rmsksdana.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

February 28, 2025- is Rare Disease Day in Michigan!! 💚🩷💙💜

submitted 13 days ago • 0 comments

Rare disease day 2-28-25 🩷💜💚💙

submitted 17 days ago • 0 comments

She lost her life serving our country and because of the smears by the President her family doesn’t want us to know her name. It’s two weeks and this Administration is the most shameful imaginable. — Army withholds name of Black Hawk helicopter crew in D.C. crash www.npr.org/2025/01/30/n...

submitted 26 days ago • 584 comments

The kind folks at Rare Disease Day have shared Amelia’s #BattenDisease story, and you can read it at the link below! Rare Disease Day is Feb. 28th and the more awareness we can spread, the better! www.rarediseaseday.org/heroes/ameli...

submitted 35 days ago • 1 comment

Ready for #rarediseaseday2025 @addisonsdisease.bsky.social @nadfadrenal.bsky.social 🩷💜💚💙

submitted 27 days ago • 0 comments

#rarediseaseday2025 💙💚💜🩷

submitted 31 days ago • 0 comments

Rare Disease Day, 2/28/25! 💙💚💜🩷

submitted 37 days ago • 0 comments

Good morning.. 😊

submitted 45 days ago • 22 comments

submitted 53 days ago • 0 comments

Raising awareness for Rare Disease Day! 2-28-2025, the last day of February every year and celebrated worldwide! Please spread the word to raise awareness! Let’s raise awareness for our patients and our communities!

submitted 53 days ago • 0 comments

submitted 54 days ago • 0 comments

I went to see my patient on #EOLcare & saw that the nurse had encased his hands in warm water-filled gloves, to simulate human touch (his family was not able to be there). Below is a googled picture. This kind of compassion is not taught in school. My heart is full. @3wishesprogram.bsky.social

submitted 54 days ago • 18 comments

Happy New Year! Cheers to an amazing 2025!💫

submitted 57 days ago • 0 comments

"Just trust your body." Pal, I have an autoimmune disorder. My body is trying to kill me as we speak.

submitted 58 days ago • 29 comments

Spent my Christmas week in the hospital with an adrenal crisis. The pain I experience with an adrenal crisis is something I can’t put into words. I am so thankful for the @NADF_Adrenal @NADF_Kalina for providing information for people to reference. 🧵

submitted 59 days ago • 1 comment

Not exactly how I envisioned spending my Christmas Eve and Christmas Day but Addison’s disease doesn’t let you choose when an adrenal crisis will happen. This is why I advocate for people living with rare diseases! Merry Christmas everyone! 🎄🎁

submitted 62 days ago • 3 comments

Beautiful sunset! ☀️

submitted 77 days ago • 1 comment

This is Addison’s Disease. A very difficult disease to manage day to day and when health care providers do not know how to manage an adrenal crisis, it is life threatening. #addisonsdisease #raredisease #NADF

submitted 79 days ago • 0 comments

Onward and upward! You are an unstoppable warrior! Never give up! ✨#rarewarrior #rarediseaseday2025

submitted 82 days ago • 0 comments

Rare Disease Day, is February 28th, 2025. The last day of February every year!! Mark your calendars!!! Wear your stripes, light up for rare, spread the word about Rare Disease Day! 🦓🩷💜💙💚 x.com/rarediseased...

submitted 83 days ago • 0 comments

THE #HCWVSHUNGER 2024 RESULTS ARE IN! 🍎 3rd place: #BladesNBougiesPEEPS with $83,402 👏 2nd place: #DiagnoseAndTreats with $241,594 👏 1st place: #KidVengers with $263,209 👏 Congratulations to our 3rd-time contest winner, #KidVengers, and thank you to everyone who contributed this year!

submitted 84 days ago • 0 comments

Sending extra hugs to anyone who needs them today 💙 You are enough.

submitted 86 days ago • 0 comments

🥶 It's cold in Chicago! While you're waiting for your morning ☕️ consider donating $5 to CARE! There is x10 match currently and you can walk into #RSNA24 feeling good. Win win. 1️⃣ Donate while in line 2️⃣ Log it on #HCWvsHunger ( #radiology #radSky #radonc team is #DiagnoseAndTreats) 3️⃣ Feed some people

submitted 86 days ago • 0 comments

Get the book for someone for the holidays and send me a receipt and I’ll send u some fun swag too!!

submitted 87 days ago • 1 comment

A personal favorite. The older I get, the more poignant it becomes...

submitted 88 days ago • 408 comments

Mark your calendars!!! February 28, 2025 is international Rare Disease Day!!! 🩷💚💜💙

submitted 88 days ago • 0 comments

#BlackFriday shoppers Please give the gift of safe drinking water. #HCWvsHunger #RSNA24 Team #DiagnoseAndTreats 100% of your donations go towards providing clean water ! @hcwvshunger.bsky.social www.charitywater.org/home

submitted 89 days ago • 0 comments

In less than 16 hours, #HCWvsHunger has raised almost $150k to fight hunger. #KidVengers is starting to make their moves but is #DiagnoseAndTreats too far ahead for them to catch up?! No way, it’s still anyone’s game! And more than enough time for YOU to get in.

submitted 89 days ago • 1 comment

Don’t forget to log donation amounts at HCWvsHunger.org Team #UrineItToWinIt 🥦🥕🍏🥔🥧🍎🍚🍞 #HCWvsHunger @hcwvshunger.bsky.social

submitted 89 days ago • 1 comment

This young man needs a kidney. Please consider live donation. 20-year-old MSU student in need of a life-saving kidney pleads with community www.wxyz.com/news/positiv...

submitted 89 days ago • 0 comments

Good morning! Thankful for all of you turkeys out there but especially those that want to help us feed others. #HCWvsHunger 2024 starts tonight at 6pm EST. You can help in many ways 🍎 post/repost 🍎 donate to any org fighting hunger & log donation at HCWvsHunger.org 🍎 invite everyone you know

submitted 90 days ago • 12 comments

Need something to read over Thanksgiving break? This is the book! ⬇️↙️↘️⤵️❣️

submitted 91 days ago • 0 comments