Profile avatar
kaleidoscope-lupus.bsky.social
14 posts 6 followers 18 following
Regular Contributor
Posts 14 Comments 0

submitted 7 days ago • 0 comments

Have you ever felt short of breath for no real reason? For some living with lupus, this could be a sign of a rare but serious complication called shrinking lung syndrome. Learn more with KFL's newest blog article "Lupus and Shrinking Lung Syndrome" here: ow.ly/2MfH50VgbUy

submitted 7 days ago • 0 comments

For more information on lupus, the kidneys and lupus nephritis, check out our blog, "Lupus Nephritis," by following this link: kaleidoscopefightinglupus.org/lupus-nephri... Also, contact your local kidney council!

submitted 7 days ago • 0 comments

In recognition of March as National Kidney Month, we are excited to present this encore release of one of our most popular educational videos, “Lupus Nephritis: The Importance of Early Diagnosis” featuring Dr. Donald Thomas." Link: youtu.be/RgKrIW33n-Y

submitted 10 days ago • 0 comments

Lupus News: A study by Johns Hopkins (funded by NIH) found that corticosteroids used to treat pericarditis may also increase the risk of the pericarditis recurring in the future. Yet another reason to limit steroid use as much as possible. Link to study: ow.ly/CCax50VexGb

submitted 10 days ago • 0 comments

Lupus in the News: A new CAR T cell therapy has been given FDA Fast-Track Designation for lupus nephritis, vasculitis, scleroderma and idiopathic inflammatory myopathy – all of which can affect those with SLE. Link: ow.ly/O5qf50UWys2

submitted 31 days ago • 0 comments

SLE can increase the risk of stroke by 8 times compared to the general public. What are these risks, and how can you reduce them? Read this week’s KFL blog article to find out! Here’s the link: kaleidoscopefightinglupus.org/stroke-valua...

submitted 31 days ago • 0 comments

submitted 31 days ago • 0 comments

submitted 31 days ago • 0 comments

Lupus in the News: The latest data on the Phase III clinical studies of obinutuzumab (Gazyva) showed over 46% complete renal response in lupus nephritis – 13.4% better than standard therapies! Link: ow.ly/puBa50V10Kx

submitted 31 days ago • 0 comments

Lupus in the News: A new study may help predict which patients living with lupus are most able to taper and discontinue corticosteroids. Those with low disease state, who take hydroxychloroquine and who gradually taper steroids saw the best results. Link to study: ow.ly/st6V50US7BM

submitted 41 days ago • 0 comments

An estimated 80% of individuals with lupus will experience brain fog at some point. Learning what may contribute to brain fog and how to manage it can improve your day-to-day quality of life. To learn more, check out this week’s KFL blog article, “Lupus and Brain Fog,” here: ow.ly/uoFI50QmU1M

submitted 41 days ago • 0 comments

#kaleidoscopefightinglupus #lupus #sle #spoonie #lupusfighter #lupuslife #spoonielife #lupuscommunity #invisibleillness #butyoudontlooksick #autoimmune #autoimmunediseases #chronicillness #autoimmunedisease #lupusfact #lupusfacts #lupuseducation #lupusproblems #lupusstrong #lupustruth

submitted 53 days ago • 0 comments

#kaleidoscopefightinglupus #lupus #sle #spoonie #lupusfighter #lupuslife #spoonielife #lupuscommunity #invisibleillness #butyoudontlooksick #autoimmune #lupuswarrior #autoimmunedisease #weeklyinspiration #dailyinspiration #livingwithlupus #inspirationalquotestoliveby #lupusstrong #lupuswarriors

submitted 53 days ago • 0 comments