Profile avatar
no1sarah.bsky.social
She/her. 🏳️‍🌈🏳️‍⚧️ ally @sarahslowsdown on the bird app In healthier times: Health & social care; homelessness & housing. Music, music, music. 🎶 Mostly here to connect with #LongCovid #MECFS #ChronicIllness #Dysautonomia #hEDS #MCAS
201 posts 651 followers 1,526 following
Regular Contributor
Active Commenter

Thank you @tessamunt.bsky.social & @libdems.org.uk I hope @greenparty.org.uk are also backing the demand for resources for the ME/CFS delivery plan @carladenyer.bsky.social @adrianramsay.bsky.social @elliechowns.bsky.social @sianberry.bsky.social

Disappointed that @miketapp.bsky.social wasn't a signatory to this

"It’s unclear, what, exactly, “watching out”, lacking any public health interventions or guidance whatsoever, is supposed to accomplish." Excellent as usual from @juliadoubleday.bsky.social

Again for those in the back: 👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential” Thanks to @RobWust for this incredible work. www.medrxiv.org/content/10.1...

No more talk of "maxing out the credit card." We can - and must - spend to invest. The 1% must also pay their fair share. Backzack.com (Footage from @novaramedia.com live stream)

“Estamos quebrando os corpos e as mentes das crianças de Gaza. Estamos fazendo as crianças de Gaza passarem fome. Porque, se não fizermos nada sobre isso, seremos cúmplices do que está acontecendo diante dos nossos olhos” — Michael Ryan, Chefe de Emergências da OMS

🔥 This is the one petition that matters. Please sign and share far and wide 🙏 Oppose the Benefits green-paper in its entirety 💯: petition.parliament.uk/petitions/72... #pwME #pwLC #MECFS

1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before. They speak candidly about their experiences youtu.be/J0ywwLIfH_w?...

Seems that parties that confront the libertarian right-wing pro Trump agenda win elections. Someone tell Keir Starmer www.bbc.co.uk/news/live/ce...

STATEMENT FROM ENGLISH FOLK DANCE AND SONG SOCIETY

Please sign ✍️ to support. To this day I still get asked by HCP “why are you wearing a mask? “😷 Or “Are you sick ?” 🤔 💥 🧠 🧑‍🏫 Less infections = less disease. petition.parliament.uk/petitions/70... #Solutions #CleanAir

"You wanna do something today?" Me: But I just did something last month.

Trans rights are human rights, today and everyday.

Let’s be real – the facts are the real victims here. They keep being overlooked in favour of fuelling culture wars. 1/3

I live in a village with more than enough on-road parking, yet still am frequently blocked by people choosing to park on the pavement for no reason. It would be so easy to report with a photo, if the political will existed to ban it!

Social scientists who conduct in-person research with participants- do you consider the ethical and safety issues involved in exposing yourself and your participants to COVID? Do you take measures to mitigate the risk? Because I see very little discussion of this in articles and grant applications

Anyone with #LongCovid / #MECFS have any experience or knowledge of persistent/untreatable (even with iron infusions) anaemia? @exceedhergrasp1.bsky.social do I remember you mentioning this at some point?

As Lizzy illustrates so powerfully, PIP is vital for so many #pwME #pwLC. With so much concern at proposed welfare reforms, it’s been good to start work with @joplatt.bsky.social and @actionforme.bsky.social to better understand issues, and how to mitigate, with joint APPG ME/LC meeting next week.

A statement from the Board of Trustees of the Vagina Museum regarding trans inclusion.

A lot of people (and I include myself in this) think that anything short of a solution to another's suffering is pointless. We hide away from people in our lives who need us because we think there's not enough we can do. I'm here to tell you, anything you do helps. Anything. Even a tiny thing.

I've written about yesterday's Supreme Court judgment, full of anger and sorrow about the way our institutions are knowingly harming trans+ people. You can read the blog here: medium.com/@nancymirand...

How does #COVID impact the brain? From bench to bedside, my presentation with @davidjoffe64.bsky.social for the @thewhn.bsky.social is available on YouTube now: youtube.com/watch?v=soJX... #NeuroCovid #LongCovid

I just saw something from a writer on here implying Covid does not affect children and I'm baffled people *who read* still think this. The evidence has been piling up since 2020 that children incur serious long term damage from covid. Recent studies include: www.news-medical.net/news/2025022...

A quick reminder to all UK train travelers: Please don't put your luggage in the #wheelchair space! If there's not enough luggage storage, complain vociferously to the train company - don't block wheelchair users from travelling. We created these luggage tags that can be used as a way -

Now UNLOCKED: I decided to unlock my personal essay about my one year anniversary of living with Long COVID, published back in November. I hope you’ll enjoy. And if you can afford to subscribe, link to do so in next tweet! www.thegauntlet.news/p/my-year-of...

If you - yes you - don't act on the known dangers of airborne respiratory viruses by supporting air purification and masking, then aren't you being just as antiscience as the antivaxxers?

Work and a job should not be the primary measure ofhappiness and fulfilment. But - even if you are obsessed with it as politicians often are - there's now very clear evidence that a Universal Basic Income doesn't stop people working. It's time for Universal Basic Income.