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mesnag.bsky.social
Clarinettist. Conductor. Caregiver. 4 cats, 2 kids, 1 husband.
76 posts 141 followers 283 following
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Imponerende av Yama Wolasmal å holde maska i intervjuet med Bismuth. Hersketeknikker og avbrytelser på løpende bånd. #nrk

Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3

TLDR: This is an SOS. If you don’t have capacity to read this whole thread, please skip ahead to ***WAYS YOU CAN HELP*** Please pick at least one! 🙏🏻💙 #MEAwareness #MillionsMissing #DisabilitySOS #WorldMEDay #GreatestMEdicalScandal #MyalgicEncephalomyelitis #MECFS #LongCovid

ME-syke og sikkert endel pårørende gjennomførte liggende demonstrasjon i Berlin i dag. Lignende demonstrasjoner over hele Tyskland de neste dagene. #MECFS

🧵 It would be great if friends of people with ME/CFS or long COVID would take the time to read this. These conditions are very socially isolating and lonely and patients would love to maintain friendships www.emerge.org.au/how-to-suppo... #LongCovid #MEcfs 1/

1) What it's like to become an adult with ME/CFS? I think this Australian study captures the most important themes quite well.

Ny studie i Storbritannia med funn som stemmer godt med det FAFO/Sintef fant i Norge. #ME www.thetimes.com/uk/healthcar...

Så var bjørkepollensesongen i gang. Tar pille.

Also, a woman was handcuffed at a subway station in NYC (Franklin Ave) when she intervened asking why a delivery man was asked to show work permit by undercover agents. There is a video of that.

Prinsipielt viktig ME-sak til lagmannsretten. Støtt med en slant til advokatutgifter. ME-syk trenger hjelp til ankesak. spleis.no/413131

Children are developing Long COVID every day. With each new infection, more kids face lasting health struggles, impacting their education and daily lives. Yet, research and support remain far behind. We can’t ignore this crisis. Kids deserve protection, care, and a chance to heal. #LongCOVID

NEW: Family of Mahmoud Khalil just released footage of his arrest “Stop resisting” “He’s not resisting” Agents seen continuing to ignore Mahmoud’s wife as she asks basic questions

Jeg ler så jeg gråter, snakk om å treffe spikeren midt på hodet 😂 agendamagasin.no/debatt/ta-al...

De fleste blir altså ikke friske. www.forskning.no/helse-samfun...

Unge menn i KrFU som ikke aner hva de snakker om forsøker å bestemme over foreldre og kvinner gjennom politikk, en tråd.

Replikerte resultater bekrefter at ME/CFS er en kompleks sykdom med nevrologiske, immunologiske og metabolske dysfunksjoner. Diskusjonen handler ikke lenger om hvorvidt disse fysiske avvikene finnes i kroppen. www.aftenposten.no/meninger/deb...

«Sånn er jeg skrudd sammen», sier vi. Alt i verden fungerte som mekanikken i en klokke, tenkte opplysningsfilosofene. Blindsonene merker vi fortsatt. Når vi blir gamle, er det barna som gir mye av hjelpen. Men dette telles i helt andre statistikker. www.dagsavisen.no/debatt/komme...

‼️Graded exercise therapy is harmful in case of Post-Exertional Malaise ‼️ www.bmj.com/content/387/... www.nice.org.uk/guidance/ng206

“Many of you know that my son is still battling complications from Long Covid. We are well into the 5th year of his decline which began when he was 10 years old” Royal Hansen. We agree, “there is more to be done” www.linkedin.com/pulse/growin... #LongCovidKids #LongCovid #PatientVoices

As a political commentator I keep saying Trump is doing this, and slowly it dawns on me - because I hate to admit it - it’s not Trump. It’s the US that is siding with Putin, plundering Ukraine. It’s the US bullying Canada, screwing its allies. US har become a despicable thug.

Don't be gaslit: They are Nazis. This is a Nazi salute. They are not hiding it, or dog whistling, they are announcing it. They have come out as Nazis. Show the people in your life these images all together. Make them understand this is not an accident, or a fluke. It is happening here.

Og vi er på nazihilsen nummer fire. Denne gangen også på den konservative konferanse CPAC, fra skuespilleren Eduardo Verástegui.

This is a new level of madness. I don't know how it can be stopped

Dr. Amy Proal, Scientific Director of the CoRE Clinic at Mount Sinai, discusses viral persistence as a driver of ME/CFS with Dr.s Raven Baxter & David Putrino: “[research] finds the RNA backbone & protein of enteroviruses in ME/CFS gut tissue.” @coresinai.bsky.social

Imagine being rich enough to do anything you want and choosing to take food and medicine from starving children to give yourself even more money.

«1500 pasienter på uføretrygd i stedet for lønnsarbeid belaster statsbudsjettet med 750 millioner kroner pr. år. Hvis dette fortsetter til pensjonsalderen, medfører det en utgift på 30 milliarder kroner bare for dette ene årskullet.» www.aftenposten.no/meninger/deb...

Informasjon som gis ved spørsmål om samvalg kan føre til sykdomsforverring for ME-pasienter. Dette er alvorlig og bør adresseres. melivet.com/2025/02/04/s...

If anyone wishes to find our video on Hitler's 'socialism' to share/use/entertain/teach with, please find links below, with original explainer. Now is not the moment or the subject matter to sigh & give up on 🤐 Vimeo: vimeo.com/user16907314... Website: www.marshfamilysongs.com/marshfamilyh...

I’ve written about a tiny portion of Sophia’s daily existence to bring very severe ME out of the darkness and onto the radar of those in a position to instigate change 🙏

This is the reality of severe #ME it’s being ignored and minimised by most of the medical profession who, too often, turn into psychiatrists when they can’t find a way of helping.

Da trooor jeg alle nissene er pakka vekk. Nå over til bursdagskakebaking. (her i huset begynner nyttårsslankekuren i februar. Må få unna alle januarbursdagene først)

Har du hørt om Anil van der Zee ? Han er en profesjonell ballettdanser fra Nederland. I 2007 fikk han ME etter en virusinfeksjon... … ! Ta en titt … bli litt kjent med ham, der han ligger... anilvanderzee.com/about-anil/

Min datter Karen har vært ME-syk i 15 år. På tirsdag fyller hun 23 år, og ønsker seg penger til forskning på ME. Hun forteller hvorfor her på Karens bursdagsinnsamling for ME-forskning spleis.no/405385

Fantastisk!

Welcome to OMF Science Wednesdays! 🧬 Every Wednesday (based on United States time zones), tune in here to read a little bit about pieces of science, research, and technology that connect to #MECFS and #OMF research projects. To kick things off, let’s talk about #mitochondria.

On this fifth anniversary of COVID-19 emergence, and while we’re waiting briefly for the other shoe to drop on human to human transmission of H5N1, here’s your reminder that pandemic influenza also causes ME/CFS but not the flu vaccine. But happy new year and stuff. pubmed.ncbi.nlm.nih.gov/26475444/

Hyperbaric Oxygen Therapy Turns Mathew’s Long COVID / ME/CFS / POTS Around #longcovid #MECFS #POTS www.healthrising.org/blog/2024/12...

Forskremt rådyr sprang over veien mens fyrverkeriet eksploderte på alle kanter. Det er lissom ikke bie gøy lenger nå. Hentet kattene ut fra under senger og sofaer, og sa til dem at det snart er over. Godt nytt år.

A thread for fourteen #MECFS, #LongCovid, and related research papers from w/c 23rd December 2024. Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation. 1/15

✨ New article by Cort Johnson in HealthRising ✨ ‘Why Do More Women Get ME/CFS? Study Suggests it May be the Mitochondria…’, shines a spotlight on groundbreaking #MECFS research, including several #OMF studies. 📖Read the full article 👉 ow.ly/iL2x50Uy13A

Description of #PEM in ME/CFS PEM is an exacerbation of some or all of an individual’s ME/CFS symptoms that occurs after physical or cognitive exertion and leads to a reduction in functional ability (Carruthers et al., 2003). doi.org/10.17226/19012. #MECFS nap.nationalacademies.org/read/19012/c...

⏰ Time is Running Out! Make a difference before 2024 ends! Your gift drives progress toward understanding, treating, and curing #MECFS & #LongCOVID. Build hope for 2025! Learn more about our research 👉 ow.ly/7RAS50UxYKP Donate now 👉 ow.ly/ro6u50UxYKQ Thank you for your support in 2024 and beyond💙