sedsconnective.org - Profile | ThreadSky | a Reddit-style client for Bluesky

Our 2019 survey of disabled doctors and medical students found just 55% had gotten the reasonable adjustments they needed. Our new survey will help us understand whether access has changed since then, and to keep lobbying for improvement. Take part here: www.surveymonkey.com/r/BMAdisabil...

submitted 6 days ago • 1 comment

A study for lgbtq young people and neurodivergent in UK using health care GPs . Please email researcher or go to our website to see more

submitted 1 day ago • 0 comments

#Hypertension awareness Day ! www.sedsconnective.org/post/hyperte...

submitted 1 day ago • 0 comments

A bumper of studies on what we started and are the foremost userled, voluntary charity in the UK and beyond ! Neurodivergence, EDS, Hypermobility, Autism Fibromyalgia, ADHD brain children movement, PCOS , Dyspraxia and Neurodivergent LGBTQ studies to participate in!

submitted 2 days ago • 1 comment

It’s #hypermobility #EDS #HSD awareness month straight after Autism, IBS before ME CFS gastroparesis GI, ADHD dyspraxia dyslexia ocd dyscalculia Menopause mental health and Dysautonomia + days weeks months All this body brain & more is us @sedsconnective.org thank you @ehlersdanlos.bsky.social

submitted 14 days ago • 0 comments

royalsociety.org/science-even... Anyone else going? Do say hello!

submitted 6 days ago • 0 comments

It's Mental Health Awareness Week! Did you know that 1 in 4 adults feel lonely some or all of the time? Some of us (neurodivergence and symptomatic hypermobility) are at even higher risk. Let's break the silence around loneliness 🦓♾️ #mental #lonely #neurodivergent #health

submitted 5 days ago • 0 comments

The invisible impact of COVID-19 on hypermobility syndromes and neurodivergence- bodies, brains and burnout Conference 🗓️July 11th - Royal Society of Medicine, London www.rsm.ac.uk/events/rheum... #edusky #medsky #GP #medical

submitted 6 days ago • 0 comments

Welcome to Sonal our new trustee who is also running and raising money for SEDSConnective in one of the hardest, toughest races! 💨 Link here to donate justgiving.com/page/racetos.... Thank you🙏

submitted 7 days ago • 0 comments

This is such a good point. We still need to focus and improve our executive functioning and our creativity is a strength #ADHD. #EF

submitted 11 days ago • 0 comments

Strange or utterly makes sense! Did you know some of the connections with hypermobility and neurodivergence ? #EDS #HSD #neurodivergent

submitted 11 days ago • 0 comments

#ADHD Pain paper from Japan Yes more pain! A survey of 4,000 adults who had experienced pain recently found that those with higher ADHD symptoms were more likely to have chronic and extreme pain. pmc.ncbi.nlm.nih.gov/articles/PMC...

submitted 22 days ago • 1 comment

Equality is fairness Equity is access Autonomy is respecting the right to self-declare or not Epistemic Justice is trust and respect as your own person

submitted 20 days ago • 1 comment

Amazing outdoor activities #hypermobility EDS HSD

submitted 13 days ago • 0 comments

Are you Autistic, ADHD, dyspraxic, Tourette's or maybe also dyslexic? Are you tired, exhausted, completely burnt? Does it affect your mental wellbeing in education, work or other? Ever wondered it might also be physiological? #Hypermobility #BodyBrain #EDS #HSD #neurodivergent #Autistic #ADHD +

submitted 13 days ago • 0 comments

We’re a voluntary, userled charity making a real difference and we need your vote! Please support us ▶️ SEDSConnective Voting closes Sunday midnight (GMT) 🗳️ #Charity #Vote #Neurodivergent #EDS #Autism #ADHD #HSD Thank you 🙏 health.movementforgood.com?utm_source=E...

submitted 14 days ago • 0 comments

New paper: Adams et al. (2025) Experiences of interoception and anxiety in autistic adolescents Hypoawareness of interoception reduces detection and regulation of anxiety & hyperawareness can be overwhelming and anxiety-inducing. doi.org/10.1177/1362... 1/2

submitted 48 days ago • 2 comments

New paper alert: How might interoceptive accuracy training work? Murphy & Bird (2025) doi.org/10.1016/j.ne...

submitted 33 days ago • 1 comment

May The Fourth Be With You! #MayTheFourth #MayTheFourthBeWithYou #SEDSConnective #EDSHSDAwareness #EDS #HSD #hEDS

submitted 15 days ago • 1 comment

Really useful summary of #NeuroDivergent related terms from @SEDSconnective.org Language matters, especially when we are being faced with SO MUCH misinformation and bias. Also, please capitalise your hashtags and user tags for people with accessibility needs. Thank you 🙏 #ActuallyAutistic

submitted 32 days ago • 0 comments

Today is #Hypermobility Awareness Month. I've messed up and left a bobble on the wrist ( not even a strong one, a really loose one). This will bruise badly now. #EDS #HSD #hEDS is difficult. This is just a normal day to day. Much more to it. See @sedsconnective.org

submitted 18 days ago • 2 comments

Yesterday I was on my way to the National Archives at Kew to talk on #ehlersdanlossyndromes (EDS HSD ) and it’s May so hypermobility awareness month and neurodivergence connections. It was hot so a hat definitely needed, 29 degrees ! @SEDSConnective.org + #EDS #HSD #Autism #ADHD #dyspraxia

submitted 17 days ago • 0 comments

May is Hypermobility Awareness Month! #ehlersdanlossyndrome #ehlersdanlosawareness #HypermobilitySpectrumDisorder #hypermobilityawareness #EDS #HSD #paediatricGJH

submitted 17 days ago • 0 comments

We have been asked to share this with our members! A brand new study for those who are diagnosed autistic or self dx, 18 and in the UK. Find out more - become a member on our website sedsconnective.org/membership 🙏 This will be on our newsletter too - subscribe via our website!🙂

submitted 18 days ago • 0 comments

Our Patron Dr Eccles @bendybrain.bsky.social was on Radio 4 this morning. There is a current discussion in the media at the moment about the Autism and ADHD diagnosis being overused or over diagnosed. Dr Eccles explains why there is an alternative view Have a listen www.bbc.co.uk/sounds/play/...

submitted 19 days ago • 0 comments

The medical model needs to move beyond “exclusive” diagnostic categories & traditional boundaries between body/brain leading to siloed healthcare/education Social model needs to accept the medical need for a diagnostic pathway, support mgt. #CommunityVoice #Hypermobility #Neurodivergent

submitted 21 days ago • 0 comments

The persistent denial of women’s health and scientific needs is profoundly misguided and logically indefensible unless viewed through a lens of systemic subjugation. That is my conclusion and proceeds in other arenas

submitted 23 days ago • 0 comments

Sunday 27th April online Recordings if you register #ADHD summit full day with leading experts

submitted 23 days ago • 0 comments

We believe this too despite best intentions the understanding and research is not in place yet for neurodivergent students

submitted 23 days ago • 1 comment

5 Synaesthesia Artists Who Paint Their Multi-Sensory Experiences rachelbakewellartistcom.uk/2024/08/28/5...

submitted 24 days ago • 0 comments

eventbrite.co.uk/e/the-holist... #ADHD summit with leading experts 27th April Online Bendybrains ADHD hypermobility health Education Delighted to present on Sunday

submitted 24 days ago • 1 comment

We had this very conversation today!

submitted 24 days ago • 0 comments

Do you have a combination of these symptoms or conditions ? Are you believed? You might want to find out why? Join sedsconnective.org #hypermobility #EDS #HSD #neurodivergence

submitted 24 days ago • 0 comments

ADHD online summit with world leading experts 27th April Health Neuroscience Education

submitted 31 days ago • 0 comments

I’m on a Roundtable tomorrow on #Ofsted SEND inspections. Neurodivergent children with health needs are let down in education #attendance #hypermobility What do inspectors need to know to get it right? You can have your view here www.smartsurvey.co.uk/s/ofsted2025

submitted 27 days ago • 1 comment

Community Support Meeting! Do you have pain, fibromyalgia, tiredness, allergies or stomach issues? Are you neurodivergent/have neurodivergent children? Do you have hypermobility (EDS HSD)? No diagnosis/ticket! 7pm - 8:30pm Healthy Farm, Crawley RH10 3NQ www.sedsconnective.org/event-detail...

submitted 27 days ago • 0 comments

Icymi -

submitted 40 days ago • 0 comments

Happy Easter to all those who celebrate it!

submitted 29 days ago • 0 comments

At SEDSConnective, we proudly support all people, of all ages and diversities, affected by hypermobility conditions and neurodivergence. You’re seen. You’re supported. You’re welcome here. Become a member www.sedsconnective.org/membership Join our FB group www.facebook.com/groups/20832...

submitted 32 days ago • 0 comments

Today is World IBS Day! Did you know IBS often affects those with hypermobility, neurodivergence and conditions like HSD, hEDS and MCAS? Do you you know why? What helps you cope with it? sedsconnective.org/post/irritable… Share your experiences and support #IBS #Neurodivergent #Hypermobility #MCAS

submitted 30 days ago • 1 comment