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pamslater26.bsky.social
Raising awareness of FOXP2 & CAS (Childhood Apraxia of Speech), a rare neurological speech disorder. #14daysofdvd @GivingVoice Award. Medics4RD Patient Ambassador Trustee Mikey's Wish Foundation
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I’ve started a CAS starter pack. Let me know who should be added to the list. Building our #CAS community go.bsky.app/GUpzWh5

The awesome @ksmithaus.bsky.social is looking for #SLPeeps to take part in research about digital evidence tools for clinical decision making

Hi @stickmancomms.bsky.social Thanks for posting these Fab #VisualSupport resources That are PIF TICK trust mark To support people with chronic illnesses & Range of Disabilities That can be invisible to others @patientsafetylearning.org @rcslt.bsky.social #SpeechLanguage #Communication

How Charlie’s #undiagnosed condition found a name—and his family found a community. www.thetimes.com/life-style/...

New part-time (0.6) Lecturer post available at @mybcu.bsky.social to support our brilliant AHP Return to Practice programme! Open to HCPC registered AHPs. Please repost and share with your networks. jobs.bcu.ac.uk/en/sites/CX_...

Building up SLT/SLP connections on Bluesky as I transition away from X. I've started a list - apologies if there is one already available (please signpost me if so!) Who else should I be adding? (Feel free to suggest yourself 😊) bsky.app/profile/did:...

Happy #StutteringAwarenessSaturday Round 2! Follow @btipodcast.bsky.social! They are hosting a podcast for people who stammer, by people who stammer. It's important that we uplift and support folks who stutter and stammer and their allies here on BlueSky! #Stuttering #SLP #Speech

📣 Calling on #SLPs 👈 We want to hear from #SLPs #SLTs about what you want from digital evidence tools to help you find research evidence easily. You're invited to participate in focus groups or an interview, register your interest here bit.ly/3D4QI2s #bskySPEECHIES @leannetogher.bsky.social

#RareDiseaseday2025 Anthology of rare experience from Genetic Alliance geneticalliance.org.uk/campaigns-an...

RareDiseaseday25 #showyourstripes

Empower students with ‘I’ statements! 💬 Teach them to say, 'I need help with...' or 'I feel ___ when...' to build confidence & communication skills. 🗣📣 Model this for them, too! Small steps lead to big self-advocacy wins! #WorldChangerWednesday #Education #Teaching #SelfAdvocacy #SLP #Speech

Study explores SLPs' perceptions re. the concept of severity of SSD. SLPs need a standard biopsychosocial model for determining severity that truly evaluates “impact” of SSD on a child's communicative participation & attitudes. on.asha.org/3XejrIH #SLPeeps @sigperspectives.bsky.social

#RareDiseaseDay25 #Language is our ability to understand & express ourselves using vocabulary & grammar. In some rare genetic conditions, like Phelan-McDermid syndrome, the size of an individual’s genetic deletions correlates with their language ability. See www.geneticsofspeech.org.au

Evidence-based Service Delivery for Children with Speech Sound Disorder - 12th March 📆 Discover the nature and prevalence of SSD in children. Learn about the optimum timing of interventions to aid prioritisation in service with Dr Pam Broomfield. #BlueSkySpeechies #SLT #SLT2Be #SLP

Too right!🙌 Children with speech and language challenges are TWICE AS LIKELY to be unemployed as an adult. By supporting these children as early as possible, we'd not only reduce their need for mental health services and unemployment benefits, we're also giving them essential skills for life.🌈

If you don't alreadt subscribe to Rare Revolution Magazine do it now. It's relevant to everyone because rare conditions affect 6% of the population and the chronic unmet needs of people has a broad impact on families and communities @rebecca-stewart.bsky.social rarerevolutionmagazine.com

Next round of oral evidence to the SEND Inquiry tomorrow morning. committees.parliament.uk/event/23394/...

Just over a month to the UK's biggest DLD event, #NAPLIC25 conference. In Birmingham, in person on March 29th. Blending lived experience, academic and practitioner learning. Join us! www.naplic.org.uk/conferences/ #DevLangDis

#RareDiseaseDay25 #Stuttering is a motor speech disorder that is quite common in the general population. Most causes of stuttering are unknown. So far 5 rare genes have been identified to cause stuttering in some individuals: GNPTAB, GNPTG, NAGPA, AP4E1 & PPID See www.geneticsofspeech.org.au

#bskyspeechies #SLP #SLT #DevLangDis #languagedevelopment

Looking forward to speaking for @medicsforrare.bsky.social tomorrow. I will be presenting Rare Disease 101 at Magdalen College for this amazing event produced by medical students @ox.ac.uk #RareDiseaseDay www.eventbrite.co.uk/e/connecting...

An estimated 350 million people live with a rare condition worldwide. Regardless of where they live or which condition life can be very difficult due to a lack of awareness in society & healthcare. Break down ignorance & stigma - #ShowYourStripes this #RareDiseaseDay on Fri 28 Feb

We are the new inclusive, supportive networking hub for everyone interested in rare disease research. Our patient-centred approach is turning research on its head, where we want to be part of the future of rare disease research. Find us at: rd-rn.org #RareDiseaseResearch #RareDiseaseCommunity

#Rarediseaseday Fri 28th Feb #showyourstripes & wear stripey socks! Social Media images & email downloads m4rd.org/rarediseaseday2025/

📢 New video alert 📢 ⭐ Our amazing RAiN #CRAG group co-designed an informational video to raise awareness of #RareDiseases among school-aged #children and #youngpeople. 🧬 70% of #RareDiseases affect #children and #youngpeople. Check it out 👇 youtu.be/Og3GC8uzURk?...

Please help out if you can 🙏🏻

If you've not had chance to listen to the #investinslt debate in UK Parliament on 27th Jan, the transcript is in in the below link hansard.parliament.uk/commons/2025... Well worth a read!

If you care for or educate a nonspeaking autistic person, you'll want to join this free online event. Dr Jaswal is leading the way in better understanding the language and literacy abilities of nonspeaking autistic people.

Just out - Open Access #DevLangDis #DLD Leitão, S., St Clair, M., Botting, N., Gibson, J. L., & Jackson, E. (2025). “They don't realise how hard he has to try every day”: The rewards and challenges of parenting a child with developmental language disorder. IJLCD . dx.doi.org/10.1111/1460...

'DLD Together': groups for families to understand their child's Developmental Language Disorder with @afasic.bsky.social Training for trainers session on March 21st. Free online for UK professionals who know about DLD and support families. Email us: www.naplic.org.uk/contact/ #DevLangDis

I’m proud to be the Partnerships & Community Manager for @medicsforrare.bsky.social Our vision is equitable healthcare for everyone. Our mission is to shape a medical profession that can provide a timely diagnosis and excellent care to people living with rare conditions #RareSky

Calling all those in the #RareSky community… get ready to #ShowYourStripes for Rare Disease Day @medicsforrare.bsky.social @loomoomahoo.bsky.social

Showing off your fancy animation skills @loomoomahoo.bsky.social ! Love it!! #showyourstripes #RareSky

There are nearly 100 of you signed up for our Rare 101 webinar! 😀 Have you signed up yet? Go go go! www.m4rd.org/event/rare-d...

The Oxford Rare Disease Society and The Sherrington Society are holding the 1st Oxford Rare Disease Student Conference 2025 on Sunday 23rd Feb. Join them for talks from leading researchers, clinician career tips, a poster competition, and networking stalls with rare disease organisations. 😀

Had to try them out!! Getting ready for #RareDiseaseDay #ShowYourStripes @medicsforrare.bsky.social #ThinkRare #RareSky

Speaker announcement! 🙌 Our ambassador Daval will be speaking at our #RareDisease 101 webinar on 25th February! Daval will be talking about his experiences of EB and what patient advocacy groups like @charitydebra.bsky.social bring to people with #rareconditions. www.m4rd.org/event/rare-d...

Ever wondered what a day would look like as an apprentice? Rachel, a Speech and Language Therapy Apprentice, shares what her day looks like working as an apprentice for the NHS 👇 https://www.bcu.ac.uk/blog/health-professions/slt-apprentice-ditl #NationalApprenticeshipWeek #NAW2025