lovewarriorhugs.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Has anyone experienced a negative change in fatigue, energy from a supplement? Thank u in advance. #chronicillness #multiplesclerosis #spoonie

submitted 1 day ago • 0 comments

PNES seizures are very real and go misdiagnosed or undiagnosed all of the time.

submitted 3 days ago • 0 comments

𝘗𝘪𝘰𝘯𝘦𝘦𝘳𝘪𝘯𝘨 𝘢 𝘕𝘦𝘸 𝘞𝘦𝘢𝘳𝘢𝘣𝘭𝘦 𝘋𝘦𝘷𝘪𝘤𝘦 𝘧𝘰𝘳 𝘌𝘱𝘪𝘭𝘦𝘱𝘴𝘺 𝘛𝘳𝘦𝘢𝘵𝘮𝘦𝘯𝘵 What sets Remagine Lab's patch apart? Active control of the transdermal release of epilepsy medication, allowing for dosage adjustments based on patient needs. www.remaginelabs.com #NCRIS #MedTech #Epilepsy #microneedles #nanotech #innovation

submitted 3 days ago • 0 comments

🔊 New Epilepay Sparks Insights episode! 🎙️ Did you know many adults with an #epilepsy also have an #IntellectualDisability - and vice versa? 🤔 Neuropsych Prof. Mike Kerr 🤩 shares expert insights on real-world care, challenges, and support for individuals & families. 💡 Links below! 👇 1/2

submitted 3 days ago • 2 comments

@quoth-this-raven.bsky.social thanks for the repost

submitted 5 days ago • 1 comment

#chronicillness #spoonie #chronicpain #healthcare Currently looking at my MyChart. It reads like this…

submitted 5 days ago • 0 comments

#thoughtoftheday from a #chronicpain #chronicillness warrior #spoonie champion

submitted 6 days ago • 0 comments

Whos up wishing their brain would stop with all the background noise so they can sleep?

submitted 7 days ago • 1 comment

“People with #ChronicConditions may have to pay for more expensive seats or priority access out of necessity which can make #travel much more costly”: https://buff.ly/4eTSosX from @bezzycommunity.bsky.social #spoonies #chronicPain #ChronicallyIll

submitted 10 days ago • 0 comments

Feel very strongly about this. #chronicillness #spoonie

submitted 12 days ago • 0 comments

If only this giant spoon could give me the energy I need today. #spoonie #spooniesky #chronicillness #multiplesclerosis

submitted 12 days ago • 0 comments

My body screams at me. #chronicillness #chronicillnesshumor #spoonie #chronicillnessmemes

submitted 14 days ago • 0 comments

✨🧠 Cutting-Edge Epilepsy Research! 🧠✨ Trés cool!! Here’s what happens when you combine donated brain tissue 🧠🙏, an ultra-powerful 11.7 😱 Tesla MRI, and some of the brightest minds in neuroscience: groundbreaking insights into #epilepsy…! New podcast episode on Epilepsy Sparks Insights 🎙️ Links 👇🏻.

submitted 17 days ago • 1 comment

To you I say… #chronicillness #spoonie #thoughtoftheday

submitted 15 days ago • 0 comments

#thoughtoftheday

submitted 17 days ago • 0 comments

Does anyone know people that do not have the flu? Asking for a friend. #chronicillness #spoonie #spooniesky

submitted 18 days ago • 0 comments

Haven’t seen a better description yet! A PS to No. 3. I also plan around naptime. ♥️💜🧡 #chronicillness #chronicillnessmemes #chronicillnesshumor #spoonie

submitted 19 days ago • 2 comments

A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account! #epilepsy #epilepsyawareness

submitted 19 days ago • 1 comment

Positivity is a state of mind. Today, I am positive that hearing that I am a #painprincess was the best compliment to receive from the pain doctor. #chronicpain #chronicillness

submitted 20 days ago • 0 comments

Just received a nerve block for my #trigeminal and #occiptal neuralgia. Using ultrasound to find the nerves. Lidocaine to numb. Block meds. Then steroids to enhance. This is one of the ways I manage my #chronicpain #chronicillness #facialpain #invisibleillness #spoonie

submitted 20 days ago • 4 comments

I want to commend Trudeau for stating that it’s important that “no one part of the country should carry a heavier burden than any other. We’re all in this together and we will get through this together.” That’s the Canadian way. We don’t abandon one another. We come together.

submitted 21 days ago • 265 comments

Thank who -it is Friday. I have aged 15 years this week. No one thinks it is real until it is. When you know someone that has been personally impacted, it hits even harder. For the #chronicillness community, the damage is extensive. #spoonie #healthcare #disability

submitted 22 days ago • 0 comments

Social media gives us the opportunity to find community. #spoonie #chronicillness #epilepsy #multplesclerosis #chronicpain

submitted 24 days ago • 0 comments

⚡ Epilepsy in Animals 🐶🐱🐘 Epilepsy isn’t just a human condition—dogs, cats, elephants, and even reptiles can have seizures! 🧠 Causes range from genetics to injury. Dogs (esp. Border Collies & Labs) are most commonly affected. Stress & toxins can trigger seizures. 🐾 #Epilepsy #Seizure

submitted 24 days ago • 1 comment

IL is 6 months.

submitted 25 days ago • 1 comment

#brainfog can hit you at at time and anyplace. It is almost impossible to plan for. Some things that have helped me. -plenty of rest -have food inside your body -if you can, plan what you will be talking about Others? #fibrofog #chronicillness #spoonie #disabilty #multiplesclerosis

submitted 26 days ago • 1 comment

💫 For me it's a big deal.... I've co-authored my first academic paper 📜🎊 - in Epilepsia of all places! Titled: "Users´ perspectives and preferences on using wearables in #epilepsy: A critical review.". Led by the 🤩 authors Sándor Beniczky & Levente Hadady! onlinelibrary.wiley.com/doi/10.1111/...

submitted 26 days ago • 0 comments

Enjoy fancy coffee? Take a peak at a chronic illness fancy coffee. #chronicillness #spoonie #multiplesclerous #chronicfatigue #chronicpain #epilepsy #fatigue

submitted 26 days ago • 0 comments

Support those who support you! 💯 DEI encompasses people of different ages, races, ethnicities, abilities, disabilities, genders, religions, cultures and sexual orientations. ~ that is the #majority of us. 💥 #resistancemovement 💙 ✮⋆˙🛍˙⋆✮

submitted 28 days ago • 0 comments

If you have neurodivergence, this is even more important.

submitted 29 days ago • 0 comments

The #chronicillness community is real and there. Thank you for being you. #chronicpain #chronicfatigue #epilepsy #multiplesclerosis #ibs #trigeminalneuralgia #spoonie

submitted 29 days ago • 0 comments