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rookdigoo.bsky.social
Hey, it's me. Writer, reader, crafter, nerd, and amateur folklorist. Chronically ill (long covid) and won't be silent about it. We are still in a pandemic. Wish I was a tiny mouse living in a tiny mushroom. 🐭🍄 | She/her
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Genuinely so cool to see #longcovid being explored through different game formats! Highly recommend the read. #narrativegames #gamedesign thesicktimes.org/2025/05/06/l...

Things that amuse me: Passing a sign that says "Entering Wayland" while wearing my Heir to the Empire t-shirt. Happy Star Wars day, nerds! XD

HAPPY DRACULA DAILY DAY! My good friend Jonathan Harker is on a work trip to visit a new client. He's collecting recipes for his fiance, Mina (aww). Surely nothing weird or amiss could happen on this totally normal trip 👀 draculadaily.substack.com

Welp! I thought it was gonna happen, and it finally did. My job finally got tired of waiting for me to recover with my long covid enough to work again, so I am officially unemployed. If anyone knows how to get a refund on 2025, that would be great. I've had the few month trial and I am not a fan 🙃

Finally have an appt tomorrow for autonomic testing after a year+ wait. And I realize now, the night before, that I completely misread the meds to pause before the test list and I should have stopped one two days ago and two others a week ago. 🙃 Thanks for absolutely nothing #longcovid brain!

A just-after-midnight thunderstorm is actually a great birthday present to me. 💖

Thanks @thesicktimes.bsky.social @betsyladyzhets.bsky.social @mileswgriffis.bsky.social for your reporting on #NoLongCOVIDCuts advocacy. Grateful coverage shouted out #LongCOVID bipartisan Hill supporters & uplifted the patient outreach that made #RECOVER grant restorations today possible. #teamwork

Successfully enrolled in my first clinical trial for #longcovid ! Not going to share details as I don't want to doxx myself 😅 Don't know if I'll see improvement through it but I'm glad to know I'm contributing to research to help all of us dealing with this.

Yeah. This.

To the millions we serve, A statement from our founder on the devastating closure of the HHS Office for #LongCOVID Research & Practice. Within, find an action network to easily write @SecKennedy @POTUS & Congress & a volunteer form. longhauler-advocacy.org/so/ebPNEWBYA...

Chronic illness doesn’t take your dreams away—it puts them just out of reach. Some days, even the basics feel impossible. This isn’t laziness. It’s survival. #ME/CFS #ChronicIllness #DisabilityAwareness #longcovid

May the Odds be ever in your favor. (This book is killing me already) #currentlyreading #sunriseonthereaping

It's so important right now to give yourself dumb little reasons to keep going. You haven't had the best sandwich you've ever tasted. You haven't laughed the hardest you've ever laughed. You haven't gotten the best hug you've ever felt. I know these things feel small but that's why they help me.

WELP apparently spotify hosted the trump inauguration brunch (how did I miss this??) So I am taking my money elsewhere. 🤷‍♀️ Trying out Deezer for a 30 day trial - we'll see how it goes! It's the same price as spotify premium, and it looks like they actually pay artists better so fingers crossed!

Did a Haunting of Hill House page in my junk journal yesterday. The red pen didn't show up quite as well as I'd have liked but I'm pleased with it overall.

It's #longcovid awareness day, the Ides of March, AND the day Eowyn stabbed the Witch King. No spoons left, only knives. 🗡🗡🗡

THEM <3

Crabssant 🦀🥐

You can't heal without first removing the tumor.

If empathy is wrong, I don't want to be right.

do you ever just... *screams into the void*

I found out I can export my lists from IMDB and import them to Letterboxd AND I can make private lists. I am going to be unstoppable. No one will be able to see that I am unstoppable because it will be private, BUT

I made a lil blog post about my fave fabric stores! Some of these are well known, some less so, but these are places I look for my materials! (You do NOT need to be a ko-fi member to view this one! Public post for everyone ☺️)

NO I WAS JUST THINKING ABOUT HOW COOL A STAGE PRODUCTION WOULD BE AHHHHHHHHHHHHHHHH www.broadwayworld.com/article/THE-...

indeed why people with existing chronic illnesses are begging you to use mitigation tools— you do not want to join our club!!! mask up! covering your face in, at the very least, public indoor spaces is small potatoes to the conditions these diseases can leave you with.

Today is the 2 year anniversary of when I went to the ER with an acute covid infection - the one that gave me long covid. Today I'm lying in bed having still not recovered from my third covid infection earlier this month. I'm so, so tired. Nothing profound to say. Just tired. #WeAreStillInAPandemic

An hour after making this sad post, I remembered I had received a package from a dear friend today that I hadn't opened. So I open it and find two books, and it was honestly such a bright little light in what is such a horrible time right now. Hate can't drive out light and love forever.

Just found out my favorite local used bookstore is owned by a proud pro-Trumper 😭 I am so upset. 😭

Every time I hear peers use language like "During COVID", "post-COVID", "During the pandemic", "back during COVID" -- I want to interrupt and say: "..you mean, now?" Language matters.

To everyone with "the flu": if you haven't tested for COVID, you sure as hell might have COVID. If you don't test, and have no proof that it was COVID, it can make it harder to get care/support if you develop #LongCovid. #ThePandemicIsNotOver #MaskUp