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One important part of the FER Training Program is the opportunity to listen to our learners and potentially host spaces for convening and sharing new ideas in family engagement. The video below was one such opportunity to bring together people in the field of pediatric palliative care and people /1

submitted 8 days ago • 1 comment

#patientengagement

submitted 15 days ago • 1 comment

Great advice on sharing your lives experience. I feel similarly about telling pieces yet that’s super challenging with everything I’ve been through.

submitted 25 days ago • 0 comments

Our newest edition of the FER Newsletter is out. Consider checking it out for potential resources and learn more about what grads of the course and team members are up to! myemail.constantcontact.com/FER-Communit...

submitted 26 days ago • 0 comments

Our newest blog post explores the journey of learning to share lived experiences effectively. From navigating anxiety to refining communication skills, this piece /1 #patientengagement

submitted 26 days ago • 1 comment

The experience of partnering with researchers is one that many find to be both hard work and personally gratifying. Have questions about family engagement? Leave it in the comments.#patient #healthcare #research #science #patientengagement #familyengagement

submitted 29 days ago • 0 comments

Your Story Matters, But So Does Your Well-Being. Sharing your lived experience in research, advocacy, or healthcare spaces is powerful—but it also takes emotional labor. #PatientEngagement #FamilyEngagement /1

submitted 29 days ago • 1 comment

@ferprogram.bsky.social This is great!

submitted 37 days ago • 1 comment

Science Communication Networking Night Family engagement in research is about connection, collaboration, and amplifying the voices of those most impacted. Science communication takes this a step further by transforming research into accessible, relatable, and meaningful stories for the broader /1

submitted 48 days ago • 1 comment

There are many lessons that partners in research learn over time. Which is why it can help so much to have a supportive community of people who partner too to learn from. /1 #PatientEngagement #FamilyEngagement #Healthcare #Research

submitted 55 days ago • 1 comment

The January edition of the Family Engagement in Research (FER) Community Update newsletter is here! 🎉 Start the year off strong—check out the latest updates, resources, and opportunities for family engagement in research. What are your family engagement goals for 2025? Share below! /1

submitted 54 days ago • 1 comment

🌟 Join Us for the FER Knowledge Exchange Event! 🌟 Event: Supportive Engagement Practices in Pediatric Palliative Care Related Research Thursday, February 27, 9:30am-10:30am MST, 11:30-12:30am EST /1

submitted 51 days ago • 1 comment

I was invited by @pxphub.bsky.social to write about how to make partnering in research work for me with a #chronicillness #PatientEngagement pxphub.org/attending-in...

submitted 49 days ago • 0 comments

🌟 Join Us for the FER Knowledge Exchange Event! 🌟 Event: Supportive Engagement Practices in Pediatric Palliative Care Related Research Thursday, February 27, 9:30am-10:30am MST, 11:30-12:30am EST /1

submitted 51 days ago • 1 comment

The January edition of the Family Engagement in Research (FER) Community Update newsletter is here! 🎉 Start the year off strong—check out the latest updates, resources, and opportunities for family engagement in research. What are your family engagement goals for 2025? Share below! /1

submitted 54 days ago • 1 comment

There are many lessons that partners in research learn over time. Which is why it can help so much to have a supportive community of people who partner too to learn from. /1 #PatientEngagement #FamilyEngagement #Healthcare #Research

submitted 55 days ago • 1 comment

Looking to build meaningful partnerships in your research? Here are some practical tips to help you connect with partners who can bring lived experience and unique perspectives to your work. It all starts with a genuine connection! #PatientEngagement #FamilyEngagement

submitted 55 days ago • 0 comments

Since 2018, the Family Engagement in Research (FER) Course has been bringing families and researchers together to learn from each other about how to partner in research meaningfully. Learn more about FER, co-funded by KBHN: www.youtube.com/watch?v=gypn... #FromScienceToSolutions

submitted 55 days ago • 0 comments

"Find a group of people who challenge and inspire you, spend a lot of time with them, and it will change your life forever." -Amy Poehler The newest group of FER instructors recently met to get ready together for another amazing term of cohorts for the Family Engagement in Research Course. /1

submitted 58 days ago • 1 comment

Mark your calendar for January's FER Knowledge Exchange. The FER Knowledge Exchange is a regular community of practice focusing on identified subjects that aid in the development of healthy, engaged partnerships. #PatientEngagement Thursday, January 30 11:30am EST /1

submitted 63 days ago • 1 comment

Researchers, trainees and clinicians doing the work of #patientengagement and #familyengagement would benefit from opportunities to assess how conversations went with lived experience partners on your team. Think of it as your “check engine light”. It’s a designed mechanism to ensure you check /1

submitted 64 days ago • 1 comment

Experiential learning transforms understanding into action! The Family Engagement in Research Course offers hands-on opportunities to connect, collaborate, and grow alongside families and researchers. 🌟 Gain practical insights, build meaningful partnerships, and make research truly impactful. /1

submitted 65 days ago • 1 comment

Experiential learning transforms understanding into action! The Family Engagement in Research Course offers hands-on opportunities to connect, collaborate, and grow alongside families and researchers. 🌟 Gain practical insights, build meaningful partnerships, and make research truly impactful. /1

submitted 65 days ago • 1 comment

You might be wondering, your family or friends might be wondering... What is family engagement in research? It’s about families and researchers working together as partners, valuing lived experiences to create meaningful, impactful studies. From shaping questions to sharing results, family /1

submitted 69 days ago • 1 comment

Have you heard about the Family Engagement in Research Program? 🎓✨ This unique program brings together families, researchers, and clinicians to build partnerships that improve health research. #patientengagement /1

submitted 72 days ago • 1 comment

🎄✨ Happy Holidays from all of us at the FER Training Program! ✨🎄 As the year comes to a close, we want to thank you for your incredible support and engagement throughout the year. Wishing you a joyful holiday season and all the best for a bright and successful New Year! 🥂🌟 #PatientEngagement

submitted 79 days ago • 0 comments