mfleury.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Many of the administration policies are done in name of cost cutting but turn out to be more about disruption than saving. Another great example is that they have fired FDA staff paid by industry user fees.

submitted 1 day ago • 0 comments

NIH funding trailing expected levels by $1billion at this point due to administration actions. www.usnews.com/news/health-...

submitted 1 day ago • 0 comments

Backdoor NIH funding freeze may be in the works. Some conflicting reports, but communications freeze may be stopping NIH's ability to issue new grants-whether intentional or not. www.nature.com/articles/d41...

submitted 2 days ago • 0 comments

Statement from ACS CAN on workforce reductions at HHS. Cuts included staff at the FDA Center for Tobacco Products, which is fully funded by external use fees--in other words cuts there impact work, but don't save the taxpayer anything! www.fightcancer.org/releases/sig...

submitted 2 days ago • 0 comments

New stats out on cancer in African Americans from the American Cancer Society. Making progress, but disparities remain. Data like this may be hard to come by in the future due to the administration's policies toward data collection. pressroom.cancer.org/CancerStatis...

submitted 2 days ago • 0 comments

You don't have to be an economist to see shortages coming. 70% of generic sterile injectable drugs still losing $ by 3rd year and now we're going to see tariffs of somewhere between 10% and 25% making payback even worse. Who is going to sign up for that business model? aspe.hhs.gov/reports/roi-...

submitted 2 days ago • 0 comments

Former Trump FDA Commissioner Scott Gottlieb floats idea of extending current user fee law rather renegotiation during this political environment. insidehealthpolicy.com/daily-news/g...

submitted 4 days ago • 0 comments

Good resource to understand institution-specific impacts of proposed NIH indirect cost cuts. www.nytimes.com/interactive/...

submitted 4 days ago • 0 comments

A call to the NIH clinical center this morning indicated NCI trials are accepting new patients.

submitted 4 days ago • 0 comments

Improved quality of life is a huge win. Patients aren't just survival stats, they are people who want to enjoy their lives as best as possible.

submitted 9 days ago • 0 comments

The site has been restored. These pages appear to have been taken down as part of DEI scrubbing.

submitted 9 days ago • 0 comments

FDA restores statutorily required Diversity Action Plan guidance, but many other diversity related pages still missing. www.fda.gov/regulatory-i...

submitted 10 days ago • 0 comments

The Congressionally Directed Medical Research Program (CDMRP) website has gone dark. Over $500 million in annual cancer research. Does this mean it is being cut? For more on the program www.fightcancer.org/sites/defaul...

submitted 15 days ago • 0 comments

Increased prices probably the least worry in the pharmaceutical industry because of tariffs. Highly likely we'll see shortages on generic drugs. www.statnews.com/2025/02/02/t...

submitted 19 days ago • 0 comments

Clinical trial eligibility can be inherently biased. Duffy null describes a phenotype common in those of African descent that makes it seem like they are at risk for infection when they are not and therefore keep Blacks out of #clinicaltrials ashpublications.org/blood/articl...

submitted 20 days ago • 0 comments

After watching RFK Jr. hearing, I've observed he can cite problems everyone agrees are problems (chronic disease), poor health in kids, but then pivots to pretend we don't know why (or suggests some secret ingredient causes it).

submitted 23 days ago • 2 comments

RFK Jr erroneously claims no HHS secretary has focused on chronic disease. The Affordable Care Act set up a prevention fund to fight chronic disease but Republicans repeatedly attacked it and raided it for funds for other priorities.

submitted 23 days ago • 0 comments

You can join VOICES of Black Women if you are a Black woman between the ages of 25 and 55 with no history of cancer (except basal or squamous skin cancer) and also live in the United States. Visit voices.cancer.org

submitted 24 days ago • 0 comments

The Administration apparently realized how ill-thought and illegal their funding freeze was and blinked www.npr.org/2025/01/29/g...

submitted 24 days ago • 0 comments

Happy Kansas Day!

submitted 24 days ago • 0 comments

Money concerns keep many out of cancer #clinicaltrials, but financial support can fix that. ACS CAN was joined by 21 other orgs asking HHS to create a safe harbor from the Anti-Kickback Statute so that more sponsors would provide such support. www.fightcancer.org/policy-resou...

submitted 26 days ago • 0 comments

DIA provides a landscape analysis of patient financial support for #clinicaltrial participants. Still too inconsistent and too little. globalforum.diaglobal.org/issue/decemb...

submitted 32 days ago • 0 comments

Today ACS released its annual Facts and Figures--Cancer incidence up in women, down in men and rates of pancreatic cancer continue to rise: www.cancer.org/research/can...

submitted 37 days ago • 0 comments

AACR and FDA currently holding a joint meeting on DPD deficiency testing. DPD deficiency causes 1,000+ deaths a year from the very drugs meant to save cancer patients. Our research show patients want the information that testing provides. #PGx www.fightcancer.org/policy-resou...

submitted 37 days ago • 0 comments

Reducing nicotine to non-addictive levels is a game changer and long overdue. What other commercial product when used as suggested causes illness and premature death? www.fightcancer.org/releases/acs...

submitted 38 days ago • 0 comments

Recent HHS report finds that 70% of generic sterile injectables aren't profitable by three years after launch. Economics drives drug shortages--which is why most made in low-cost countries. Tariffs will likely make shortages worse. Buckle up... aspe.hhs.gov/reports/roi-...

submitted 45 days ago • 0 comments

Much is made of the crime stats in Washington, DC, but as a former resident, one of the events that shook my sense of safety the most was Jan 6. I certainly won't forget.

submitted 47 days ago • 0 comments

Years of hard advocacy work have helped insulate cancer patients from restrictive coverage policies like those proposed by PA Blue Cross--note the cancer carve out due to other laws that take precedence. endpts.com/pennsylvania...

submitted 47 days ago • 0 comments

Hunkered down here in Lawrence KS as an epic winter storm blows outside. No evidence of my morning shoveling as everything has drifted back over...

submitted 48 days ago • 0 comments

The Surgeon General leans forward emphasizing to the public the cancer risks of alcohol. www.hhs.gov/surgeongener...

submitted 48 days ago • 0 comments

The year-end chaos on Capitol Hill seems to be a preview of the next couple of years unfortunately...

submitted 64 days ago • 0 comments

Incredibly impactful provisions in this bill to advance pediatric cancer drug development and facilitate access to cancer screening. Contact your member now!

submitted 66 days ago • 0 comments

submitted 68 days ago • 18 comments

Not examining all sides of an issue makes you more confident you are right. Less is more important than ever as news and information is fed to us by algorithms that "know" what we want to hear.

submitted 72 days ago • 0 comments

About to start now--not too late to register.

submitted 73 days ago • 0 comments

ACS CAN is committed to eliminating coverage as a barrier to receiving appropriate cancer biomarker testing. This commitment has led to 20 new state laws ensuring access. @acscan.bsky.social jamanetwork.com/journals/jam...

submitted 74 days ago • 0 comments

For the accelerated approval crowd: "The guidance cautions that many serious diseases with unmet need have available biomarkers lacking the necessary evidence to support a conclusion on reasonably likely to predict clinical benefit." insights.citeline.com/pink-sheet/p...

submitted 78 days ago • 0 comments

Drugs can be lifesaving, but some people metabolize them differently and can be killed by drugs meant to save. There are proactive tests, but too few patients receive them. ACS CAN is working to ensure coverage of these tests aren't a barrier. www.youtube.com/watch?v=TTcg...

submitted 79 days ago • 0 comments

✨ 5.94M cancer deaths prevented in 45 years! Prevention & screening saved 8/10 lives. 🚭 Smoking reduction led to a massive impact on lung cancer. Progress continues! #CancerAwareness #ScreeningSavesLives #Oncology @oncoalert.bsky.social @drdonsdizon.bsky.social @realbowtiedoc.bsky.social

submitted 79 days ago • 0 comments

Financial barriers to #clinicaltrial participation are addressable. Learn how on this webinar, and bonus that if you are a nurse you can get Nursing Continuing Professional Development (NCPD) credits. Dec 11 us06web.zoom.us/webinar/regi...

submitted 79 days ago • 0 comments

ACS CAN has fought big tobacco, worked to expand insurance access, sought coverage for biomarker tests in states across the country, and advocated for cancer research funding. If you believe in this work, please consider supporting our work on this #GivingTuesday

submitted 81 days ago • 0 comments

Scott Gottlieb cautions against RFK Jr. pick. History will probably be kind to him for his stance even if it isn't currently popular with peers in his party. endpts.com/former-fda-h...

submitted 82 days ago • 0 comments

Perhaps a good time to watch "Nuts," a documentary of an alternative medicine doc in the 1920s who rose to prominence. www.imdb.com/title/tt5236...

submitted 82 days ago • 0 comments

Welcome @acscan.bsky.social to Bluesky! ACS CAN is the nation's leading cancer advocacy group, working to end cancer as we know it, for everyone.

submitted 88 days ago • 0 comments

I left X months before the election not for a protected echo chamber, but rather because my feed on X had slowly morphed into ads and clickbait that held no value for me. The news and conversation on science and oncology policy had disappeared or gotten buried amongst all the noise.

submitted 92 days ago • 0 comments