longcovidadvoc.com - Profile | ThreadSky | a Reddit-style client for Bluesky

📚💙If anyone wants to join us for our Spring book club 'Unheard: The Medical Practice of Silencing' by Dr Rageshri Dhaiyawan is only 99p on ebooks or kindle! (& we are live at 7pm!) #pedanticzebra #booksky

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If you can share our Keyworker Petition survey, we’d be really grateful! www.surveymonkey.com/r/D3HJH5Z @longcovidadvoc.com @angryhacademic.bsky.social @longcovidsos.bsky.social @longcovidkids.bsky.social @longcovidsupport.bsky.social

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🌟It's tonight! We will be livestreaming on YouTube and Facebook at 7pm (GMT) with @jonathanstea.bsky.social 🔊Recording will be available after 📺YouTube link: tinyurl.com/yec4f4db

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If several million are to have a chance of recovery from #LongCovid & #ME & a decent model of care & research established. Wessely has to go from NHS England non-exec board Here's hoping 🤞🍀 www.theguardian.com/society/2025...

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🙌 Last call for questions for our Q & A section tomorrow If you have a question specifically about pseudoscience or the present political & social issues around misinformation (or anything else) then now is your chance! 💌 DM open

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👀It is important in these times to have choices to where we place our social media attention. 👩‍💻So, we've worked to create a viable community on Bluesky. 🥳To celebrate your support we are now VERIFIED!

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#HandsOffDisabilityBenefits Sunday 9th March 2025 2-4pm Register via link to attend the online meeting @susanp64.bsky.social @peterstefanovic.bsky.social @left-foot-forward.bsky.social @janelauppen.bsky.social @blokeonwheels.bsky.social @longcovidadvoc.bsky.social

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⛔As we move into #LongCovidAwareness month it's worth remembering we have an illness that is highly challenging to a society based on capital - both economic & social. So... #RestIsResistance

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📺 We have our 1st livestream this Friday! ❓If you would like to ask a question to @jonathanstea.bsky.social on pseudoscience or misinformation now is your chance! 🎬Just DM us or comment We will be live at 7pm (GMT) on our YouTube, Facebook & Instagram channels

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🥞🔥🥞 WOW we've checked our store and sending a huge thank you to those who've engaged with the #Postcards4LC campaign they are selling like hotcakes! Extra points if one gets the reference 🤭 💌FREEPOST ends at midnight tonight! tinyurl.com/bdh4v342

submitted 6 days ago • 0 comments

💌 Last day of FREEPOST for our postcards & merch for #longcovidawareness : 🛍️Shop tinyurl.com/bdh4v342

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💌 UK Freepost is still with us for you to order your postcards &/or merch for #LongCovidAwarenessDay Shop: tinyurl.com/bdh4v342

submitted 7 days ago • 1 comment

🌱With March upon us our Spring book is here for the #pedanticzebra book club: 'Unheard' by @drrageshri.bsky.social 💙📚We will be following this book for 3 months and everyone is welcome to join our Goodreads group for chat & community: tinyurl.com/mr3h3p8u

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💌Make the most of FREEPOST! If you need merch, postcards for #LongCovidAwarenessDay now is the time! Available now until Sunday midnight Shop: tinyurl.com/bdh4v342

submitted 8 days ago • 1 comment

Luckily (not) we've been acclimatised to this by no one giving a hoot for the deaths & disability caused by COVID. It's no coincidence that pandemics are followed by eugenics.

submitted 9 days ago • 2 comments

Anyone want to see our latest paper on #masks? #healthpolicy 🧪 www.bmj.com/content/388/...

submitted 9 days ago • 32 comments

💙 LCA wholeheartedly supports @thereforme.bsky.social #FundThePlan campaign. It is crucial that strong foundations are formed for #pwME and that means investment. One of our members explains below in our video contribution. 1/8 youtube.com/shorts/4yCiM...

submitted 9 days ago • 1 comment

The large clinical trial of a new Covid vaccine pill (not shot) was halted by RFK Jr www.aol.com/multimillion... The Covid nasal vaccines may be next up to be axed.

submitted 10 days ago • 407 comments

🔊Key quote from Dr Pöhler CI of the paediatric #longcovid research showing lung abnormalities ➡️We need an urgent approach of upscaling research so it can be moved into clinical practice ASAP ➡️We can't wait the average 17 yrs it takes Study: tinyurl.com/mtwcjn6w

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This article was written almost two years ago. Despite C19 still being the largest cause of infectious disease deaths in children age 5-19 🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁷󠁬󠁳󠁿nothing in schools has changed. Data: James Neill, Consultant Data Analyst, Safe Air Schools @jneill.bsky.social 🔗 archive.is/2023.08.11-1...

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🌬️Potential imaging biomarker for #longcovidkids 🇩🇪German study shows the 1st evidence of measurable regional lung abnormalities that correlates with severity. To read more: tinyurl.com/mtwcjn6w

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🌟Super article out from #ThereForME covering the momentum for #FundThePlan & the community campaigning together for Long Covid Awareness including: 💙 Our #Postcards4LC 💙 The @lcmebillboards.bsky.social Light Up Challenge 💙 @longcovidsupport.bsky.social banner & launch event

submitted 11 days ago • 1 comment

Want to make a difference? Consider being a control in a clinical trial. Your participation can contribute to the future of science and medicine! Email [email protected] if you're interested.

submitted 12 days ago • 4 comments

🥳We are Live! 💙Join the movement for Long Covid Awareness month. Discover how you can support Long Covid Awareness efforts and drive meaningful change with the #Postcards4LC campaign 💌 www.longcovidadvoc.com/post/make-so...

submitted 13 days ago • 0 comments

Two medical education wins to share! The Anki Flashcards we created about ME/CFS & infection-associated diseases have been recommended by CDC on its new ME/CFS page for medical students! We have upcoming Reddit live Q & A on Feb. 24! H/T to #MEAction GA! Article: meaction.net/2025/02/20/m...

submitted 15 days ago • 1 comment

💙📚We have some exciting news for #longcovidawareness month 🔊The #pedanticzebra book club pod is starting! We will be investigating pseudoscience with @jonathanstea.bsky.social Join us live on Friday 7th March at 7pm GMT Recording will be available #booksky #bookclub

submitted 15 days ago • 2 comments