jameslindalliance.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Have you or a loved one been affected by pneumonia? Do you treat or work with people who have been affected by pneumonia? If so, the Community Acquired Pneumonia PSP wants to hear from you! What questions do you think research needs to answer about community acquired pneumonia? buff.ly/k942TPh

submitted 2 days ago • 0 comments

📢 What's new on the JLA website? Visit the new web page for the Essential Tremor Priority Setting Partnership (PSP): 🔗https://buff.ly/Psu7KeX

submitted 3 days ago • 0 comments

📢 What research do you think needs to be prioritised for us to understand pneumonia better? David Arnold (Community Acquired Pneumonia PSP Lead), explains how you can influence the future of pneumonia care. Complete the survey to have your say: buff.ly/L0uMcvV

submitted 4 days ago • 0 comments

📢The page for the Delirium (Australia and New Zealand) Priority Setting Partnership (PSP) is now live and can be found on the JLA website: 🔗 buff.ly/CHJi1Nc

submitted 6 days ago • 0 comments

What questions should future research answer about diagnosis, management, and recovery from community acquired pneumonia (CAP) in the UK? 📢 Have your say: buff.ly/Hnlaa0r This is a survey for people affected by CAP, their loved ones, carers and clinicians.

submitted 9 days ago • 0 comments

People with experience of involving children and young people in JLA PSPs, along with children and young people themselves, have collaborated to create guidance on ensuring meaningful involvement of young people in the JLA process. Find out more: buff.ly/jIIPC3f

submitted 10 days ago • 0 comments

📢 What are the gaps in our knowledge about midwifery practice and how to give the best maternity care? The Midwifery Practice and Maternity Care PSP encourages all ethnic groups from Black, Asian, mixed & other ethnic communities to share their views.

submitted 12 days ago • 0 comments

Ever wondered how to involve children & young people in a priority-setting partnership?🤝 We worked with other PSP teams to produce some guidance for @jameslindalliance.bsky.social based on our own PSP on CYP mental health: www.jla.nihr.ac.uk/documents/in... onlinelibrary.wiley.com/doi/full/10....

submitted 16 days ago • 1 comment

🎉 This #InternationalWomensDay find out more about the JLA PSPs that are shaping the direction of women's health research! Have your say by completing PSP surveys currently open. Anyone with relevant lived and/or professional experience is invited to take part: buff.ly/cWeHTue

submitted 15 days ago • 0 comments

The Most Premature Babies Priority Setting Partnership (PSP) worked with clinicians, parents/carers of the most premature babies, and people born extremely premature, to identify the most important areas of research for infants born <25 weeks’ gestation. 🔗 Check out the Top 10: buff.ly/5uJUdHn

submitted 17 days ago • 0 comments

📢 Shortlisting survey! What are the most important questions that researchers should be investigating on the topic of Childhood Deafness and Hearing Loss? Have your say:

submitted 18 days ago • 0 comments

📢In our latest blog post... Helen Murphy, Professor of Medicine (Diabetes & Antenatal Care) at the University of East Anglia, talks about the PROTECT study and why she chose the JLA Rolling Funding Opportunity as the best route for funding. buff.ly/nGNvf9a

submitted 19 days ago • 0 comments

It is Eating Disorders Awareness Week. Several JLA PSPs have shared research priorities identified by individuals with lived experience of eating disorders, their families, and the healthcare professionals who support them. The Top 10 lists from these PSPs can be found here: https://buff.ly/4i7Yvff

submitted 25 days ago • 0 comments

📢 New Top 10! Our thanks go to everyone who contributed to the Diverticular Disease PSP. You can now see the Top 10 here: www.jla.nihr.ac.uk/priority-set... @gutscharityuk.bsky.social @bowelresearchuk.bsky.social

submitted 26 days ago • 0 comments

📢 Have you completed the #AddictionPSP survey yet? You still have time to share your views to help shape the direction of future research into addiction: https://buff.ly/40bGG7g 🗓️ The survey closes at midnight on Sunday 23rd February 2025.

submitted 29 days ago • 0 comments

Do you or someone you care about have any experience of addiction? If so, don't miss out on the opportunity to have your views heard! Complete the survey to let the #AddictionPSP know what questions you have want research to answer about addiction: https://buff.ly/40bGG7g

submitted 30 days ago • 0 comments

📄 Check out the final report from the Veterans’ Health PSP: https://buff.ly/3EfXaE4 Find out more about the PSP on our website: https://buff.ly/418QU9Q.

submitted 37 days ago • 0 comments

Great to be finally able to share the refreshed research priorities identified+prioritised by people with lived/professional experience, a partnership with @jameslindalliance.bsky.social @mndassoc.bsky.social, ESRC @mariecurieeolc.bsky.social Report here: healthopenresearch.org/documents/7-2

submitted 38 days ago • 0 comments

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

submitted 38 days ago • 1 comment

Really pleased to launch the refreshed priorities for palliative and end of life care research with @jameslindalliance.bsky.social, @mariecurieuk.bsky.social, @mndassoc.bsky.social &ESRC at the #mcresearch2025 conference today.See the top 24 priorities here www.jla.nihr.ac.uk/media/11301/...

submitted 39 days ago • 0 comments

The new priority setting work for palliative and end of life care research led by @mariecurieuk.bsky.social @jameslindalliance.bsky.social

submitted 40 days ago • 0 comments

Today’s research is tomorrow’s care – have your say in what research would improve quality of life for people with addiction and their families: https://buff.ly/40bGG7g #AddictionPSP

submitted 39 days ago • 0 comments

The Veterans’ Health PSP identified the issues that matter most to veterans and their families, and therefore the future research that will make a real difference to their lives. 📄 Find out more in the PSP’s final report: https://buff.ly/3EfXaE4 #VeteransHealth #JLA #PrioritySettingPartnerships

submitted 40 days ago • 0 comments

Looking forward to a day at @wellcomecollection.bsky.social discussing the new priority setting work for palliative and end of life care research led by @mariecurieuk.bsky.social @jameslindalliance.bsky.social

submitted 41 days ago • 2 comments

What are the pressing questions about mental health and the body clock? Have your say in picking the top 10 questions for research to answer: edinburgh.eu.qualtrics.com/jfe/form/SV_... @circadianmhnetw.bsky.social @jameslindalliance.bsky.social #circadian #chronobiology #mentalhealth #SciComm 🧪

submitted 41 days ago • 1 comment

Thanks so much to everyone who joined the @mariecurieeolc.bsky.social Palliative and End of Life Care Research Summit 2025 yesterday. Brilliant energy and insights into ways to improve key areas of Palliative and End of Life Care in priority areas identified by @jameslindalliance.bsky.social PSP.

submitted 40 days ago • 0 comments

📢 New Top 10! Here's what people living with serious life limiting illness, their family, friends and health and social care professionals identified as the most important questions for future research into palliative and end of life care:

submitted 40 days ago • 0 comments

📢 New PSP survey The Problematic Menstrual Bleeding PSP is collecting questions and ideas for research on the care of problematic menstrual bleeding. If you have experience of problematic menstrual bleeding, or care for anyone who does, you are invited to share your views: https://buff.ly/3EsQanm

submitted 41 days ago • 0 comments

We are excited to be at the launch of the latest priorities for research into palliative and end of life care! Find out more about the Palliative and End of Life Care Refresh PSP: https://buff.ly/42PLQZw

submitted 41 days ago • 0 comments

Help research focus on what matters to people with addiction, their families, and supporters. Make sure your voice is heard: https://buff.ly/40bGG7g 📣 Please help the #AddictionsPSP hear as many voices as possible and share this post across your networks

submitted 44 days ago • 0 comments

📢 New PSP survey Do you have personal experience of stillbirth or are you a health professional who cares for people during pregnancy? Help to make sure that future research answers the most important questions about stillbirth. Share your views: https://buff.ly/3WOexC9

submitted 44 days ago • 1 comment

The Critical Care (Canada) PSP needs help identifying the Top 10 priorities for future research to improve patient care, advance knowledge, or address challenges in critical care. 📢 Have your say in improving the care of critically ill children and adults in Canada:

submitted 45 days ago • 0 comments

📢 New PSP report! The Veterans’ Health PSP has now published their final report. Read about the Top 10 priorities that were identified by veterans, families and healthcare professionals: https://buff.ly/3EfXaE4

submitted 45 days ago • 0 comments

📢 What's new on the JLA website? The Critical Care Asia and Africa PSP has now agreed its Top 10 research priorities: https://buff.ly/3Q3IRVv In our latest blog post, find out how this PSP was delivered to include voices from across Asia and Africa: https://buff.ly/3Q7KDF2

submitted 46 days ago • 0 comments

People with experience of addictions to drugs and/or alcohol - what would you like research to investigate to improve the quality of life for you and your families? Let the Addiction Healthcare Goals PSP know what matters most to you. Complete the #AddicitonPSP survey here: https://buff.ly/40bGG7g

submitted 46 days ago • 0 comments

Don't miss the @nihr.bsky.social webinar tomorrow at 12pm to find out about the JLA Priority Setting Partnerships rolling funding opportunity! For more information and to sign up, visit: https://buff.ly/40U1emk 🗓️ 5 February 2025, 12pm

submitted 47 days ago • 0 comments

Help influence the future of research to make lives better for people living with addiction, their families, and supporters! The Addiction Healthcare Goals PSP wants to know what unanswered questions should be a priority for future research to address. Have you say:

submitted 49 days ago • 0 comments

📢The Problematic Menstrual Bleeding PSP page is now live on the JLA website! Find out more about this Priority Setting Partnership here:

submitted 51 days ago • 0 comments

Veterans’ families, carers, charities, and healthcare professionals came together to agree research priorities in the Office for Veterans' Affairs Veterans’ Health PSP. Read more in the final report:

submitted 51 days ago • 0 comments

📢If you have any personal and/or professional experiences of polycystic ovary syndrome (PCOS) you are invited to share your perspectives with the PCOS PSP. Let the PSP know what matters to you most by completing the following survey: https://buff.ly/4aIqKxV @veritypcos.bsky.social

submitted 52 days ago • 0 comments

Are you a health and social care professional who works with individuals experiencing addiction? The #AddictionPSP wants to know what you think is a priority for future research into addiction. https://buff.ly/40bGG7g

submitted 52 days ago • 0 comments

Are you interested in conducting research that addresses a research priority identified by a JLA PSP? Join the @nihr.bsky.social webinar to find out how to apply for the JLA Priority Setting Partnerships rolling funding opportunity! 🗓️5/2/25 at 12pm. Sign up here:

submitted 53 days ago • 0 comments

Over 1,000 veterans, family members and healthcare professionals shared the questions that mattered to them about the wellbeing of veterans and their supporters. Find out more in the PSP’s final report:

submitted 54 days ago • 0 comments

How can future research improve addiction care? If you have experience of addictions to drugs and/or alcohol, tell the #AddictionPSP what research could make a difference to you: https://buff.ly/40bGG7g

submitted 55 days ago • 0 comments

📢New PSP page! The page for the Polycystic Ovary Syndrome Priority Setting Partnership (#PSP) is now live and can be found on the JLA website: https://buff.ly/3PQwImF #JLA #PCOS

submitted 58 days ago • 0 comments

@ics-updates.bsky.social is looking for an organised and motivated person to support them with the coordination of an Intensive Care Priority Setting Partnership. To find out more about their research project manager role and to apply, visit: https://buff.ly/42asMVc 🗓️ Deadline: 2/2/25

submitted 60 days ago • 0 comments

Help decide what research is needed in future to shape healthcare for people with experience of addictions, their families and friends. Have your say: https://buff.ly/40bGG7g #AddictionPSP

submitted 61 days ago • 0 comments

What's new on the JLA website? In our latest blog post, find out how Dr Laura Coates will be addressing research priorities from the Psoriatic Arthritis PSP:

submitted 62 days ago • 0 comments

What research would make lives better for people living with addiction, their families and supporters? Share your thoughts here: https://buff.ly/40bGG7g #AddictionPSP @cranstoun.org @rcpsych.bsky.social @shaapalcohol.bsky.social

submitted 63 days ago • 0 comments

Are you a health and social care professional who works with individuals experiencing addiction? The #AddictionPSP want to know what you think is a priority for future research into addiction. https://buff.ly/40bGG7g

submitted 65 days ago • 0 comments