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paddyrichmond.bsky.social
Living the dream, shame it's a nightmare. M.e / fibro patient, politics nerd and bad mtg drafter
32 posts 33 followers 227 following
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I love you're work @electionmaps.uk. Do you have a spreadsheet for the local elections by any chance? I would very much like to see what parties are finishing second but I can't seem to find a full data set anywhere

Quite possibly the best inclusion in a political article ever, "Davey then ate two scones, one with cream on top and one with jam on top, to celebrate gains in both Devon and Cornwall, where fierce debate rages over the best way to make a cream tea."

It’s one insane thing after another with RFK Jr….now it comes out that HHS planning to cut the National Suicide Hotline’s program for LGBTQ youth that gets 2,100 contacts per day….cruelty is the point with this heartless bastard www.motherjones.com/politics/202...

Trump has deported a four-year-old US citizen with a rare form of metastatic cancer without medication or consultation with their doctor.

This Monday, orange is the new black.

This is well worth ten minutes of your time

But not corrected before the grossly inaccurate figure was circulated and picked up by national media. Another Govt created hostile environment, this time for disabled people.

@mrjamesob.bsky.social it's a rather interesting, if worrying, conservation about PIP today. I would love to call you to talk about it but having an m.e/fibro flare up so unable to do so. This is part of the can/won't chat. Keep up the good work.

@lewisgoodall.com just listened to your excellent podcast today and you wanted some ideas on alternative political history. There was a moment in the brexit years when there were rumours that Ken Clarke might be Prime Minister. I wonder if that's a good one? I can provide a voice not if required

Ruby Daring Tracker from woe please

@xabigazte.bsky.social Hello Xabi, I would like to say that your art for Helpful Hunter is my new favourite. It's too cute. Are there going to be playmats of them? I need it in my life

In 2022 @BMJ.com unreasonably criticised a treatment for micro blood clots that permanently improved my long covid/ME (www.bmj.com/content/378/...), while this week it's published a frankly feeble paper supporting the long debunked and potentially harmful CBT + physical activity as a LC treatment.

This is not what many people would like to hear I suspect but is important to take on board: "The majority of research funding [in general] comes from charities, with only a small percentage coming from the government for other diseases" From: www.youtube.com/watch?v=W3Ji... #MEcfs #CFS #PwME

May 12 is ME/CFS Awareness Day. Speak with other people about ME/CFS today. Reject invisibility and stigma, build awarenesss and support.

This is what we are up against. I want to be taken seriously and listened to by health care professionals and politicians alike. I fear we may yet have more hurdles to clear on that front