shh-uk.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

You can’t see it, but it’s there. 🦠 Airborne viruses spread in the spaces we work, learn, and heal. It’s time to take indoor air seriously. 🌬️ Join the #SafeAir4All campaign: shh-uk.org/making-th... #CleanAir4All #WorkplaceSafety

submitted 2 hours ago • 0 comments

So today is Day 9 of Gerry's walk along the Camino de Santiago to raise money for Supporting Healthcare Heroes UK. The weather is appalling and he's got some decisions to make. Find out more here: youtu.be/F-9wrffdIRI Sponsor Gerry already here: bit.ly/42cys0R

submitted 2 hours ago • 1 comment

💨 COVID, flu, RSV — all airborne. 🏢 Most UK workplaces don’t legally have to protect workers from inhaling them. 🖊️ Sign the petition to change that: petition.parliament.... #CleanAir4All #WorkplaceSafety

submitted 4 hours ago • 1 comment

PLRC is 5 years old today!!!! If you are able, please consider donating to help sustain #LongCOVID research when it’s needed most. bit.ly/plrc-donate 1/

submitted 17 hours ago • 1 comment

Friends, I don't think this petition to improve basic infection control in hospitals especially is getting the attention and support we need #pwME #ME/CFS # LongCovid Please sign and share!

submitted 20 hours ago • 1 comment

Looking better out there, Ontario! Keep masking as much mingling going on with Passover, Easter, Vaisakhi & advanced voting this weekend. #ElbowsUp 💪🗳️ & masks up 😷 to keep Canada strong & free from fascism & viruses like Covid from spreading #ONpoli #cdnpoli lookerstudio.google.com/embed/report...

submitted 1 day ago • 0 comments

There are multiple studies now that show this—the only question is whether we'll ever bother to make the necessary improvements to mitigate what damage we can. Certainly not with this administration, but at the very least, I wish more people paid attention to studies about Long COVID.

submitted 20 hours ago • 1 comment

World ME Day 2025: Six Myths and Facts Everyone Should Know About Myalgic Encephalomyelitis (ME) aka #ME/CFS #pwME Post author:World ME Alliance worldmealliance.org/2025/04/worl... (Available in several languages)

submitted 20 hours ago • 0 comments

The very fact it went as far as the Supreme Court probably suggests that the law was poorly drafted in the first place. So maybe the solution is....amend/fix the law? Not implement it pedantically in all its flawed glory But again, 𝘐'𝘮 𝘯𝘰𝘵 𝘢 𝘵𝘳𝘢𝘯𝘴𝘱𝘩𝘰𝘣𝘦 𝘴𝘰 𝘸𝘩𝘢𝘵 𝘥𝘰 𝘐 𝘬𝘯𝘰𝘸

submitted 23 hours ago • 0 comments

submitted 21 hours ago • 6 comments

We're reviewing our 'can't follow fast verbal instructions' card. We'd love your feedback, whether you are someone who might use it or be shown it. ● Would you find this helpful? ● Is the info clear? ● Are any key points missing? ● Any improvements to suggest? We look forward to hearing from you!

submitted 21 hours ago • 0 comments

5% of U.S. adults. That’s the current estimate from the CDC. And it’s not a footnote — it’s a five-alarm fire.” Dr. David Putrino, a leading Long Covid researcher at Mount Sinai, is sounding the alarm. He warns that without immediate action, Long Covid could become a national epidemic.

submitted 23 hours ago • 1 comment

"Long COVID: Yes, let’s remember there are still pandemic issues" From the official student magazine of #UWaterloo, Imprint: uwimprint.ca/long-covid-y...

submitted 23 hours ago • 2 comments

“Trial By Error: New Zealand GP Group Disavows Lightning Process Endorsement; BBC’s Con or Cure Takes Skeptical Look at LP [Lightning Process]” (16 April 2025) By David Tuller, DrPH @davetuller1.bsky.social virology.ws/2025/04/16/t... #MEcfs #LongCovid

submitted 23 hours ago • 1 comment

I have now had COVID five times over as many years. I’m pretty sure it was the 2022 bout that hit us with Long Covid. It is very real. I have no short term memory. I can’t remember if my dog peed fifteen seconds after she might have. I lose trains of thought. I can’t remember words. It’s terrifying.

submitted 23 hours ago • 3 comments

Every covid infection, even your first time, and even if your symptoms are mild, can lead to #LongCovid. And everytime it always-ALWAYS - leads to loss of IQ points Trump is removing money for research, for healthcare, and for support of sufferers. Mask up vax/boost/ventilate

submitted 21 hours ago • 1 comment

As Lizzy illustrates so powerfully, PIP is vital for so many #pwME #pwLC. With so much concern at proposed welfare reforms, it’s been good to start work with @joplatt.bsky.social and @actionforme.bsky.social to better understand issues, and how to mitigate, with joint APPG ME/LC meeting next week.

submitted 21 hours ago • 1 comment

UK: ME/CFS & Long COVID Stocktake documents (obtained under FOI from NHS England) 1drv.ms/b/s!AoHfldsp... 1drv.ms/b/s!AoHfldsp... #LongCovid #MEcfs

submitted 21 hours ago • 0 comments

Brain fog IS a symptom of Long Covid! Normalizing neurological damage, what a time to be alive... 🤦‍♂️

submitted 21 hours ago • 0 comments

#LongCovid, #MECFS and #PAIS are medical and ethical emergencies. Though many people fail to recognise this as such. On the ethical issues, our website with the video recordings of the talks held at the #postviralethics conference is now online!! 👇 www.ru.nl/en/about-us/...

submitted 21 hours ago • 3 comments

#CovidIsNotOver #LongCovid

submitted 21 hours ago • 0 comments

📢Higher prevalence of long COVID observed in cancer survivors A survey found cancer survivors are observed to have higher odds of long COVID, particularly younger survivors. Cancer survivors may need more vaccine doses to achieve a significant reduction in long COVID odds.

submitted 20 hours ago • 1 comment

Level up your case study writing with our interactive workshop with the Royal Literary Fund. Led by published writer Clare Shaw, you’ll learn a range of techniques in storytelling, structure, effective language and more! 📅 22 May 2025 ⌚ 14:00-16:00 📌 Online Book now: buff.ly/O3YOwo5

submitted 23 hours ago • 0 comments

It’s 2025. Why are we still getting sick at work from preventable airborne infections? 📢 This petition could make clean indoor air a legal requirement in UK workplaces. 🖊️ Sign now: petition.parliament.... #CleanAir4All #WorkerSafety #AirborneProtection

submitted 1 day ago • 1 comment

NNOOOO!!! This is a HUGE loss to the nutrition world. But also potentially to the #LongCovid #MECFS world - Kevin and I had discussed some ideas* around metabolism and appetite in these patients. His lab would be uniquely placed to answer some crucial questions

submitted 1 day ago • 2 comments

Long Covid has brutalized my existence for over 4 years. I recently used a pregnant massage therapist who wasn't wearing a 😷. When I explained briefly the effects of #LongCovid she went on to reference the government spraying us with covid. These people procreate AND vote. I want off this 🏝️. 😫🤬

submitted 1 day ago • 1 comment

Vaccines are not a substitute for N95's. They're one imperfect layer of a comprehensive strategy. Our vaccines don't prevent infection, transmission, or Long COVID, and the protection they do provide wanes rapidly with time. They're an airbag at best - not a pass to 2019.

submitted 1 day ago • 0 comments

“One of the reasons we think that may be the case that more people of color and more people who are low wealth may have symptoms of long COVID is because they did have a higher burden of COVID during the pandemic”

submitted 1 day ago • 0 comments

"“We’re not taking any steps to reduce the risks of a nationwide epidemic,” he said in an interview with NY1, saying he is alarmed by the latest data on people diagnosed with long COVID and the lack of awareness of what seems to be happening.". ny1.com/nyc/all-boro...

submitted 1 day ago • 0 comments

The only way to prevent long COVID is to avoid getting COVID. This is the message public health should be delivering to the masses. It’s dreadfully unfair that they’ve allowed a novel virus to go unmitigated, creating a mass disabling event where each infection is a dice roll with disability

submitted 1 day ago • 14 comments

What is our new government foing about Covid & Long Covid? @rthonwesstreeting.bsky.social @jackabbott.bsky.social Seems like 🦆all @helenmorganlibdem.bsky.social @carladenyer.bsky.social @lsrplaid.bsky.social @johnswinney.bsky.social I am CEV - nobody has told me that I'm not. Covid is endemic.

submitted 1 day ago • 0 comments

How does #COVID impact the brain? From bench to bedside, my presentation with @davidjoffe64.bsky.social for the @thewhn.bsky.social is available on YouTube now: youtube.com/watch?v=soJX... #NeuroCovid #LongCovid

submitted 1 day ago • 16 comments

Really important survey. Thanks @Thereforme and @oonagh_cousins Govt proposals could see most people receiving benefits and their carers loosing the majority of their income. This is chance to be heard. #ME #LongCovid Please do share it around and fill it in (5-10mins) if applicable.🙏

submitted 1 day ago • 2 comments

If I wanted the vote of 250,000 ME/CFS patients and carers, I’d probably follow the recommendations of my very own inquiry into Long COVID from 2023. But nah. #2YearsStillWaiting @markbutlermp.bsky.social #auspol

submitted 1 day ago • 0 comments

No one would really believe the violence of #ME or #LongCovid unless they or someone very close suffered from it. No treatment, little research. A lot of people are scared to believe it and retaliate by saying it’s due to false beliefs and negative thoughts. Thank you Vlad for being transparent 💙🫂

submitted 1 day ago • 0 comments

Swedish trial; endpoint enrolment: 40 HBOT, 39 controls; no convincing evidence either way BMJ Open, 17 April 2025: bmjopen.bmj.com/content/bmjo... #hyperbaricoxygen #HBOT #LongCovid

submitted 1 day ago • 1 comment

‚(…) articles in recent months claiming that social media are driving diagnosis of ADHD and accounts of chronic illness, and books by doctors (yes, even doctors) hypothesising that the problem facing an increasingly sick population is actually “overdiagnosis”.‘ #LongCovid

submitted 1 day ago • 0 comments

#disability #stopthecuts #dpac #disabilitybenefits #longcovid #mentalhealth #pwMEcfs

submitted 1 day ago • 1 comment

I would like to present a challenge on here to not read or listen to the news for 1 week starting from today but instead read research. Read campaign posts from scientists talking about COVID. Read about climate change and at the end of the week tell me what you may have discovered. 🧵

submitted 1 day ago • 1 comment

I don’t believe the majority of the press is giving a fair and balanced view anymore. I think they want to bury the truth on COVID/Climate change. It’s very depressing and because it’s so biased, anyone screaming facts into the void looks like a conspiracy theorist. I have seen this bias so strongly

submitted 1 day ago • 4 comments

Many on here can see some of the press lying about Brexit so why not read posts from campaigners on here on Covid and climate change because I can assure you, you are not hearing the full facts. I have been campaigning in Covid for 5 years.

submitted 1 day ago • 1 comment

As some of you will know @digitalgerry.bsky.social, one of our trustees, is walking the Camino de Santiago to raise funds for us. Here's a video of him starting out on Day 8: youtu.be/0ztVAU4TjC8 Remember you can donate via his JustGiving page: bit.ly/42cys0R

submitted 1 day ago • 2 comments

Let’s say this loud and clear: Exercise is not the goal, recovery is the goal so one can exercise. Listen to this man - he’s a world leading expert on PEM/PENE #ME #Longcovid

submitted 152 days ago • 15 comments

UK friends, there's a petition that I'd really like to see supported so that it gets discussed in Parliament. It demands better air quality & PPE standards in health & social care. It would help every one of us but needs more signatures before May 11th. Link in replies ✍️ ⤵️ 1/thread

submitted 2 days ago • 2 comments