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myendometriosis.bsky.social
Advocating for endometriosis awareness 🎗️| Stories and global updates regarding endo & other gynaecological conditions | 1 in 10 | U.K. |
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Can you help us with our research? We'd like to understand more about the uncertainty that people can experience whilst going through fertility treatment (e.g. IVF, IUI) or fertility problems (e.g. PCOS, Endometriosis). More info below! ⬇️ nclpsych.eu.qualtrics.com/jfe/form/SV_...

submitted 107 days ago • 0 comments

We are being failed. Those with #Gynaecological conditions deserve better. #NHS #InvisibleIllness #Endo #PCOS #Disability

submitted 108 days ago • 0 comments

Over the space of 8 years I’ve had 6 transvaginal ultrasounds, 5 showed nothing. But one showed deeply infiltrative #endometriosis. ALL it took was an endometriosis consultant who is trained in transvaginal ultrasound to diagnose me within 5 minutes. #Medsky #Medicine #Gynaecology #Health

submitted 108 days ago • 1 comment

“I feel like I’m being stabbed by a thousand tiny men” A great article from a linguistic perspective delving into the challenges #women face describing #endometriosis pain, the role of metaphors, and how tools like metaphor menus could bridge communication gaps between patients & doctors.

submitted 108 days ago • 1 comment

Fellow #Endometriosis sufferers, were you #diagnosed through invasive techniques (e.g., laparoscopy) or non-invasive methods (like transvaginal ultrasound or #MRI)?

submitted 108 days ago • 6 comments

General gynaes are treating endometriosis patients, we need more #specialists in the #NHS. Sophie’s story: “Doctors attributed her symptoms to phantom pain, and even appendicitis, which led to her having her appendix being unnecessarily removed.” She was later diagnosed with #endo & #PCOS

submitted 108 days ago • 3 comments

PSA to those who suffer from #ChronicIllness 👇

submitted 109 days ago • 1 comment

#UnwellWomen by #ElinorCleghorn is my night time read! A great #book which delves into the key topics of how medical research has historically prioritised the male body. With women’s health being profoundly under researched. #Disability #Medicine #Medsky

submitted 109 days ago • 1 comment

A #BBC article includes the lived experience of #endometriosis through Vicky’s story: "When I say ‘I’m fine’, I’m in pain," she says. "And when I say ‘I’m in pain’, I’m really in a lot of pain." The popular press must continue to give a voice to those #struggling with endometriosis 🎗️

submitted 109 days ago • 1 comment

Reminder: endometriosis is not just a ‘bad period’ 🎗️

submitted 109 days ago • 0 comments

I have endometriosis, an #InvisibleIllness, today I feel: Isolated, misunderstood, existing with an unpredictable body. My plans often get cancelled, and the need to explain the condition and its effects become exhausting, I feel like a burden. Does anyone else resonate with this?

submitted 109 days ago • 2 comments

Enlightening article by @bmj.com. Really bringing to light how #endometriosis care should not just rely on #surgical management, but should adopt a comprehensive, #multidisciplinary approach that integrates #medical treatments with #psychological support and effective #pain management strategies.

submitted 109 days ago • 0 comments

This is one way to put it into perspective... "If all 760,000 #women waiting for #NHS #gynaecological appointments were to stand in a line, the queue would go from London to Exeter". We are being failed.

submitted 110 days ago • 2 comments

Kudos to #FlorencePugh for opening up about her journey with #Endometriosis and #PCOS. Building awareness in the media is definitely one step towards battling the ignorance surrounding women’s health. www.dailymail.co.uk/tvshowbiz/ar...

submitted 110 days ago • 1 comment

Something that i think more people need to hear, is that #endometriosis is a #disability ‼️

submitted 110 days ago • 1 comment

Me today 🥲🌻 #endometriosis #endo #WomensHealth #ChronicPain

submitted 110 days ago • 1 comment