keratoconusgroup.org - Profile | ThreadSky | a Reddit-style client for Bluesky

I'm grateful for our wonderful community, for the knowledge we share and the support we give one another. Challenges are faced more easily when we have each other for support. I'm thankful that I don't have to face #keratoconus alone. Happy Thanksgiving, everyone!

submitted 89 days ago • 0 comments

Keratoconus... the ultimate resolution killer. #pcgaming #pcgames #pcgamer

submitted 94 days ago • 0 comments

This World Keratoconus Day, let's make some noise and raise awareness together. Visit our website to download wallpapers and posters to share with your friends and family: www.keratoconusgroup.org/2024/10/worl...

submitted 107 days ago • 0 comments

Today is World Keratoconus Day! Every year on November 10 we join together to raise awareness about the impact #keratoconus has on the lives of those affected. Visit our website to learn how you can get involved and help to spread the word: keratoconusgroup.org/WorldKCDay

submitted 107 days ago • 0 comments

Tomorrow is World Keratoconus Day! Every year on November 10 we come together to raise awareness about the impact #keratoconus has on the lives of those affected, and their family and friends. Visit our website to learn how you can participate: www.keratoconusgroup.org/WorldKCDay

submitted 108 days ago • 0 comments

Get ready to spread awareness! World #Keratoconus Day is coming up on November 10th. Let's make some noise and raise awareness together. Visit our website to download stunning wallpapers and posters to share on your social media and show your support: www.keratoconusgroup.org/2024/10/worl...

submitted 116 days ago • 0 comments

Don’t let an eye infection be the scariest part of your #Halloween . All contact lenses must be prescribed by a doctor, including decorative lenses. Any contact lenses that are not prescribed by a doctor are illegal and could cause you harm. www.keratoconusgroup.org/2024/10/keep...

submitted 118 days ago • 0 comments

Our Facebook group has reached 30,000 members! We want to take a moment to thank each and every one of you for being a part of this amazing community. We couldn't have done it without you! www.keratoconusgroup.org/2024/10/face...

submitted 128 days ago • 0 comments

We're excited to share that our private Facebook group has reached a new milestone – over 30,000 members! Join the conversation today: Facebook.com/groups/KeratoconusGroup

submitted 129 days ago • 0 comments

Don’t let an eye infection be the scariest part of your #Halloween. All contact lenses must be prescribed by a doctor, including decorative lenses. Any contact lenses that are not prescribed by a doctor are illegal and could cause you harm. www.keratoconusgroup.org/2024/10/keep...

submitted 133 days ago • 0 comments

Hey everyone! Today I want to share something that has been a part of my life for the past five years: keratoconus. www.keratoconusgroup.org/2023/09/livi...

submitted 135 days ago • 0 comments

If you have #keratoconus or know someone who does, this post may help you understand more about this condition and how to cope with it. www.keratoconusgroup.org/2023/03/kera...

submitted 136 days ago • 0 comments

Helpful update for people who are visually impaired or have trouble seeing small text ❤️ Who else is using the largest font size? #keratoconus

submitted 137 days ago • 1 comment

Eye rubbing is a common habit that many people do without thinking, but it can have harmful consequences for your eyes. It can damage the structure of your eye, create cosmetic issues, increase the risk of infections and worsen existing eye conditions. www.keratoconusgroup.org/2023/04/eye-...

submitted 137 days ago • 0 comments

Are you ready to spread awareness about keratoconus? #WorldKCDay is just one month away! www.keratoconusgroup.org/2024/10/worl...

submitted 138 days ago • 0 comments

As we approach #WorldSightDay on October 10, it's time to shine a spotlight on the importance of child eye health. This year's theme, “Children, Love Your Eyes,” emphasizes the need for early eye care and the profound impact it can have on a child's life. www.keratoconusgroup.org/2024/10/worl...

submitted 140 days ago • 0 comments

Living with keratoconus is a journey filled with ups and downs. It's not about winning or losing, but about finding ways to carry the weight and continue moving forward. www.keratoconusgroup.org/2024/10/kera...

submitted 144 days ago • 0 comments

When I am not wearing my contact lens... #MeanGirlsDay

submitted 145 days ago • 0 comments

Corneal Crosslinking FAQs: Common Questions and Answers www.keratoconusgroup.org/2023/11/corn...

submitted 146 days ago • 0 comments

Lens doesn't work as well when I have allergy symptoms.: Could this come from eye swelling? It makes sense that with even slight eye swelling that the lens would not fit as well and cause problems. I have leakage and eyesight is greatly affected when I have allergies too. Anyone else or comments?…

submitted 155 days ago • 1 comment

Please don't tell me... How would you complete this sentence?: Please don't tell me... How would you complete this sentence? 🤔 Tell us what phrase or statement makes you feel frustrated, annoyed, or invalidated (because we all have them). submitted by /u/keratoconusgroup [link] [comments]

submitted 156 days ago • 0 comments

Possible Keratoconus Diagnosis: Good morning, I recently went to the eye doctor after noticing a major change in my vision over the past year. I have never worn contacts or glasses, and honestly it was my first eye appointment since I was a child (I’m 25). They noticed during the Autorefractor…

submitted 156 days ago • 0 comments

Anybody extremely light sensitive?: Im 30 and have had kc since 18, although wasn’t diagnosed until a couple years ago. The signs were obvious but the optometrists never picked up on it. My vision isn’t terrible in low light but it’s gotten to the point where any sort of light makes it hard to see.…

submitted 157 days ago • 0 comments

I am an open ear for anyone who feels defeated: A lot of people reach out to me here to chat and just have someone to talk to. I was in your shoes not long ago and i know the value of speaking to others that understand or have been ahead in their kc journey. This is my public open invitation to you…

submitted 158 days ago • 0 comments

ClearCare on planes: Hey yall. I’m traveling soon and wanted to know how you handle clearcare for the trip. I usually put it in my travel bottles, but I’ve noticed that it doesn’t fizz as much after being put in my travel bottles. I don’t want to pay for checking bc checking has gotten so…

submitted 159 days ago • 0 comments

Asking about not using lenses and going to glasses: I just got a new set of lenses. They cost me $1500 out of pocket, due to the fact that my insurance will not cover Keratoconus as a medical condition. But I am still having a terrible problem with clouding. I was at a football game yesterday and…

submitted 159 days ago • 0 comments

Can someone walk me through CXL surgery: I’m supposed to get CXL done but have horrible anxiety. I asked the lady on the phone if she could walk me through what they will do and what will happen and she gave me almost little to no answers. Can someone walk me through the whole procedure and what…

submitted 160 days ago • 0 comments

Solution to water activities?: After years of wearing my contacts in the water for pool and lake activities (boating and tubing) I finally started searching for a pair of goggles that don't look like goggles. Stumbled across these, giving them a go:…

submitted 160 days ago • 0 comments

Struggling after my cxl: Will make this short because I’m still in recovery. I had my first eye done on Thursday- Prokera was inserted yesterday (Friday). I cannot believe how emotional I am. I’ve had some anxiety but I feel really depressed and I’m really scared to have my next one done, as that…

submitted 161 days ago • 0 comments

Finally got my sclerals. Very happy! I've never worn contacts before so I'm struggling. Details and Story within: After 10 years of progressing KC, my doctor was able to take my vision from 20/80 Left and 20/400 Right, to 20/20 and 20/30! I have my life back! Can't wait to master this process! Any…

submitted 161 days ago • 0 comments

Did anyone get Short Term Disability after their surgery?: I took a few weeks off after I got CXL surgery in both my eyes. I work remotely behind a laptop, and work encouraging me to apply for CA SDI and rest. I applied and got denied. I can appeal. Work took my leave as unpaid time off. I’m…

submitted 162 days ago • 0 comments

Life is depressing with KC: Sorry for the long post, just wanted to vent out my emotions. I am 21F and I was diagnosed with keratoconus in 2019. I had planned on getting CXL in 2020, but due to the pandemic i couldn't get it done. During the pandemic I had to attend online class everyday and…

submitted 163 days ago • 0 comments

Old sclerals after your CXL, How was it?: I am so happy to possibly get better vision again in December with new sclerals as i feel my eyes have certainly changed since my cxl’s earlier this year. My left eyes seems more blurry and with more ghosting and glare (but with no changes to kmax) and my…

submitted 164 days ago • 0 comments

Sceleral insertion tips/must haves: Hi all I am getting my sclerals today are there any must have items to purchase to make the lens insertion easier? I’m finding it difficult to insert the lens since my lashes are long so if anyone has any tips to make it easier. submitted by /u/chrisdanto…

submitted 164 days ago • 0 comments

Help! New Scleral lens wearer: Hello everyone I developed KC when i was 18. It progressed and has came to a steady stop now im in my 30s. Ive tried hybrids, soft, rgp lenses with no avail. So my optometrist decided on mini sclerals. For some reason only the left one had arrived so i went to…

submitted 165 days ago • 0 comments

What is the most helpful keratoconus skill you have learned in this community?: submitted by /u/keratoconusgroup [link] [comments]

submitted 165 days ago • 0 comments

About to schedule CTAK for my bad eye. Has anyone here had that surgery done?: submitted by /u/Alexyeve [link] [comments]

submitted 166 days ago • 0 comments

Is this type of eye rubbing okay?: So I’m not actually using my knuckles or direct contact with my corneas, but I like to sorta pull my eyelids from my upper cheeks skin. submitted by /u/shaunlols [link] [comments]

submitted 166 days ago • 0 comments

ICL for Keratoconus?: Anyone here had ICL (Implantable Contact Lens) and had success? I saw some ads on facebook that ICL can be done for those with kc. submitted by /u/nitzky0143 [link] [comments]

submitted 167 days ago • 0 comments

Dizziness symptoms: What eventually led me to being diagnosed was a wide range of completely disabling symptoms that have gotten to the point of sending me to the hospital before. The worst being severe eye fatigue, dizziness, vertigo, motion sickness, and nausea. I had CXL + T-PRK in February, no…

submitted 168 days ago • 0 comments

Anyone here down to file a class action lawsuit against Apple for emotional distress?: submitted by /u/ApocalypseBeans [link] [comments]

submitted 168 days ago • 0 comments

At my wits end. I don’t know what to do anymore. Please offer any advice: I have severe scarring in my left eye. Scleral lenses (iprint pro) no longer work. I’ve been fit about 20 different times for a custom lens(iprintpro) and nothing works. I am not a candidate for a corneal transplant because…

submitted 169 days ago • 0 comments

Tired eyes mid afternoon: Does anyone find they really need a sleep in the afternoon I wear sclerals and my day is 5:20 am wake up and lenses in. Drive to work for 6am Gym 6am to 7am Work until 3 pm mainly on a pc say 80% Get home by 4 pm - eyes are shattered Sleep for 20 mins…

submitted 169 days ago • 0 comments

Many years of self doubt and now legally blind: Disclaimer: Not officially diagnosed as legally blind I feel like no one believed me. My journey as least for me started when I was eight years old. Every eye appointment,.I would say something was wrong and they just gave me new…

submitted 170 days ago • 0 comments

So who knows about your Keratoconus?: I'm fully scleral dependent but function pretty well with them once they're in, so I've never felt the need to share my condition with anyone. Currently only my parents and siblings know about it. There's only one other person whom I feel I need to share…

submitted 170 days ago • 0 comments

What's the best solution for filling hard scleral lenses?: I've heard some people say the solution you put in them affects comfort. I've been using lacripure. Is there another one to try that might make them better? I think most of my discomfort is still not getting the fit right, but I want to…

submitted 171 days ago • 0 comments

Eye pain during the night: Hello all, I have severe keratoconus on both eyes, but my right one is definetly the worst because the cone is centered. I put a medicine gel (Recugel) on my eye during the night to mitigate the eyelid rubbing, but I wake up in the middle of the night with pain and dry…

submitted 172 days ago • 0 comments

Anyone else with astigmatism that doesn’t go away even with sclerals?: After another visit my doctor says she couldn’t correct it further because it’s an internal astigmatism that causing issues at this point. What’s most frustrating is that I’m more comfortable reading text without my lenses…

submitted 172 days ago • 0 comments