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flyingfox.bsky.social
Here to learn and share about Long Covid, still not recovered after spring 2020 infection. Also look at how adorable flying foxes are! 💚
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If you’re interested in resources for staying safe from COVID, take our survey on how Public Health Action Network can best support you: publichealthactionnetwork.org/phan-safer-s...

submitted 20 days ago • 0 comments

It is stunning to me there is not a massive Long Covid-community uprising against this guy’s nomination. There are only so many ways for him to tell us viral persistence research will be DOA.

submitted 35 days ago • 6 comments

#LongCOVID Community: Some folks have reached out about making an end-of-year, tax-deductible donation to @lccampaign.bsky.social. If you feel able to chip in too, every donation counts! We have big plans for 2025, but can only realize them with support: tinyurl.com/LongCOVIDCam... 🙏🏾🙏🙏🏽 1/x

submitted 62 days ago • 1 comment

Day 830. Week 4 of taking rapamycin. Something's happening. The engine seems less clogged, the synapses are firing more cleanly. Yesterday, I even risked a high-intensity interval workout. I should be catatonic today. I am not. Not a hint of PEM. Is this really happening? #LongCovid #MedSky #MECFS

submitted 75 days ago • 3 comments

Vermont, January 2020

submitted 76 days ago • 0 comments

A new BMJ review claims that #LongCovid can be treated using CBT and physical exercise As ever, the devil is in the detail TL; DR the authors' own risk-of-bias analyses show that their own conclusion is unwarranted (Too bad they hid the crucial deets in an online supplement!) cc #pwME #MECFS

submitted 93 days ago • 27 comments

Thrilled to see @patientled.bsky.social featured in the NYT Giving Guide! Almost unthinkable that a small org run by very ill people could accomplish more on Long Covid than NIH, but here we are! Incredibly good investment if you have a little to spare. So grateful to my friends who already have 💛

submitted 94 days ago • 6 comments

Vermont, November 2020

submitted 96 days ago • 1 comment

It’s interesting that the Democratic Party has the exact same problem on health. Let millions be kicked off Medicaid, rolled back mitigations for Covid, ignored tens of millions w/Long Covid. Trump/RFK will be worse, but Dems let them claim the issue. This is a systemic problem w/corporate Dems.

submitted 98 days ago • 1 comment

Here are some nice mushrooms

submitted 102 days ago • 1122 comments

submitted 100 days ago • 0 comments

Our mere existence is an act of rebellion. A rebellion against a society, a medical establishment, which denies our experiences and reality. A rebellion against a capitalist system which removes value from the lives of those who cannot work through no fault of their own. #MECFS #MillionsMissing

submitted 102 days ago • 0 comments

This is an excellent thread by David Putrino, one that I’d like to add to with my own personal and professional experience.

submitted 102 days ago • 8 comments

Disabled people waiting for leftists to stop leaving ableism out of the conversation because ableism literally conditions society to accept eugenics and by extension genocide

submitted 102 days ago • 1 comment

If you’re new here, you might notice Palestinians replying to posts with their GFM links. DO NOT REPORT THEM. Whether you choose to donate or signal boost is up to you, but these posts are NOT spam. GFM has rigorous vetting for such accounts, and people are desperate. Please be compassionate.

submitted 103 days ago • 10 comments

Hung out with a friend today who showed a great deal of resilience when I "went off on one" about how everything disabled people have warned of for the last 5 years has come to pass, how eugenics and fascism start with the disabled and that we desperately need abled people (YOU) to stand UP for us

submitted 106 days ago • 1 comment

This is a reason to press NIH to urgently grant out the $515 million in RECOVER funds to external researchers who will pursue serious biomed Long Covid research. This seriously increases my concern about the funding being clawed back or otherwise redirected.

submitted 106 days ago • 7 comments

The Sick Times--a digital long-COVID newspaper--is 1 yr old today. I couldn't be prouder of what Betsy, Miles, and their team have accomplished. thesicktimes.org/2024/11/14/p... If you have the means, pls join me in supporting their end-of-year fundraiser. the-sick-times.fundjournalism.org/donate/

submitted 108 days ago • 23 comments

I wrote an op-ed for the NYT about what reporting on long COVID has meant to me—how I approached it, the impact it had, and how it taught me to be a better journalist. This piece is sort of a manifesto for a journalism grounded in compassion, rigor, and care. www.nytimes.com/2023/12/11/o...

submitted 447 days ago • 71 comments