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nadfadrenal.bsky.social
The National Adrenal Diseases Foundation advances education, support, and research to improve the lives of those affected by adrenal disease. NADF.us
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Reminder: @addisonsdisease.bsky.social's training "The Art of Parenting While Sick" happens Thursday, March 27th 3-4pm EST (7-8 UK). The event will not be recorded to allow for personal experiences to be shared by the group. Register ➡️ addisonsdisease.org.uk/Event/the-art-of-parenting-while-sick

submitted 21 hours ago • 1 comment

@aiunited.bsky.social is hosting a Lunch + Learn on March 25th in Portland, OR. Visit aiunited.org/lunch-learn for conference information and registration

submitted 1 day ago • 0 comments

Spring has sprung! Happy Spring Equinox from NADF 🌷

submitted 5 days ago • 0 comments

Spread the word! April is #AdrenalDisease Awareness Month, and we'll be celebrating all month long. Will your community join us and make it official? Use our template to invite your local officials to issue an official proclamation. 👉 NADF.us/calendar #AADAM25

submitted 7 days ago • 0 comments

Traveling with #AdrenalDisease? Bring your Emergency Care Instructions! Available on our website in six languages to take with you wherever you go. NADF.us/emergency-handouts

submitted 12 days ago • 0 comments

Register for @addisonsdisease.bsky.social's upcoming training "The Art of Parenting While Sick" with Hilary Hodge, a writer and mother with adrenal insufficiency. Thursday March 27th, 2-3pm EST (7-8pm UK). Free. Register here: AddisonsDisease.org.uk/Event/the-art-of-parenting-while-sick

submitted 13 days ago • 1 comment

ENDO 2025 Early Registration | Now is the perfect time to register for our signature annual meeting highlighting the latest in endocrinology research and clinical care. Secure the best rates by the deadline Wednesday, April 16: bit.ly/4i4SDmw #ENDO2025 #endocrinology #hormonescience #EndoSky

submitted 14 days ago • 0 comments

Is there increased risk for Addisonians with a nuclear stress test? Dr. Margulies advises, "A nuclear stress test is safe for people with adrenal insufficiency. Take the usual dose of replacement hydrocortisone." #Addisons #AdrenalInsufficiency NADF.us

submitted 14 days ago • 0 comments

Adrenal Disease Awareness Month is almost here! Help us spread visibility with #LightUpForAdrenal. Invite your local establishments to light up blue in April and raise awareness about #AdrenalDisease. For more info + customizable templates, visit NADF.us/calendar

submitted 14 days ago • 0 comments

#DaylightSavingTime returns -- adjust your clocks and your habits accordingly!

submitted 16 days ago • 0 comments

We see you and we celebrate you! 🌎 Happy #InternationalWomen'sDay from NADF

submitted 18 days ago • 0 comments

NADF is proud to announce the publication of "People with Adrenal Insufficiency who are in Adrenal Crisis are Frequently Unable to Self-Administer Rescue Injections". Read more here: EndocrinePractice.org/article/S1530-891X(25)00064-3/fulltext. Sponsored by #NADFAdrenal #AACEEndocrinePractice

submitted 19 days ago • 1 comment

#NADFAdrenal Wednesday Q+A: How do immune suppressing medications impact #Addisons? Will they interfere with steroids? Read Dr. Margulies's advice >>

submitted 20 days ago • 0 comments

Did you know? Over 50 million Americans suffer from autoimmune diseases, yet many are still undiagnosed. Autoimmune diseases occur when the body’s immune system mistakenly attacks healthy cells. Let’s raise awareness together! #AutoimmuneAwarenessMonth autoimmune.org/autoimmune-awareness-month

submitted 22 days ago • 0 comments

February 28th is #RareDiseaseDay - show your stripes in celebration! Learn more: RareDiseaseDay.us

submitted 26 days ago • 0 comments

Do you have what you need in your go bag? For #AdrenalInsufficiency patients, readiness is about more than food and clothes. See our graphic for starting guidelines on building a go bag that's responsive to your individualized needs ⬇️ Full #NADFAdrenal disaster preparedness guidelines: bit.ly/AIDPG

submitted 27 days ago • 0 comments

@aiunited.bsky.social invites you to join their March 25th Lunch + Learn in Portland, OR. Includes a session on #AdrenalInsufficiency by Chris Yedinak, M.N., F.N.P, D.N.P. Early bird registration is $10 (tickets rise to $25 on March 1st). Lunch provided. More info: AIUnited.org/lunch-learn

submitted 28 days ago • 0 comments

#Cushings Clinical Case Challenge for endocrinologists, primary care physicians, and their clinical teams of NPs, PAs, nurses, and pharmacists ✏️ Activity Type: Clinical Case Study ✏️ Expiration Date: March 11, 2025 ✏️ Activity Price: Free bit.ly/3XbdUmn

submitted 30 days ago • 0 comments

#NADFAdrenal celebrates #NationalCaregiversDay in honor of all those who dedicate their lives in the care of others. Whether you're seeing to the wellbeing of a family member or a professional out in the community helping others get by, we salute the hard work you do.

submitted 32 days ago • 0 comments

February 28 is #RareDiseaseDay - start your celebrations early with NORD's Pennsylvania Rare Action Network at 12pm ET on Friday, February 21st. Sign up: bit.ly/3EQhhZA

submitted 33 days ago • 0 comments

Correction: Visit bit.ly/udcvfai for information about the study and a link to access it.

submitted 34 days ago • 0 comments

Seeking study participants in the Bronx, NY for "Updated DIagnostic Cortisol Values for Adrenal Insufficiency." This study is to determine the cortisol levels that most accurately diagnose a patient with #AdrenalInsufficiency. For more info, visit bit.ly/udcfai Sponsored by Montefiore.

submitted 34 days ago • 0 comments

Due to inaccurate information presented in some online health resources, #NADFAdrenal has released a statement on #fludrocortisone and #VaccineEfficacy. The statement will also be available in our upcoming quarterly newsletter. To sign up, visit NADF.us/donate

submitted 36 days ago • 0 comments

Happy Presidents Day from NADF

submitted 36 days ago • 0 comments

Happy Valentine's Day from #NADFAdrenal!

submitted 39 days ago • 0 comments

#Houston, we have a support group: Join us tonight at 7pm Central for virtual companionship and commiseration. Email NADFSupport@NADF.us or visit NADF.us/calendar to sign up. #Addisons #Cushings #AdrenalDiseases #AdrenalInsufficiencyAwareness

submitted 41 days ago • 0 comments

So exciting to see a clue on @jeopardy where we all knew the answer! Thanks for raising awareness about #AdrenalInsufficiency on your 2/6/25 show.

submitted 41 days ago • 0 comments

Hey Colorado! It's support group time. Meet up with friends old and new - email NADFSupport@NADF.us or sign up through our website, NADF.us/calendar #Addisons #Cushings #AdrenalDisease #AdrenalInsufficiency

submitted 42 days ago • 0 comments

Celebrate #NationalMakeAFriendDay by joining a NADF support group! We have many regional groups ... and if there's not one in your area, you may be the leader we've been waiting for. To sign up, or to start a new group, email NADFSupport@NADF.us or visit NADF.us/support-groups #Addisons #Cushings

submitted 43 days ago • 0 comments

The NADF Utah support group meets on Tuesday, February 11th at 6pm MST. To join, contact NADFSupport@NADF.us. For a full list of support groups, visit NADF.us/support-groups #AdrenalInsufficiency #Addisons #Cushings #NADFAdrenal

submitted 43 days ago • 0 comments

Last call for #fludrocortisone survey participants: if you, or someone for whom you are a caregiver, require a daily replacement dose of fludrocortisone, we need your help!, especially if you have experienced any adverse reactions. bit.ly/Fludro. More info: NADF.us/medication-availability

submitted 44 days ago • 0 comments

Our Winter Magazine is out now📮All the same great content but with a fresh new look! Enjoy personal stories including siblings Grace & Eddie, research updates on Efmody®, dates for the diary & reminders, alongside expert, trusted articles. Read more ⤵️ www.addisonsdisease.org.uk/magazine-win...

submitted 49 days ago • 0 comments

The Courageous Cushing's support group has a virtual meeting on Wednesday, February 5th at 7:30pm EST. Make new friends and reconnect with the old - #Cushings is challenging but friendship is gold 💙💛 Sign up to receive the zoom link. Email NADFSupport@NADF.us or visit NADF.us/calendar to join.

submitted 49 days ago • 0 comments

On #WorldCancerDay, we here at NADF salute those whose lives have been touched by cancer: patients, caregivers, families, and physicians. If you or someone you know is a current cancer patient, please visit our website for helpful resources, NADF.us/patient-resources

submitted 49 days ago • 0 comments

Keeping your medication up-to-date is important, but checking it may keep slipping your mind. Haven't looked recently? Take a moment to check now - or set a reminder to check when you get home. #AdrenalInsufficiencyAwareness #NADFAdrenal

submitted 53 days ago • 0 comments

Wednesdays are for Q&As: This week Dr. Margulies advises a patient seeking to maintain balance while managing #Addisons disease and #diabetes at the same time. Send us your questions! Someone else is probably wondering the same thing. Email NADFSupport@NADF.us 📧

submitted 56 days ago • 0 comments

#PodcastRec: PHM from Pittsburgh: "Adrenal Insufficiency" NADF extends our gratitude to #UniversityOfPittsburgh for creating this impactful podcast. Special thanks to Dr. Selma Witchel for her unparalleled dedication and remarkable work toward #AdrenalInsufficiencyAwareness

submitted 57 days ago • 0 comments

Do you or someone for whom you are a caretaker require a daily #Fludrocortisone replacement dose? We need your voice! Fill out our survey bit.ly/Fludro, especially if you have experienced adverse reactions 💊

submitted 60 days ago • 0 comments

Wednesday Q&A from #NADFAdrenal: "At what point should I administer #SoluCortef?" Send us your questions! We are ready to talk all things #AdrenalDisease NADF.us/contact-us

submitted 62 days ago • 0 comments

NADF's Virginia and West Virginia Support Group meets tonight at 5pm EST. Contact NADFSupport@NADF.us or join, or visit NADF.us/calendar for more information.

submitted 64 days ago • 0 comments

In honor of Dr. Martin Luther King, Jr., we salute those who embrace what he called "life's most persistent and urgent question", the call to do for others.

submitted 65 days ago • 0 comments

Our heart goes out to all those affected by the California wildfires. For those with #AdrenalInsufficiency, please take extra good care of yourselves and let those around you know how they can help you. Download the NADF Disaster Preparedness Guidelines: bit.ly/AIDPG

submitted 67 days ago • 0 comments

#PodcastRecommendation: Endocrine Feedback Loop episode 56: "Renin Measurements in Primary Adrenal Insufficiency" Listen at bit.ly/efl_056 or find it on Apple Podcasts, Spotify, and YouTube

submitted 69 days ago • 0 comments

NADF has released a statement regarding the recent widespread outbreaks of #norovirus. Individuals with #AdrenalInsufficiency have a diminished tolerance for gastroenteritis and should be vigilant for outbreaks in their neighborhoods. Full statement: NADF.us/news

submitted 69 days ago • 0 comments

The NADF Teen Support Group meets tonight, Tuesday 1/14 at 7pm EST. To join, email NADFSupport@NADF.us or visit NADF.us/calendar

submitted 71 days ago • 0 comments

Teva update: With no time frame for when Teva will be available, we are collecting patient experiences through our survey at bit.ly/tevrec. If you use Teva, Amneal, and/or other fludrocortisone, we want to hear from you. Please share widely! More info: NADF.us/medication-availability

submitted 76 days ago • 0 comments

The #NADFAdrenal #Utah Support Group meets regularly on the second Thursday of every month. Join to find new friends and widen your support circle. More info + registration: email NADFSupport@NADF.us or visit NADF.us/calendar #Addisons #Cushings #AdrenalInsufficiency

submitted 76 days ago • 0 comments

If you missed our free webinar with Prodigy EMS, the recording now available for one year at link.prodigyems.com/nadf. Free CE for EMS clinicians, plus lifesaving information for #AdrenalInsufficiency patients, their families, caregivers, colleagues, and friends. Share the link to the word out!

submitted 78 days ago • 0 comments