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justjo.bsky.social
Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
180 posts 271 followers 329 following
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I started eating real food again in 2024!…I have now stopped the Peptamen food formula completely, and get all my calories from real food!...And I want to tell you because I want you to hear this story!...what will 2025 bring? #MECFS New post on my blog: www.whitneydafoe.com/mecfs/?post=...

Happy Birthday! @kschnickelfritz.bsky.social Tried to post a Bitmoji but it wouldn’t let me. The gifs are crap. So here are a few emojis in their place 🎂🎁🎈🥳🎉👋💃

If social media's stressing you out just now (me too) then here's a gentle antidote: pause for a few seconds & focus on the details in my photo👇-your brain's very likely to release dopamine,lifting your mood due to the bright colours & is ikely to relax in response to seeing these botanical patterns

Think about this.. for a second. Doesn't take you much time to get it! Them? Eons.😉

Delighted to have joined the APPG ME and been appointed an officer. Too many people live with ME, with too little understanding, and inadequate care. It’s time to engage - I’m #ThereForME.

@rolypeck.bsky.social Thought you might enjoy this.

Petra, I can’t find you! Hope you get to see this. Happy Birthday 🥳 🎂🎈

@actionforme.bsky.social Please reconsider posting on X even if just for info and not interaction/discussion. So many people on there (including DecodeME participants) have not seen your research announcement today. #ME

1/2 🚨 SequenceME A groundbreaking partnership has launched today, bringing together experts from Action for ME, Oxford Nanopore Technologies & the University of Edinburgh. Read more 👇 www.actionforme.org.uk/news/sequenc... #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #MEResearch

Finally spent a garden Centre voucher I received last Christmas! Very happy with them 🥰

Hating yourself for things you can’t control will never make you better, it will only make you bitter.

Now is the time to make sure you have enough medication to see you through the Xmas period and/or arrange your repeat prescription in good time #ME #ChronicIllness #LC

My brain’s not well at all atm but small creative routines can help so I’m going to try to post a (hopefully dopamine-boosting) photo for you every day through till🎄. Some small wreaths bc I really like twiggy circles 🌿:

Smashing! 😊

🤣🤣🤣

Fantastic that this photography project by Jeremy Jeffs about ME is on display @wellcomecollection.bsky.social Hope lots of people see it. (Was meant to take part but wasn't well enough to have anyone here, and have been shielding also.) #pwME #MEcfs wellcomecollection.org/stories/livi...

👍

It’s time 😊

Buggered up my straw because I didn’t have my glasses on and I was trying to insert it into the QR code 🤦‍♀️🤣 🤓

The #ME Association, a national organisation, has been dominated by this man so long it's transformed into a mental health charity. ME is not a mental illness. I wasted months meeting MEA reps (Trustees & employees) pre inquest. 2/3 resigned after listening to me. thesicktimes.org/2024/11/22/a...

benefitsandwork.co.uk/news/is-labo...

Treated myself to 2 new pairs of Snag tights. I always found tights to be uncomfortable and restricting but when I discovered Snag just before I got ill I was delighted. Soft, stretchy, they never droop or fall down. They last ages and wash well. Packed with care too 😍

#GBBO ready Jaffa cakes are small these days - they’re on a saucer!

#GBBO ready Jaffa cakes are small these days - they’re on a saucer!

ITVx have got an offer on this week. Their add-free premium service is £2 a month for 2 months - first week free. It then goes to £5.99 in Feb but you can cancel any time before that date. I’m giving it a go so I don’t have to endure ads plus I can download stuff. Nice for Xmas viewing 😊

Poor Nigel x

That time of year again. The Reith Lectures have begun on Radio 4 This year it’s about violence. Interesting so far 👍

I watched After The Party on Ch4 and very much enjoyed the great acting, especially little Walt. Once I understood the flashbacks to the party (seamlessly cut in so hard to notice at first which confused me a tad) it was great. Ending was a disappointment for me.

Make sure you’re following #ThereForME on our new social media accounts! You can find links here: linktr.ee/ThereForME #ComingSoon