Profile avatar
leakylifeboat.bsky.social
Impacted by changes to the NDIS? Grab a life ring and a megaphone. Just a good human? Please support our advocacy by sharing our posts. ๐Ÿ›Ÿ leakylifeboat.substack.com/p/open-letter-to-the-ndia โœ‰๏ธ [email protected]
172 posts 440 followers 336 following
Prolific Poster
Conversation Starter

Imagine if... ๐Ÿ’ญ Medibank made you go to bed before 8pm. ๐Ÿ›Œ Even on weekends. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Yet, trying to find out what supposed "evidence" the NDIA "bases" denials of support requests and other NDIS decisions on is like The Neverending Hide and Seek Story. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

#NDIS How it's going. NDIA: Here's a plan that doesn't cover everything that you need. Me: Ok, I'll work creatively to find cost effective solutions to get the most out of my funds. NDIS changes 2024: You can't have anything that's outside the box! That's cheating. We'll fine you ๐Ÿ‘ฎ. 1/2

Beautifully written, revealing look at NDIS music and art therapy via the story of my colleague Kye Halford's cousin. Christian sings to communicate after having a crowbar jammed into his brain by another man while trying to defend a woman holding a baby. www.thesaturdaypaper.com.au/life/2025/02...

So, 37 million dollars ๐Ÿ’ธ fighting to stop disabled people receiving essential supports. And the #NDIS #NDIA lost 76% of cases that went to tribunal. Imagine what that 37 million dollars could have done. #Auspol #Equity

The NDIA spent thirty-seven MILLION fighting disabled people & their families in court to stop us getting supports in 2023-2024. In 2019-2021 they apparently lost 76% of cases at the then AAT. So much for that 'waste clock' and demonising the disabled. www.righttoknow.org.au/request/ndia...

Does BlueSky have a Remind Me bot yet? Because this one is worth a March 2025 reminder ๐Ÿ‘€ #NDIS #Auspol

Seems like it'll be the only #LeakyNDIS lifeboat in the ocean for a while... Cap'n Rishworth, we could have co-designed more boats by now if Labor listened to PWD over co-designing a deal with the Opposition. If you can't even co-design with the states, it's course-correction time. #Auspol #NDIS

The NDIA has finally updated the OG confirming: ๐Ÿšจ 90 days for all #NDIS eligibility reassessments ๐Ÿšจ The specific eligibility criteria in question will be identified Clarification on how far they'll explain the below points + EI criteria is also warranted, per our open letter. #LeakyNDIS #Auspol

Imagine if your cost of living problem was not being able to pee or ๐Ÿ’ฉ... ...because a bureaucrat said your continence supplies weren't value for money. Australians with disability want a fair go in life without being deemed unworthy of things you take for granted. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine ifโ€ฆ you had to get approved by your health insurance company to share a bed with your partner. Australians with disability donโ€™t want special treatment. We want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ You had to report how many times you used the toilet to Centrelink.๐Ÿšฝ๐Ÿงป Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ The ATO got to choose your flatmates and denied you veto power. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ Medibank made you go to bed before 8pm. ๐Ÿ›Œ Even on weekends. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ you couldn't choose the clinic that decides if you need a pap smear, and who they send to do it. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine #Auspol subjected disability support needs + human rights to a pub test...๐Ÿ’ญ๐Ÿบ And the pub test said: โ€œYeah, people with disabilities know their needs best, including how to save money by finding assistive solutions in the open market.โ€ And the gov ignored the pub test anyway. #LeakyNDIS ๐Ÿ›Ÿ

Guess that 1:3 shared support ratio is going to be bad for NDIS workers, too. Getting paid so poorly for 3x the interrupted sleep isn't just unfair, it seems like a massive safety issue when expected to keep all four of you safe while sleep deprived. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Guess that 1:3 shared support ratio is going to be bad for NDIS workers, too. Getting paid so poorly for 3x the interrupted sleep isn't just unfair, it seems like a massive safety issue when expected to keep all four of you safe while sleep deprived. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Yet, trying to find out what supposed "evidence" the NDIA "bases" denials of support requests and other NDIS decisions on is like The Neverending Hide and Seek Story. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Ignore the first half of this quote for a moment. The second half is exactly what we saw play out with the #NDIS in 2024. Now, read the first half. Understand why some of us have deja vu yet? If not, this article is a good place to start. #LeakyNDIS #Auspol #Robodebt

Imagine #Auspol subjected disability support needs + human rights to a pub test...๐Ÿ’ญ๐Ÿบ And the pub test said: โ€œYeah, people with disabilities know their needs best, including how to save money by finding assistive solutions in the open market.โ€ And the gov ignored the pub test anyway. #LeakyNDIS ๐Ÿ›Ÿ

This is our current reality. Fear and uncertainty, when we're just trying to live our lives like everybody else. #LeakyNDIS

I really hope the Disability Community smash Labor at the next election by voting Greens or Teals. As an NDIS participant I am dreading what is to come, especially being assessed by a complete stranger that I will not feel safe with. #SaveOurNDIS www.thesaturdaypaper.com.au/news/health/...

Posting about NDIS issues? Add hashtag #LeakyNDIS LLB @leakylifeboat.bsky.social will find it, add to list of concerns/challenges (help build database) &/or may point you to a lifeboat... resources/person to help๐Ÿ’œ Follow LLB -see links in their bio๐Ÿ‘Š Share this post, help spread word๐Ÿซ‚ #Auspol

Imagine if... ๐Ÿ’ญ you couldn't choose the clinic that decides if you need a pap smear, and who they send to do it. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ Medibank made you go to bed before 8pm. ๐Ÿ›Œ Even on weekends. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ The ATO got to choose your flatmates and denied you veto power. Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if... ๐Ÿ’ญ You had to report how many times you used the toilet to Centrelink.๐Ÿšฝ๐Ÿงป Australians with disabilities just want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine ifโ€ฆ you had to get approved by your health insurance company to share a bed with your partner. Australians with disability donโ€™t want special treatment. We want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine ifโ€ฆ #Medicare sent a random 'assessor' to your house to decide how often you're allowed out of bed. ๐Ÿ›Œ Australians with disability donโ€™t want special treatment. We want a fair go in life without the government micromanaging us and making our worlds smaller than yours. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

Imagine if your cost of living problem was not being able to pee or ๐Ÿ’ฉ... ...because a bureaucrat said your continence supplies weren't value for money. Australians with disability want a fair go in life without being deemed unworthy of things you take for granted. #LeakyNDIS ๐Ÿ›Ÿ #Auspol

The NDIA has finally updated the OG confirming: ๐Ÿšจ 90 days for all #NDIS eligibility reassessments ๐Ÿšจ The specific eligibility criteria in question will be identified Clarification on how far they'll explain the below points + EI criteria is also warranted, per our open letter. #LeakyNDIS #Auspol

If #NDIA lost 3/4 of appeals last yr, why are most applic's from ppl w #mecfs rejected? Because Aus govts, research bodies & medical educators have neglected this devastating disease for decades. Profound disability, no effective treatments, no cure. Ppl w ME/CFS vote! @markbutlermp.bsky.social

Lol. Dear heroic Coalition frontbencher: We remember who helped Labor gut the NDIS. Dear Labor MP: Maybe people with disabilities would be happier if you weren't throwing us overboard for your 8% while being too ๐Ÿ” to admit we're unhappy on the record. Love, Advocates with more to lose than you ๐Ÿ˜˜

Seems like it'll be the only #LeakyNDIS lifeboat in the ocean for a while... Cap'n Rishworth, we could have co-designed more boats by now if Labor listened to PWD over co-designing a deal with the Opposition. If you can't even co-design with the states, it's course-correction time. #Auspol #NDIS

Yes, we'll update this with the 90 days breathing room soon. We're all busy dealing with #NDIS reform impacts in our own lives. However: The NDIA still needs to address all the other "troubling" procedural fairness issues. Disclosing "evidence", not skipping key EI criteria... #LeakyNDIS #Auspol

The NDIA has conceded everyone needs 90 days for #NDIS eligibility reassessments, not 28 days. We'd like them to also be honest about evidence against & specific evidence required to maintain eligibility. Reversing the onus of proof nicely won't do. #Auspol #LeakyNDIS @squigglyrick.bsky.social