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nowhalle.bsky.social
❤️‍🩹 Queer, neurodivergent, disabled 📚 Writer, editor, creator 🛍️ Nowhalle.Etsy.com 💌 Managing editor of @wishbonewords.bsky.social 🔗 https://linktr.ee/Nowhalle
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I *should* be productive (at least until my mom gets home from work ~5pm) HOWEVER, it’s my birthday and I want to listen to another episode of Off Book (the improvised musical podcast) and so I think I’ll do that instead ♥️🖤

submitted 3 days ago • 1 comment

Here’s to 27 🥳 May this year be gentle and my health stable 🤞🏻 Today’s tubie pad is black with white stars to celebrate having survived another year in space traveling around the sun ✨

submitted 3 days ago • 1 comment

I made this Pride flag using only NASA images and our team thought it would be cool to share on social (I work on the NASA heliophysics communications team), but it's getting all sorts of hate on the bird app and Fbook. Thought y'all might be more appreciative of it here. ☺️🏳️‍🌈💖

submitted 254 days ago • 1244 comments

Equipped Pebbles (my Finch birb) with the aromantic pride flag for #AroWeek! Love is love, but not all love is romantic 😌 #Aromantic #AromanticPride #AroPride #LGBTQIA+ #Queer #QueerPride #Finch

submitted 3 days ago • 0 comments

Accountability post so I actually get some tasks finished: - poetry edits (15 poems) - CC for ep 1 of [positivity project] - chronic illness story snippet + photo for oomf T - virtual friend check-ins - silly little steps - peruse lit mags open for poetry subs

submitted 4 days ago • 0 comments

A mood for all my fellow #Disabled and #ADHD #creators Alt: a hand labeled writer/artist hitting three fountain drink dispenser buttons at once: 1. The deep desire to finish the project I'm working on 2. The undeniable urge to start a new creative project 3. Being too tired to do either of them

submitted 4 days ago • 0 comments

Metal detectors hate to see me coming 🩼🦽 #EDS #HEDS #EhlersDanlosSyndrome #HypermobileEhlersDanlosSyndrome #NEIDVoid #Disabled #Disability #AmbulatoryWheelchairUser #WheelchairUser #Crutches #CrutchUser #MobilityAids #BabeWithAMobilityAid

submitted 4 days ago • 1 comment

FRIENDS!! Episode 1 of @yadisabilitypod.bsky.social is LIVE!! Season 1 is themed around Disability 101 and is intended to be a sort of crash course in disability before diving deeper in future seasons. Go listen on Spotify, Apple Podcasts, and YouTube! #Disabled #Disability #Disability101

submitted 5 days ago • 0 comments

Update: I still woke up with a migraine 😭

submitted 8 days ago • 1 comment

My migraines keep getting worse so I’m gonna try sleeping on my large squishmallow and see if I wake up migraine free tomorrow 🤞🏻 Idk if this will actually help, but my next neurology appt isn’t for another two months soooo…. #ChronicMigraine #Migraines #Spoonie #Disabled #DisabledSky

submitted 8 days ago • 1 comment

I think it’s crafting time 👀 I’m gonna make more #ChronicIllness buttons for a friend’s care package program! #Gastroparesis #MCAS #EDS #POTS #MastCellActivationSyndrome #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #Spoonie #CreatorSky #Crafting #AmCreating #CreatorLift #Cricut

submitted 8 days ago • 1 comment

Meant tubie <3 #HappyValentinesDay #MeantTubie #KateFarms #FeedingTubeAwareness #Gastroparesis #JTube #TubeFed #FeedingTube #Tubie #FeedingTubeLife #Valentines #MCAS #EDS #EosinophilicEsophagitis #Disabled #DisabledSky #Disability #Spoonie #ChronicIllness

submitted 8 days ago • 0 comments

Gallifrey One is always around my bday and some year (soon?) I am DETERMINED to be there. Getting to CA with all my medical supplies would be Difficult, but not impossible. I wanna be surrounded by fellow whovians 😭 Good thing JodipCon: Philly is soon 💙💙 #JodieWhittaker #MandipGill #Thasmin

submitted 9 days ago • 0 comments

Sometimes when you’re having a bad week, you decorate your feed and flush bags to encourage nourishment ☀️ ❤️ 🌸 #Gastroparesis #FeedingTube #JTube #TubeFed #NourishToFlourish #Disabled #ChronicallyIll #POTS #EDS #MCAS #EosinophilicEsophagitis #Spoonie

submitted 10 days ago • 0 comments

Why is my hr 110 when I’m lying down 🥲😭 Might need to run some fluids before starting my day💧 #POTS #POTSie #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #InappropriateSinusTachycardia #IST #Disabled #DisabledSky #Disability #Spoonie #SpoonieSky #JTube #Tubie #FeedingTube #ChronicIllness

submitted 11 days ago • 0 comments

I’m way too trusting. How am I supposed to know for certain they are unreliable when they tell me they aren’t? Thanks neurodivergence ♾️

submitted 11 days ago • 0 comments

I may have had (another) panic attack today, but I also gave my cat a 20 minute belly rub during therapy 🐱💞

submitted 11 days ago • 1 comment

I wrote an “I met my younger self for coffee” poem in the style of Jennae Cecelia. My poem is but one version of many meetings that can and may exist. We are Russian nesting dolls full of our younger selves. I’m interested which me I will meet with next. #WriterSky #AmWriting #AmWritingPoetry

submitted 11 days ago • 0 comments

The inundation of Bad News makes me feel anxious and defeated. I know that’s the point (to some degree). SO, let’s spread some joy. What has made you smile, laugh, or feel good this week? I got to work on light impact activities (small hops and jumps) at PT today for the first time in /YEARS/!!

submitted 16 days ago • 3 comments

This week is #FeedingTubeAwarenessWeek! Feel free to ask me questions about being a #tubie and #tubefed. The tube I currently have is a dangle #JTube, but there are several kinds of tubes! #FeedingTube #AskMeAnything #AMA #Q&A #Disabled #Spoonie #DisabledSky #Gastroparesis #EDS #MCAS #TubieLife

submitted 17 days ago • 0 comments

DID YOU KNOW THAT... now through Feb 7, @barnesandnoble.com premium and rewards members can preorder my upcoming queer cozy fantasy, THE KEEPER OF LONELY SPIRITS, for 25% off using code PREORDER25? to preorder, scan the QR code in the post or visit this link: www.barnesandnoble.com/w/the-keeper...

submitted 18 days ago • 0 comments

Visit Nowhalle.Etsy.com to snag my fun new chronic illness awareness buttons! Are you #Disabled or a #Spoonie? Do you live with #Gastroparesis, #PosturalOrthostaticTachycardiaSyndrome, #EhlersDanlosSyndrome, or #MastCellActivationSyndrome? These buttons are for you! #POTS #EDS #MCAS #DisabledSky

submitted 20 days ago • 0 comments

This week is #FeedingTubeAwarenessWeek I’d love to answer questions about tube-fed life and my experience with tubes to help raise awareness. #AskMeAnything in the comments! #Spoonie #Disabled #DisabledSky #AMA #FeedingTube #TubeFed #JTube #Gastroparesis #EDS #MCAS #EosinophilicEsophagitis

submitted 21 days ago • 2 comments

This is a great question! I am still able to eat food by mouth even though I have a feeding tube. Everybody with a tube is different, but I get ~50% of my calories eating by mouth and ~50% through tube feeds! #FeedingTubeAwarenessWeek #AskMeAnything #AMA #Spoonie #Disabled #Gastroparesis

submitted 21 days ago • 0 comments