michaelwheelson.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

You can vote for a flat-Earther but you can't vote the Earth flat. #GoScience💪

submitted 10 days ago • 2 comments

I'm sure there are some legitimate government costs that need to be reviewed, but cutting NIH funding would greatly impact research for ALS and other diseases. Please consider asking your Congress members to oppose this. www.votervoice.net/MDA/Campaign...

submitted 13 days ago • 0 comments

RIP, Mark! He was a fellow #ALS FDA patient rep serving on both AMX Adcoms. Mostly, he was a great dude and I'm glad I got to know. #ALSobit www.legacy.com/us/obituarie...

submitted 15 days ago • 0 comments

Would anyone consider cutting off the fuel for a test pilot mid-flight? Of course not. That's exactly what is happening to some people who are our test pilots in clinical trials right now.

submitted 16 days ago • 1 comment

Suddenly cutting off USAID left people around the world with experimental drugs and medical products in their bodies, cut off from the researchers who were monitoring them, and generating waves of suspicion and fear. www.nytimes.com/2025/02/06/h...

submitted 17 days ago • 0 comments

submitted 24 days ago • 0 comments

Guess my morning 💩 about to get 25% more expensive. apnews.com/article/colo...

submitted 28 days ago • 0 comments

We are building an #ALS community for persons living with ALS and former/current caregivers in Slack called ALStogether. Slack is an incredible platform to chat and connect. Would love for you to join us. www.alstogether.org

submitted 31 days ago • 0 comments

RIP, friend! #ALSobit matthewsfuneralhome.com/michael-darr...

submitted 31 days ago • 0 comments

Hard to argue with that! 🤣

submitted 36 days ago • 0 comments

Dying to meet you.

submitted 37 days ago • 0 comments

Got an email from a hacker claiming they have video of me jerking off to porn and will send it to my contacts unless I pay up. Dude, I have ALS. If I could do that, I’d send the video out myself as a damn miracle! Nice try, though. 🤣

submitted 43 days ago • 0 comments

For people with ALS- Dr Nadia Sethi is conducting a short survey on actigraphy/wearables. For your consideration... www.surveymonkey.com/r/F659SN9

submitted 45 days ago • 0 comments

#ALSsucks 💔

submitted 70 days ago • 1 comment

For Shelby, and the hundreds of other people who depend on #Qalsody, it should never come to this. My fight to get insurance to cover my pricey #ALS drug | STAT www.statnews.com/2024/12/13/a...

submitted 71 days ago • 0 comments

Breaking News! The Centers for Medicare and Medicaid Services has announced a historic directive requiring Medicare Advantage plans to approve coverage for Qalsody, a treatment for people living with genetic SOD1-ALS. Learn more about this historic moment: bit.ly/qalsody-access

submitted 74 days ago • 0 comments

It would be amazing if everyone connected to ALS reposted this. It says many of the things researchers have said behind the scenes for years, in publication form.

submitted 74 days ago • 3 comments

submitted 81 days ago • 0 comments

Puts a small grin on my face everyday!

submitted 81 days ago • 0 comments

I’ve updated the starter pack for the #ALS #MND community. This includes people with ALS/MND, caregivers, medical professionals, researchers, and advocates. If you’d like to be added, please let me know. go.bsky.app/Ey5a48p

submitted 82 days ago • 5 comments

It's National Family Caregivers Month! Thank you to all the caregivers that do so much for us and find a way every day to #RiseUp! youtu.be/lwgr_IMeEgA?...

submitted 87 days ago • 0 comments

So, a 25% tariff with Mexico and Canada that would violate the trade deal he negotiated when he was president? abcnews.go.com/Politics/tru...

submitted 89 days ago • 0 comments

✅ www.npr.org/2024/11/21/g...

submitted 94 days ago • 1 comment

And this... go.bsky.app/Eobkvxp

submitted 94 days ago • 0 comments

To new arrivals from the other place... go.bsky.app/Ey5a48p

submitted 94 days ago • 0 comments

My Doc: Yes, I would like to prescribe this new ALS medication for a patient. Medicare: Ooh, sorry we cannot do that. Best we could do is offer some lavender soap to place under his bedsheets. www.cnbc.com/2024/11/19/t...

submitted 96 days ago • 2 comments

I wrote this article in 2021.👇 Dr. Oz Shouldn't Be a Senator – or a Doctor www.scientificamerican.com/article/dr-o... As we fall further and further into the #DeathCultDarkAge, it is becoming increasingly difficult to be shocked or enraged. But we must continue to be! This. Is. Not. Normal.

submitted 96 days ago • 5 comments

www.cnbc.com/2024/11/19/w...

submitted 96 days ago • 8 comments

It’s so good to see that a lot of my friends from X have made it over to Bsky. The vibe over here is so chill. Let’s all do our best to keep this energy going. Pass it on.

submitted 97 days ago • 0 comments

The ALS Clock makes time the most precious commodity for PLWALS. We don't have time for govt regulating agencies to be consumed w old conspiracy theories over long-established science. We need to be able to move forward to address devastating diseases w solid science.

submitted 98 days ago • 0 comments

We're taking over BlueSky!!! It's easy to RAPID GROW here! Hit the like button 💙, reply 📬with #NoDemUnder1k in the comments, and most importantly, hit the REPOST♻️ button #BlueCrew Then follow we each other back. There is NO daily limit here #NoDemUnder5k #DonkParty

submitted 100 days ago • 634 comments