and myself on The Skies We're Under podcast talking about Ella's human rights claim and the impact of unlawful care proceedings on their family open.spotify.com/episode/2rRf...

submitted 26 days ago • 2 comments

So it’s Feeding Tube Awareness Week - an opportunity to shed light on a topic that is personal to me. My children are tube fed and there are many misconceptions about it. Please read my eldest’s perspective. helen2tubies.wordpress.com/2022/10/29/a...

submitted 30 days ago • 0 comments

It's not easy being in Government right......

submitted 32 days ago • 1 comment

Very brilliant that @cmic-uk.bsky.social just got the go ahead to create a training microbrewery for adults with learning disabilities, so here's a reminder of @beckyrwhin.bsky.social's words in @communitylivingmagazine.com a year ago. #LearningDisability communitylivingmagazine.com/there-was-a-...

submitted 33 days ago • 0 comments

I am a massive supporter of Count Me In Collective @cmic-uk.bsky.social - and this is fantastic news! Cant wait to sample that first beer! www.bbc.co.uk/news/article...

submitted 35 days ago • 1 comment

📢Launched today: The Gender Pain Gap consultation on Pain in Sexual & Reproductive Health Procedures (UK). Aim: To understand experiences, priorities & views of people with experience of painful procedures. openeducation.eu.qualtrics.com/jfe/form/SV_... Open to 31 Jan. Please share widely!

submitted 47 days ago • 5 comments

NEW POST: The Commons Public Accounts Committee #SEND report warns of a "lost generation" of children. But SNJ's @captaink77.bsky.social finds warnings all a bit pointless when decision-makers don’t know what they value more—money or children’s futures... www.specialneedsjungle.com/p...

submitted 48 days ago • 1 comment

Began the year with a bout of hMPV which utterly floored me so I am officially starting 2025 today. Happy new year, one and all.

submitted 52 days ago • 0 comments

This is so important. And so awful. It is a catalogue of abuses of power at every level and it is unconscionable that all of those involved are the very people who are supposed to help.

submitted 78 days ago • 0 comments

You know that thing where you’re in London and you need to get home to Devon and you booked your tickets many months ago and then pretty much every single train going westward is cancelled and you’re the full time carer for your child so you have to get at least closer to home? SUCH FUN!

submitted 79 days ago • 1 comment

This response from @sbearbergman.bsky.social to @hildur.bsky.social’s post has changed my week— it is so wholesome, and human, and so the energy we all need right now. And Kerstin Langenberger, the naturalist who posted “I am on my way with the necessary equipment”? This woman is the hero we need.

submitted 84 days ago • 42 comments

| International Human Rights Day | - Scott Watkin BEM

submitted 84 days ago • 0 comments

Nothing like a 20 hour power cut to make you realise a few things.

submitted 85 days ago • 1 comment

If you’re applying for PIP, the charity Turn2Us has launched The PIP Tool: a free guide to navigate the benefits process. Their goal “is to make sure you know your rights and can afford what you need to enjoy life fully.” Share widely! pip.turn2us.org.uk

submitted 85 days ago • 24 comments

Morning #BlueSky. Ella and I would be really grateful if you might take a moment to watch and share our #TEDx talk. 'It does not matter what package you arrived in. Everyone needs a seat at the table' Please help us #FlipTheNarrative for all of our fellow humans 💜🙏 www.ted.com/talks/elly_c...

submitted 87 days ago • 1 comment

There’s are so many wrongs and harms that were committed here, but something that is rarely captured is the ferocity with which ‘services’ attempt to shut families down and the courage and tenacity it takes to challenge that. Huge love and gratitude to @ellychapple.bsky.social

submitted 87 days ago • 1 comment

It feels very much like starting again on here. If you happen to know people you KNOW enjoy the Irish Sunrise, help them find me & vice versa? ☺️

submitted 89 days ago • 13 comments

It’s that time of year again; my favourite existential elf is back!

submitted 91 days ago • 0 comments