patientsassoc.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

We have a range of information and guidance if you have a quick question about your health and social care. From getting a second opinion to finding trustworthy information online, our patient guides and resources can help increase your understanding and confidence: buff.ly/5HbxezI

submitted 13 hours ago • 0 comments

The 10 Year Health Plan aims to fix underlying issues and deliver better, faster care. Share your views on key changes in hospital to community, analogue to digital, and sickness to prevention. Take the survey by 5pm on Monday 14th April:

submitted 1 day ago • 0 comments

The Black Maternity Experience Survey is open to anyone who has been pregnant and given birth since July 2021 or is currently pregnant. By taking part, you’ll help to highlight the realities of Black maternal health and advocate for the changes urgently needed in maternity care:

submitted 1 day ago • 0 comments

We had a fantastic session earlier this week with Curie Freeborn and Adam McDonald, two patients who shared what has helped them to be prepared for their healthcare appointments. You can now catch up with the webinar by watching the recording on our website or YouTube channel: buff.ly/tVDy3P7

submitted 2 days ago • 0 comments

1️⃣ Our Improving health equity report found that patients who experienced racism when receiving care led some to avoid seeking (or to be fearful of seeking) health services. @nhs-rho.bsky.social is right to highlight how important trust is between patients and healthcare professionals

submitted 2 days ago • 1 comment

👏We had the privilege of accompanying Curie, a patient, to 10 Downing Street today to meet with one of the Prime Minister's Special Advisors. We're honoured to be working with her and supporting the Government on improvements to health & care, and increasing patient partnership!

submitted 3 days ago • 0 comments

In a new blog, Emma Sheffield at the Patients Association (@patientsassoc.bsky.social), explains how their free helpline is helping people navigate health and social care systems. www.pslhub.org/learn/patien...

submitted 3 days ago • 0 comments

Navigating health and social care systems can be confusing and frustrating for patients and carers. This @patientsassoc.bsky.social blog explains how our free helpline is helping support people. www.pslhub.org/learn/patien...

submitted 3 days ago • 0 comments

🆕In this blog, we explore 4 key areas of patient safety relating to women’s health, where we believe action needs to be accelerated: pain, gynaecology waiting lists, redress & disparities in maternal outcomes. www.pslhub.org/learn/patien... #InternationalWomensDay #PatientSafety

submitted 4 days ago • 1 comment

Proud to have been at the launch of CORE: a new approach to inclusive communication, in partnership with Weber Shandwick today. @rachel-p.bsky.social @sarahtilsed.bsky.social CORE aims to bridge the gap for disadvantaged populations who often struggle to navigate health information and services.

submitted 5 days ago • 1 comment

📢Our webinar on making the most of your healthcare appointments happens tomorrow at 9am. Find out more in this video from @alfcollins.bsky.social who will be hosting the event. Sign up for free: www.patients-association.org.uk/Event/helpin...

submitted 5 days ago • 0 comments

We're looking for 10 individuals to take part in an online focus group on Thursday, March 13th, to help shape the future of NHS leadership and management. Find out more and register your interest:

submitted 7 days ago • 0 comments

Curie, a patient and member of the Patients Association, was asked about her recent experience of NHS services by the UK Government TikTok channel! We're proud to see patient voices being heard 🩵

submitted 7 days ago • 0 comments

This deeply moving article is written by @madisonmarriage.bsky.social, the daughter of one of our focus group participants. In it, she tells the heartbreaking story of her brother, Charlie, who tragically passed away after being unable to access the emergency medication he needed. buff.ly/4be5Nv2

submitted 8 days ago • 1 comment

We're delighted to announce the appointment of three new trustees, Julia Ross, Teena Chowdhury and Mark Blaney, to our Board. Together they bring a wealth of experience, strengthening the our mission to amplify the patient voice buff.ly/41Bo969

submitted 8 days ago • 0 comments

🧵Our response to today's #GPContract announcement: The agreement between the Government and the BMA is extremely welcome, but we have concerns about health inequalities if implementation isn't carefully managed 1/4

submitted 9 days ago • 1 comment

#EatingDisordersAwarenessWeek falls in February which is also 🏳️‍🌈 LGBT+ History Month. Lee, one of our Peer Support Workers within our MPFT Eating Disorders service, shares their story 👇 #EatingDisordersAwarenessWeek #AnyoneAnytime

submitted 10 days ago • 0 comments

📞Did you know we can raise your concerns about a health or care service with CQC anonymously? Just get in touch with our helpline and one of the team members will be able to help you. It's free to call the helpline on 0800 345 7115. #ShareForBetterCare

submitted 10 days ago • 0 comments

🌐We welcome the government's Digital Inclusion Action Plan and its recognition that digital exclusion can worsen health outcomes. We’re encouraged by Secretary of State for Health & Social Care’s co-signature, underscoring healthcare’s role in this agenda: www.gov.uk/government/n...

submitted 10 days ago • 1 comment

💬 How can patients prepare for appointments and navigate the health system with confidence? Join our free webinar on 5th March at 9:00am to learn more, with speakers from the Patients Association and patient voices. Sign up today: www.patients-association.org.uk/Event/helpin...

submitted 10 days ago • 0 comments

🧑‍🧑‍🧒Calling all parents! 🦷It’s the number one reason for hospital admissions among young children. ✂️And political choices made in Westminster have left millions with no options. 📕Share your story 👇 www.theguardian.com/society/2025...

submitted 11 days ago • 0 comments

Great to see @nhsconfed.org’s new report, The Future of Primary Care, call for a review of the Carr-Hill formula. This echoes our work on health equity, pushing for funding to better reflect local health needs & inequalities

submitted 11 days ago • 1 comment

Our Head of Partnerships & Involvement, @sarahtilsed.bsky.social , is speaking at HETT North today! She'll be sharing about our recent work on health equity and the importance of patient involvement in innovation: https://buff.ly/4hToXsO

submitted 11 days ago • 0 comments

🚑 Read @rachel-p.bsky.social's statement on @theguardian.com reporting that 1 in 3 people are reluctant to seek help at A&E because they think it will be overwhelmed ⬇️

submitted 13 days ago • 0 comments

Technology offers transformative potential to scale support for people living with long-term conditions, particularly those facing the greatest challenges. Read our new long read to find out more: https://buff.ly/3D2tqKo

submitted 14 days ago • 0 comments

It's #HelplinesAwarenessDay2025! Our helpline provides specialist information and guidance across all four UK nations to help you make sense of the world of health and social care. ☎️ Call 0800 345 7115 or 📨 email [email protected] to speak to one of our friendly team!

submitted 14 days ago • 0 comments

Seeking a second opinion should not negatively impact your care or relationship with the doctors taking care of you. Speak to our helpline team if you have questions on 0800 345 7115 or take a look at our website: https://buff.ly/4hNPzeu #HelplinesAwarenessDay2025

submitted 15 days ago • 0 comments

📢The General Osteopathic Council is looking for two osteopathic patient to join its council. These Patient Partners will contribute to the strategic direction of the council by sharing insights and objective feedback from the patient perspective. Learn more:

submitted 15 days ago • 0 comments

⚠️ Sometimes things go wrong when you receive health services. If you want to make a complaint but aren't sure how to, we can help! Contact our helpline on ☎️ 0800 345 7115 to speak to someone or take a look at this resources page on our website: https://buff.ly/4hLWK6V #HelplinesAwarenessDay2025

submitted 16 days ago • 0 comments

This research from @theguardian.com paints a similar picture to what we found in our own reporting on how social and economic factors affect the health of people living with blood disorders and cancer: https://buff.ly/3XaWEOf

submitted 16 days ago • 1 comment

Over 25 million people in England live with a long-term health condition (LTC) . Our new long read explores how technology-enabled support can bridge the gaps in our current healthcare system. @rachel-p.bsky.social @alfcollins.bsky.social @taradonnelly.bsky.social https://buff.ly/4b81Rfq

submitted 17 days ago • 0 comments

In the run-up to #HelplinesAwarenessDay2025 we're sharing some of the frequently asked questions our helpline team receive. ☎️ If you have a question about your healthcare, call our free helpline on 0800 345 7115 or email [email protected].

submitted 17 days ago • 1 comment

📈Our report from 2023 found 11% of patients said their care or treatment had been affected by an admin or IT error. Latest from @thekingsfund.bsky.social shows that has risen to 64% 🔽

submitted 20 days ago • 1 comment

More NHS appointments = more patients getting the care they need sooner. A big step forward, but there’s still work to do. @rachel-p.bsky.social's statement on the Department for Health and Social Care's announcement www.gov.uk/government/n... 👇

submitted 20 days ago • 0 comments

If you have spent time in or supported someone in a care home, hospital, hospice or mental health unit at any time since 6th April 2024, @rightsforresidents.bsky.social, Care rights UK and John's Campaign want to hear about your experiences with visiting. Take the short survey:

submitted 21 days ago • 1 comment

Recently, we partnered with the Professional Standards Authority to support their public consultation process for the review of two sets of standards. Read our blog to find out more and for details on how you can take part in the consultation: https://buff.ly/4jWrl3j

submitted 22 days ago • 0 comments

At our event, four people living with long-term conditions shared what daily life is really like. Their stories highlight the challenges, resilience, and realities often left unheard. A huge thank you to our speakers for their honesty and insight! 💙 https://buff.ly/3X3MZc5

submitted 22 days ago • 0 comments

Have you ever been a carer? Do you know someone who has caring responsibilities? Our research has found that people living in more deprived areas provide more hours of unpaid care and at younger ages.

submitted 25 days ago • 2 comments

Today, we've launched a new piece with @ipsosintheuk.bsky.social looking at the public's perceptions of the 'three shifts' the government is proposing as part of the 10 Year Health Plan. While there's appetite for the plans, there's also tensions. Find out more 🔽 https://buff.ly/4hKUzjQ

submitted 25 days ago • 0 comments