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madelinenerd.bsky.social
From iammadelinepod Podcast. https://anchor.fm/i-am-madeline Twitter @iammadelinepod & @madelinenerd Fb insta @madelinenerdfighter #pwme #longviral #myalgicE #disability #millionsmissing INTERNATIONAL PETITION please sign https://bit.ly/Marcia_petition
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submitted 1 day ago • 0 comments

Chronic illness warriors, you are still valuable even when you can’t get out of bed. Your value surpasses your productivity. Please stay with us and help us all work through this together. #millionsmissing #mecfs #cfs #chronicillness

submitted 12 days ago • 2 comments

#ShakeItUP, next steps, and how you can get involved. ps. brain fog - I meant there IS NO DATA on harms, we need data to prove harm. That GET/CBT doesn't harm shouldn't be unchallenged. www.youtube.com/live/5rH0OMu...

submitted 9 days ago • 1 comment

🇬🇧 "Well, actually... matter how well you take care of yourself, this condition does progressively gets worse. You can't stop it. So with all the research you saw in the film... #SevereME #MildME #MyalgicEncephalomyelitis #MECFS #MyalgicE #LongCovid #MillionsMissing #TimeForUnrest #MEAction

submitted 7 days ago • 2 comments

🌟 #IWD2025: 80% of ME cases are women. Menopause + ME? Hormonal shifts can worsen fatigue, pain, & brain fog. MYTH: “It’s just aging.” FACT: ME is a distinct illness. Rest isn’t failure—it’s survival. 💪💜 👉 Tips + support: shorturl.at/qDWU0 #MEAwareness #MenopauseAndME

submitted 7 days ago • 0 comments

Please sign 🙏🏻

submitted 7 days ago • 0 comments

Yikes

submitted 7 days ago • 0 comments

New #podcast ep: DOUBLE RAINBOW open.spotify.com/show/0oNLwzI... Started that day full on wondering if I was in some sort of hell dimension, then #DoubleRainbow like a reminder that you just never know when things might turn around #canpoli #disability #MyalgicE #pwME #MECFS #MEAction 🧵⬇️

submitted 7 days ago • 1 comment

It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.

submitted 9 days ago • 0 comments

You are not forgotten I see your faces, I know your names, I remember your stories. #StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME #GlobalVoiceForME #EndMEcfs

submitted 9 days ago • 0 comments

Air quality/residential tenancy board update. Tough day www.instagram.com/reel/DGl-8rq... 1,172 worldwide petition signatures now! Every share helps! bit.ly/Marcia_petit... Gfm$runs out in April gofund.me/6d981312 #canpoli #disability #MyalgicE #MECFS #MEAction #Canada #bcpoli

submitted 15 days ago • 0 comments

residential tenancy board hearing tomorrow 1-2pm PST. I'm so brutally tired & I really really need this bad air situation to be finally sorted. Trying to keep my spirits up. This is a pic on the way home from treatment today. Crocuses! #canpoli #disability #MyalgicE #MEAction

submitted 16 days ago • 0 comments

I had a dr early on in my #longviral ebv #myalgicE disability status tell me I was an energetic person trapped in a tired person's body & I needed to learn how to Pace myself to work within that new lesser energy envelope. I still suck at it all these decades later. In my head I'm the same person

submitted 20 days ago • 1 comment

submitted 22 days ago • 0 comments

In my last ME Awareness post I said I would try write about being a carer with Soph more. Little and often. So here is the first of that: 02/06/2024 Why do I always think it cannot get any worse? padpadpadpad.netlify.app/posts/caring... #MECFS #pwME #carer #severeME

submitted 284 days ago • 2 comments

I signed the petition! Please sign- literally takes 2 minutes! ❤️

submitted 20 days ago • 1 comment

#MECFS sucks every sign of life you have. It’s an illness that’s not compatible with living. Your body and your mind are in a prison where they are being tortured, every hour, every minute, every second #MEAwarenesshour

submitted 23 days ago • 0 comments

I had a dr early on in my #longviral ebv #myalgicE disability status tell me I was an energetic person trapped in a tired person's body & I needed to learn how to Pace myself to work within that new lesser energy envelope. I still suck at it all these decades later. In my head I'm the same person

submitted 20 days ago • 1 comment

submitted 22 days ago • 0 comments

"Last year, an Alberta judge ruled that an autistic woman with no apparent diagnosis of a physical illness could receive MAiD, even though the judge himself did not understand how she came to be approved for MAiD and even though at least one doctor had turned down her request." #AssistedDying

submitted 23 days ago • 0 comments

New #podcast ep, Paradox. Just when I think things can't get worse, they almost comedically do. Ep right after contains even more crazy train nonsense that happened later that day open.spotify.com/show/0oNLwzI... #canpoli #disability #MyalgicE #pwME #MECFS #bchousing #MEAction #bcpoli

submitted 22 days ago • 0 comments