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galen2.bsky.social
Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
27 posts 397 followers 350 following
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Posts 10 Comments 21

Poor #MEcfs care in Sweden contributes to patients committing suicide At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...

submitted 68 days ago • 1 comment

Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.

submitted 95 days ago • 3 comments

Excerpt from my forthcoming memoir about severe ME: meglobalchronicle.wordpress.com/2024/12/06/t...

submitted 105 days ago • 1 comment

In case you’re wondering whether you have ME, or whether your long COVID has progressed to become ME, here is a fantastic short explanation from the Bateman Horne Center. #mecfs #longcovid #myalgicencephalomyelitis How to diagnose ME youtu.be/8LXIXx7woCo

submitted 118 days ago • 0 comments

Newsweek: 'Map Shows US States With Highest Levels Of Long COVID' 'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.' www.newsweek.com/map-shows-us...

submitted 119 days ago • 7 comments

The History of ME. How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling. #ME #MECFS #LongCovid #journalists medium.com/@abrokenbatt...

submitted 119 days ago • 0 comments

Encephalogirl has published a chapter from my forthcoming book to educate about Severe Myalgic Encephalomyelitis. #myalgicencephalomyelitis #severeme #severemecfs open.substack.com/pub/encephal...

submitted 119 days ago • 0 comments

My son James with #verysevereME is doing poorly. We’ve begun communicating with hand signals assigned to just a handful of his needs. My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.

submitted 123 days ago • 1 comment

Learning Bluesky. My first video post.

submitted 127 days ago • 2 comments

Is there a group here of people with Severe or Very Severe ME? I’d like to follow it, if so.

submitted 128 days ago • 2 comments