sarahmwalter.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

Please see a collective response from an esteemed group of leaders in the dementia field to the NYT article and book “doctored” by Charles Piller. www.nytimes.com/2025/01/24/o...

submitted 19 days ago • 1 comment

A scientist and dear friend wrote this response to misleading accusations of fraud in #Alzheimers research. www.nytimes.com/2025/02/06/o...

submitted 20 days ago • 0 comments

As a mom of a young teenage girl, I want to thank these researchers for this beautiful work! What a powerful example of good science and intentional co-production! #socialscience #inclusion #womenshealth

submitted 21 days ago • 2 comments

Y’all, @alzdemjournals.bsky.social Behavior & Socioeconomics of Aging (BSEA) has reached an important milestone ALREADY! 3 peer-reviewed research papers: PUBLISHED! Read and share: alz-journals.onlinelibrary.wiley.com/journal/2997...

submitted 23 days ago • 1 comment

⭐Webinar reminder! Join us tomorrow, February 5th. Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves. #PatientEngagement #PatientPartners #PPI #PxP25

submitted 23 days ago • 0 comments

Really looking forward to this webinar on partnering with #Vietnamese communities - sign up here! Alz.org/research-webinars #dementia #research #participatoryresearch

submitted 24 days ago • 0 comments

This is unacceptable, clear disparity in diagnosis which will impact these individuals and families in enormous ways!

submitted 41 days ago • 0 comments

UW Madison seeks a visionary and transformative leader for Division Chief, Geriatrics and Gerontology. This is an exceptional opportunity to expand research on aging, guide the professional development of faculty and shape the next gen of medical professionals. To apply: lnkd.in/gWp23jDN

submitted 44 days ago • 0 comments

UK #PublicInvolvement #PPI news: @nihr.bsky.social Centre for Engagement & Dissemination (formerly INVOLVE) to be hosted by @bmj.com group from 1/4. They will lead & coordinate 'Public Partnerships & Research Impact activities'. www.nihr.ac.uk/news/nihr-in... Will be watching with interest... #PPIE

submitted 42 days ago • 2 comments

It's so important to listen to patients! 👇 #PatientInvolvement #PatientEngagment #Listen

submitted 43 days ago • 0 comments

When speaking to (or about) someone living with a #mentalhealth condition, it’s best to use person-first language that focuses on the individual, not the illness. You can find a full list and a FREE DOWNLOAD wellbeings.org/LanguageGuide

submitted 50 days ago • 0 comments

All Los Angeles Public Library locations are providing free N95 masks. Libraries are essential!

submitted 45 days ago • 55 comments

So wonderful to have the evidence that both researchers and community members benefit when we partner! Important learning —> community members value quality of relationship and a focus on #prevention #dementia #ppi researchinvolvement.biomedcentral.com/articles/10....

submitted 53 days ago • 0 comments

Happy new year #PublicInvolvement people 🎊 This starter pack is growing growing fast & almost at capacity. So if you work in health & care research #PPI &/or #Coproduction & would like to be added let me know 👋. If you're on it already take another look 👀, as there may well be new people to follow

submitted 55 days ago • 1 comment

TIDE (Together In Dementia Everyday) has been awarded a grant by the Dementia Trust to begin some peer support groups for carers of people with young onset dementia (YOD) in conjunction with the Alzheimer's Society (@alzheimerssoc.bsky.social). Read More: buff.ly/3ZZa8gl

submitted 58 days ago • 0 comments

31 December 1995. Still the perfect goodbye.

submitted 59 days ago • 289 comments

Critical findings from my man @bryandjames.bsky.social at Rush Alzheimer's Disease Research Center. Social activities may delay dementia onset by 5 years. That delay could result in $500,000 savings in healthcare costs. #ENDALZ #Alzheimer's alz-journals.onlinelibrary.wiley.com/doi/10.1002/...

submitted 59 days ago • 1 comment

Fantastic paper- showing effectiveness of engaging with older adults to disseminate science!! Let’s go!!

submitted 62 days ago • 1 comment

🎅📡 Track Santa this Christmas! The North American Aerospace Defense Command (NORAD)'s Santa Tracker uses radar, satellites & jets to monitor Santa's flight around the globe A fun way to explore tech & science this Christmas! Track Santa here: www.noradsanta.org #Christmas #Santa #SciComm 🧪

submitted 66 days ago • 0 comments

Great to hear of new discoveries and I hope the exhibition bolsters conservation efforts 🧪🌍

submitted 70 days ago • 0 comments

#researchadvent for today - excited to be part of the team planning #publicengagement with www.Aptwebstudy.org anyone over 50 is welcome to join our online Webstudy #prevention #alzheimers #endalz

submitted 73 days ago • 0 comments

In three years I’ll look back and think .. how blissfully happy I am working hard and loving my sarcastic brilliant kids.

submitted 74 days ago • 0 comments

I have so much appreciation for the people with lived experience of dementia that have been part of my co-design team. They keep me focused on what really matters, and (bonus) they give me so much grace, support and love! #gratitude #endalz #researchadvent

submitted 77 days ago • 0 comments

Today’ #researchadvent - I’m excited about my PHD project! ethics submitted today!! Topic is research ambassadors for dementia research. #researchadvent #uofedinburgh #pgrstudent

submitted 78 days ago • 2 comments

🎉A bit late to the party, but happy to be joining this community! 💫The Down syndrome and Alzheimer’s disease PIA has put together a webinar on cerebrovascular pathology in DS and AD. Please join us on Zoom on Friday 13th, 10:30 am PST, 12:30 CT USA. ✏️Register here: alz-org.zoom.us/webinar/regi...

submitted 78 days ago • 1 comment

We need help from adults aged 40+ with Down's syndrome and family/carers to make a film together to train health & social care staff. We want you to share your experiences of falling & ideas about what helps you to move safely, to help staff to support you. Please get in touch! 📍London, UK

submitted 79 days ago • 2 comments

This morning one of my participant advisors called just to say “hi” and gave me a few words of encouragement and wisdom. And just a few hours later I got the go-ahead for a new research proposal! Participant support gives you power! #endalz #participantfeedback #trialdesign

submitted 80 days ago • 1 comment

The first state-funded study of LGBTQIA+ midlife & older adults in Californian almost complete. It’s a 2 part study on LGBTQIA+ aging that includes an online survey data from a series of focus groups with some of the hardest to reach LGBTQIA+ midlife & older adults. sfbaytimes.com/results-now-...

submitted 84 days ago • 0 comments

"It's a lot harder than taking even very demanding coures. What makes it difficult is that research is immersion in the unknown. We just don't know what we're doing. We can't be sure whether we're asking the right questions or doing the right experiment until we get the answer or the result."

submitted 94 days ago • 1 comment

Fantastic tips on co-analysis with lived experience experts in dementia research - thanks for sharing! #inclusiveresearch #coproduction #dementia

submitted 86 days ago • 0 comments

This article with Wendy Mitchell is essential for anyone communicating about Alzheimer's & dementia: "Don't call us sufferers – it makes us lose all hope, says bestselling author who is battling dementia." Wendy passed away this year, but her words remain relevant www.dailymail.co.uk/health/artic...

submitted 87 days ago • 0 comments

Online peer support for individuals affected by dementia - with speaker Dr Catherine Talbot from @bournemouthuni.bsky.social 📅 Wednesday 11 December ⏲️ 11:30-12:30 GMT / 12:30-13:30 CET 📍 MS Teams From @arc-em.bsky.social www.dementiaresearcher.nihr.ac.uk/event/online...

submitted 87 days ago • 0 comments

Being a sibling of someone with Down syndrome and working on ending Ds-associated Alzheimer's disease means walking a fine line between my role as brother and my role as professional. Read a perspective I wrote about this here: bit.ly/4ePeqN1 #disability #alzheimers #downsyndrome

submitted 94 days ago • 2 comments

📢 New paper 👇🏼 This research is about diversity, community engagement, & co-design in health & social care research, focusing on the importance of including individuals from all backgrounds in the research process. 1st of Dec is off to a good start 🥰 Link: bmjleader.bmj.com/content/earl...

submitted 88 days ago • 5 comments

Great summary- #Coproduction recommendations- people want to see the impact their voice has had on research!

submitted 88 days ago • 1 comment

This is excellent. Parent perspective on recent NDSS adult conference for people with #downsyndrome - advocacy can fight diagnostic overshadowing “oh that’s just the #Alzheimers” everyone deserves the best medical care! #healthequity #downsyndrome #clinicaltrials

submitted 89 days ago • 1 comment

Prioritizing Knowledge User Engagement: Engaging Patients and the Public in Creating Enduring Musculoskeletal Rehabilitation Research | Journal of Orthopaedic & Sports Physical Therapy www.jospt.org/doi/abs/10.2...

submitted 90 days ago • 0 comments

#DownSyndrome #HolidayMarketPlace #BlackFriday 💛

submitted 90 days ago • 0 comments

thanksgiving inspiration - an article on pioneering women scientists, including one using participant- centered practices! #healthequity #agingscience

submitted 92 days ago • 0 comments

Fanstic quick byte on research led by my friend amd colleague Mouna Sawan on a tool to help medication management for people with #dementia and #caregivers open.spotify.com/episode/3ayj...

submitted 93 days ago • 1 comment

Very excited to see our Doctoral Training Centre open for applications for 6 PhD students starting next October. Lots of amazing projects to pick from including hospital at home, integrated health & social care, Parkinson’s #dementia, diagnostic inequalities. Do reach out to the named supervisors.

submitted 95 days ago • 0 comments