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kaytesb.bsky.social
Law & ethics @umichmedicine @UM_GlobalOBGYN (view own) • AD @CBSSM • AE @Bioethics_net • Former AD @bioethicsgov for @BarackObama • Big data/little privacy
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As someone who has been studying this for over a decade, my take on what 23andMe customers should really be worried about:

"[T]he loss of U.S. support [for Gavi, which purchases vaccines for children in developing countries] may mean 75 million children do not receive routine vaccinations in the next five years, with more than 1.2 million children dying as a result." www.nytimes.com/2025/03/26/h...

As 23andMe files for bankruptcy and Wojcicki steps down as CEO (so she can bid) Anya Prince & my recent JAMA piece discusses what can - and should - happen to the over 1 million private genomes it has collected

Ultra-processed foods? PEANUT allergies???

Who funds biomedical research? @nature.com www.nature.com/articles/d41...

ICYMI: We have pilot funding available to encourage researchers to use our new survey data of the dementia care workforce and linked data. Apply by April 28 for up to $100,000 in direct costs for projects using Wave 1 data. Data will be released by July 1 and free for all researchers. www.ndws.org

Just bleak as fuck: “It is the policy of NIH not to prioritize research activities that focuses gaining scientific knowledge on why individuals are hesitant to be vaccinated and/or explore ways to improve vaccine interest and commitment...Therefore, the award is terminated.”

The Ed. Department's Office for Civil Rights sent letters to 60 additional institutions "warning them of potential enforcement actions" for "violations relating to antisemitic harassment and discrimination" including Harvard, Brown, Stanford, Princeton, UNC, and several UC's

As President Trump seeks to purge the federal government of “woke” initiatives, agencies have flagged hundreds of words to limit or avoid. An analysis by The New York Times reveals how these words are being removed from government websites. www.nytimes.com/interactive/...

🚨 Washington State asked a judge yesterday to hold the Trump admin in contempt for canceling a grant to Seattle Children’s to study gender-affirming care. “Injunctions are not suggestions — they are binding orders of the Court. Defendants may not evade this Court’s orders through game-playing.”

This morning the birds started singing again in Ann Arbor. For today, that is enough.

"The sudden departure was prompted by growing disagreement with Kennedy and his principal deputy chief of staff, Stefanie Spear, over their management of the health department, said the two people, who were granted anonymity to speak candidly." www.politico.com/news/2025/03...

“He who saves his Country does not violate any Law,” Mr. Trump posted. www.nytimes.com/2025/03/02/u...

I just started yelling at my husband for putting a dirty rag in my clothing laundry. He countered “How do you know it was me??” To which I replied “Because you’re the only one who cleans the house!” And then, dear reader, I decided to quit while I was ahead.

The White House is pressuring the IRS to give DOGE access to IDRS, which includes taxpayer bank info, including letting them “enter and adjust transaction data and automatically generate notices, collection documents and other records.” www.washingtonpost.com/business/202...

The outreach director for the South Dakota Department of Public Health is *literally* named Kafka kffhealthnews.org/news/article...

Roses are red And sometimes pink in appearance You haven’t died from a drug open market Because of FDA clearance #healthpolicyvalentines #federalworker valentines

DOGE's ransacking of OPM data is terrifying. This isn't just your typical SS#/email address. It can be any address where you ever lived, your parents names and addresses, where you were born, any criminal history...ANYTHING that might be able to identify you. 1/3 www.eff.org/press/releas...

No one can truly capture what cuts like the ones announced Friday might do to American medical research. But I decided to try, in terms that a general audience might understand. I hope it's useful. open.substack.com/pub/karagavi...

www.nytimes.com/2025/02/10/o...

I had the opportunity to work with the good folks of NARA extensively when I was with Obama’ bioethics commission investigating historical research transgressions. They are a national treasure 💔 www.washingtonpost.com/politics/202...

From my colleague @dtmaust.bsky.social for sharing: On Friday 2/7, the Trump administration announced that it will cap "indirect" cost rates on grants from the National Institutes of Health (NIH) at 15%. This will devastate U.S. higher education and biomedical research. 1/6

Almost like this was the entire point, my friend :/ “They have this list of people who resigned,” said an employee of OPM...who had emailed her resignation notice before the judge’s ruling... “That’s an easy list of people to get rid of.” www.washingtonpost.com/dc-md-va/202...

The "Committee has drafted an ambitious plan that includes a massive increase of the federal tax on the endowments of wealthy universities, eliminating some student loan programs & requiring colleges to pay to participate in the federal student loan program." www.washingtonpost.com/education/20...

“A sane government would never do this.” www.washingtonpost.com/health/2025/...

“ U.S.A.I.D. has become America’s superpower in a world defined by threats that cross borders.” www.nytimes.com/2025/02/06/o...

Trials abandoned due to the stop-work order on USAID-funded research:

My latest. As journalists and writers, we have a duty to use language that is accurate and describes our current reality. I’m no longer going to talk about DEI/Anti-DEI. Let’s be clear. We are facing racial purges and re-segregation. www.washingtonpost.com/opinions/202...

They don’t care about rooting out wasteful spending folks. They care about looting the data to improve their AI. The “DOGE Service have fed sensitive data from across the Education Department into AI software to probe the agency’s programs and spending…” www.washingtonpost.com/nation/2025/...

“Inside the Education Department, some staffers are deeply alarmed by the fact that DOGE staffers have gained access to federal student loan data, which includes personal information for millions of borrowers” www.washingtonpost.com/business/202...

“Google on Tuesday updated its ethical guidelines around artificial intelligence, removing commitments not to apply the technology to weapons or surveillance.” www.washingtonpost.com/technology/2...

Federally funded researchers may be forced to remove terms from their research, like gender. "If no data exist to prove that a health issue concentrates within a particular community, that provides a justification to cut funding," writes Katherine Wu. www.theatlantic.com/health/archi...

It’s hard to process 99.9% of what happened yesterday But my friends - I am going to be deeply here for you through the FACA drama

Many who undergo direct-to-consumer genetic testing don’t realize that their data are being licensed to pharmaceutical and biotech companies. JAMA Viewpoint authors @kaytesb.bsky.social and Anya E. R. Prince discuss this gap between consumer expectations and what is being done. ja.ma/40uGL7q

“Human tastemakers are fallible but also have the capacity, perhaps even the intention, to surprise or delight or anger when selecting a piece of art.. An algorithm’s only imperative is more. More time on the app, more products sold, more ads clicked…”

“none of the other offerings — apps, coaching, relaxation classes, courses in time management or financial health — had any positive effect. Trainings on resilience and stress management actually appeared to have a negative effect.”