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iamchronic.bsky.social
Chronic: pain, illness, rare disease, lichen nerd, & ND. I write, read, garden, and do my best to support my friends & community. Equity & Disability Justice are priorities.
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Yes! Watch Crip Camp!!

This #LongCovid stuff is intense. Shower and sitting up for lunch results in needing a nap. Pacing the best I can. And my body has other opinions.

Don't forget to add alt text on Instagram and Facebook, too. When you forget, the auto-generated alt text is not as helpful, complete, or accurate as human-written alt text. A.I. can't know the purpose of a photo. Always add your own alt text on Instagram and Facebook.

More rest. "Rest is Resistance." Tricia Hersey

Here's where you can get the articles--just to make it easy for anyone else hitting exhaustion or brain fog. Like me in this moment. journals.lww.com/cptj/pages/c...

I can't wait to read all these articles!! #LongCovid #ME/CFS @sunsopeningband.bsky.social Thank you, thank you, thank you, thank you (not enough thank yous) for being the editor. And to all the contributors. And the journal for making this ACCESSIBLE to all of us to read. THIS IS SUPER!

So many elders and disabled people are being forced out of their homes by poverty and lack of social supports, especially in high cost of living areas. It's disgusting.

OK folks, looks like this is going to be a GO! There are 12 of us so if we take an hour each, we can make it happen. I'll be in touch tomorrow! thanks.

FAVORITE READ OF 2024: August - Care Work by Leah Lakshmi Piepzna-Samarasinha I loved this book so much. I learned a lot, cried a little, and man this book makes you really think. Disability justice is for everyone. #booksky

🌱 I just finished my first browse through the Territorial Seed catalog. So many ideas for Spring!!

🌱 Yay! My body let me pull some weeds today. Looking forward to another short session tomorrow. Good sleep and pacing for the Covid recovery win!

Discworld QOTD, from The Truth “Ah," said Mr Pin. "Right. I remember. You are concerned citizens." He knew about concerned citizens. Wherever they were, they all spoke the same private language, where 'traditional values' meant 'hang someone'.”

What if instead of driving to be the “best”, “most powerful” and “richest” nation we strive to be the healthiest, most educated and helpful nation? 🤔

Fragmented, yet flawless

Holiday spirit, Shelly Girl style. Since I'm not into any of the winter festivities this year, my style feels like perfect match.

"Race is a distraction from class consciousness" I mean, sure, yeah, in the sense that being stabbed in the back is a "distraction" from the gun pointed at your head, but you still need the stabbing to stop before you can worry about the gun.

🟢 Some lichen time yesterday. They are working to expand their presence. And a bonus Elephant Seal. The boys are slowly starting to return for the season. Point Reyes National Seashore.

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Personally I would be more willing to pay for a social media website that made protecting marginalized people a core part of its business than one that offers them up as bait for bigots. That's my preference

we are all tired of screaming. this is a make or break moment for the platform & we have few options left to make our voices heard i don't need to tell my trans siblings how important it is, but cis allies, if you care about us being here, being safe, please consider signing & sharing. thank you 💖

#disability #access #justice