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Question from MeetAnOstoMate forum: I've been dealing with painful skin breakdown around my stoma, and my ostomy nurse thinks it might be pyoderma gangrenosum. She has a treatment plan, but it could take months. Anyone else experience this? The pain and leaks are really tough. #ostomy #stoma

submitted 1 hour ago • 0 comments

Question from MeetAnOstoMate forum: Just got out of the hospital after an acute kidney injury—my second one, the last being 4 years ago. Doctors say it's from high output, which I've had since my ileostomy 12 years ago. How can I prevent it from happening again? #ostomy #stoma

submitted 5 days ago • 0 comments

Question from MeetAnOstoMate forum: Is it normal for feelings about a colostomy to change over time? I'm in my 3rd year with a permanent colostomy. Year one was tough, year two had leaks and odors, and now I feel some resentment. Has anyone else experienced this? #ostomy #stoma

submitted 2 days ago • 2 comments

Question from MeetAnOstoMate forum: I’m scheduled for an ileoscopy/proctolectomy after 16 years with UC. I’ve heard recovery takes about 4 weeks, but it seems that might be off. Questions: When can I shower daily? Is there a larger bag for nighttime? Tips on diet and recovery? #ostomy #stoma

submitted 3 days ago • 0 comments

In the 📕#RedJournal: When Patients With IBD Require an Ostomy: Evidence-Based Answers to 10 Common Clinical Questions in IBD Surgery by Stefan D. Holubar, MD, MS; Joseph Keller, MD & Laura Cooper, MD 👉 bit.ly/4k2wnez

submitted 3 days ago • 0 comments

From MeetAnOstoMate forum: Just found Brava rings with a 27mm hole (ref: 12037) on my last order—perfect fit! No more stretching or pulling to get a good fit, and no trouble keeping the hole round. Excited to see how they hold up. Just had to share. 😊 #ostomy #stoma

submitted 4 days ago • 1 comment

Question from MeetAnOstoMate forum: Just got out of the hospital after an acute kidney injury—my second one, the last being 4 years ago. Doctors say it's from high output, which I've had since my ileostomy 12 years ago. How can I prevent it from happening again? #ostomy #stoma

submitted 5 days ago • 0 comments

Question from MeetAnOstoMate forum: Has anyone with an ileostomy had dark/chocolate-colored stool? I was told any black stool is a bad sign. I haven't eaten anything that would cause it. It's been like this for a few days. Should I be concerned? Appreciate any insights! #ostomy #stoma

submitted 5 days ago • 2 comments

Question from MeetAnOstoMate forum: Ever eaten something spicy and felt it "sting" your stoma? Had Popeye's spicy chicken sandwich today and about 20 minutes later, it felt like a red-hot poke! Lasted 10 mins. Does anyone else’s stoma react to spicy foods? #ostomy

submitted 6 days ago • 1 comment

Question from MeetAnOstoMate forum: How long until an ostomy feels natural? I’ve had mine for 5 years, but it still doesn’t feel like part of me. Does it ever just blend into everyday life, or is this the new normal? Curious about your experiences and how long it took for you. #ostomy #stoma

submitted 7 days ago • 1 comment

Question from MeetAnOstoMate forum: I’ve had a permanent ileostomy for 20 years. Recently faced blockages and severe issues after eating solids. Now scared to eat anything beyond liquids, eggs and toast. I worry about scar tissue/adhesions worsening. Anyone faced this? #ostomy #stoma

submitted 8 days ago • 0 comments

Question from MeetAnOstoMate forum: Struggling with intimacy post-surgery. Before my ileostomy, my wife and I were intimate often. Now, it's once a year, if that. I love her, but I feel alone and scared this is my new normal. Anyone else dealing with this? Looking for advice. #ostomy #stoma

submitted 8 days ago • 0 comments

Question from MeetAnOstoMate forum: Ever eaten something spicy and felt it "sting" your stoma? Had Popeye's spicy chicken sandwich today and about 20 minutes later, it felt like a red-hot poke! Lasted 10 mins. Does anyone else’s stoma react to spicy foods? #ostomy

submitted 6 days ago • 1 comment

From MeetAnOstoMate forum: After my stoma revision, I’ve tested nearly every product! Coloplast Mio: fancy but bulky. Hollister: great design, bad glue. Nu-Hope/Marlen: love the effort but flimsy. Convatec 2-piece, no filter, moldable wafer is OK. 😊 #ostomy

submitted 7 days ago • 0 comments

Question from MeetAnOstoMate forum: Struggling with persistently thick stool consistency, making wafer/bag changes a daily hassle. I stay hydrated and avoid foods known to thicken output. It's frustrating. Any dietary tips to get back to a more manageable flow? #ostomy #stoma

submitted 8 days ago • 0 comments

Question from MeetAnOstoMate forum: How long until an ostomy feels natural? I’ve had mine for 5 years, but it still doesn’t feel like part of me. Does it ever just blend into everyday life, or is this the new normal? Curious about your experiences and how long it took for you. #ostomy #stoma

submitted 7 days ago • 1 comment

From MeetAnOstoMate forum: After my stoma revision, I’ve tested nearly every product! Coloplast Mio: fancy but bulky. Hollister: great design, bad glue. Nu-Hope/Marlen: love the effort but flimsy. Convatec 2-piece, no filter, moldable wafer is OK. 😊 #ostomy

submitted 7 days ago • 0 comments

“I went into the hospital for diverticulitis pain and woke up with a colostomy bag. I'm overwhelmed but thankful for this site. What a strong community this is! Thanks for having me.” (V.V, member of www.MeetAnOstoMate.org) #ostomy #colostomy #ileostomy #wocn #stoma

submitted 9 days ago • 0 comments

Question from MeetAnOstoMate forum: I’ve had a permanent ileostomy for 20 years. Recently faced blockages and severe issues after eating solids. Now scared to eat anything beyond liquids, eggs and toast. I worry about scar tissue/adhesions worsening. Anyone faced this? #ostomy #stoma

submitted 8 days ago • 0 comments

Question from MeetAnOstoMate forum: Struggling with intimacy post-surgery. Before my ileostomy, my wife and I were intimate often. Now, it's once a year, if that. I love her, but I feel alone and scared this is my new normal. Anyone else dealing with this? Looking for advice. #ostomy #stoma

submitted 8 days ago • 0 comments

Question from MeetAnOstoMate forum: Struggling with persistently thick stool consistency, making wafer/bag changes a daily hassle. I stay hydrated and avoid foods known to thicken output. It's frustrating. Any dietary tips to get back to a more manageable flow? #ostomy #stoma

submitted 8 days ago • 0 comments

“I wish someone would have told me years ago about MAO. It's been a lifesaver for me. And I still visit the site to this day.” (R.L, member of MeetAnOstoMate.org) #ostomy #ileostomy #wocn

submitted 10 days ago • 0 comments

Question from MeetAnOstoMate forum: I’ve had an ileostomy for 2 years, and high output causes low magnesium. Weekly infusions are mentally draining. It settled, but after a blockage, I’m back at it. Anyone dealt with this? Your tips help. #ostomy #stoma

submitted 10 days ago • 1 comment

“I went into the hospital for diverticulitis pain and woke up with a colostomy bag. I'm overwhelmed but thankful for this site. What a strong community this is! Thanks for having me.” (V.V, member of www.MeetAnOstoMate.org) #ostomy #colostomy #ileostomy #wocn #stoma

submitted 9 days ago • 0 comments

Question from MeetAnOstoMate forum: I’ve ileostomy. I love popcorn and miss it! I’ve had small amounts, picking out the husks, but want to know your experience. Do you eat it? Ever had issues? Do you limit how much you eat in one sitting? Share your tips pls. 🍿 #ostomy #stoma

submitted 11 days ago • 1 comment

“I wish someone would have told me years ago about MAO. It's been a lifesaver for me. And I still visit the site to this day.” (R.L, member of MeetAnOstoMate.org) #ostomy #ileostomy #wocn

submitted 10 days ago • 0 comments

Question from MeetAnOstoMate forum: I’ve had an ileostomy for 2 years, and high output causes low magnesium. Weekly infusions are mentally draining. It settled, but after a blockage, I’m back at it. Anyone dealt with this? Your tips help. #ostomy #stoma

submitted 10 days ago • 1 comment

Question from MeetAnOstoMate forum: I’ve ileostomy. I love popcorn and miss it! I’ve had small amounts, picking out the husks, but want to know your experience. Do you eat it? Ever had issues? Do you limit how much you eat in one sitting? Share your tips pls. 🍿 #ostomy #stoma

submitted 11 days ago • 1 comment

“This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate.” It gave me hope and a place to come to for support (C.L, member of MeetAnOstoMate.org)

submitted 12 days ago • 0 comments

Question from MeetAnOstoMate forum: Curious about stoma hair removal: Has anyone tried electrolysis instead of shaving? I use an electric body shaver to avoid razors/ingrown hairs. Wondering if there’s a “latest and greatest” permanent solution out there. Thoughts? #ostomy

submitted 12 days ago • 0 comments

Question from MeetAnOstoMate forum: I use a Hollister New Image 2-piece with tape—any chance it’s water-resistant? Showering daily is tough with tapes & wraps. Any tips? Also, I travel to get my pouch changed due to limited hand use. Suggestions? #ostomy #stoma

submitted 13 days ago • 0 comments