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susand1408.bsky.social
I have #MECFS, Fibromyalgia, Peripheral neuropathy, Asthma, POTS, Vasovagal syncope and a ton of other things. Mum of 1 Son, Husband of 20 yrs
139 posts 108 followers 141 following
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Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades. His message: “Best wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weir”

submitted 109 days ago • 8 comments

Good morning. 1st December, flashback time!!! Happy Sunday #gardening 🌱

submitted 109 days ago • 5 comments

Managed the trip to B&Q. Literally walked in door to the paint. Picked the paint. Walked out. Now in bed completely exhausted. They had their Christmas decorations but too exhausted to look

submitted 110 days ago • 0 comments

Going and try and go for a trip out today. Nothing exciting going with hubby to get paint. Then straight back to bed.

submitted 110 days ago • 0 comments

Really worried about my son. He was vomiting again last night. Dizzy spells and stomach pain. Couldn't come home for 2 hrs this morning till things settled down. Having at least 2-3 attacks a week now & fatigue is huge. Blood test for Cushings isn't till 13th Dec

submitted 111 days ago • 0 comments

Flashback spring extravaganza! Have a great evening… it will soon be spring 🤔😂

submitted 118 days ago • 3 comments

Radiators upstairs weren't heating up properly. They needed bleeding. Upstairs a lot warmer since. Luckily hubby was home as my fingers couldn't turn the key.

submitted 119 days ago • 0 comments

‘this is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism’ #MECFS medium.com/@abrokenbatt...

submitted 119 days ago • 1 comment

Please be careful people. I have had quite a few direct messages off people that seem like scammers. Take care and don't interact if you feel uncomfortable.

submitted 119 days ago • 0 comments

We don't have a radiator in the hallway as it's going to be decorated. This is having a huge effect on the temp of the house. We really need new windows but will have to save up next year for them.

submitted 119 days ago • 0 comments

This is what I get after Cosmo has been out in the snow. It's going to be a very very long day.

submitted 121 days ago • 0 comments

It snowed ❄️

submitted 122 days ago • 0 comments

Christmas is coming!🌲🎅 If you're looking for a special present for a nature lover in your life, I have exclusive books, calendars, mounted prints, jigsaw puzzles, playing cards & more! 😀🐦 Here's my shop; carlbovis.com/shop-3 Help a small business this Christmas! 🙏❤️

submitted 127 days ago • 9 comments

Scored a 5 on my HRV this morning. I have used up 11.6 of my 12 pace points however haven't had a single vasovagal syncope attack today. Have had a niggling headache all day that is turning into a migraine above right eye.

submitted 122 days ago • 0 comments

My dad is picking up No.1 son today. Hubby was going to take him this evening but with the predicted snow we thought it would be safer. Painter n decorator coming to quote so will have to get dressed today.

submitted 123 days ago • 0 comments

Did my second and last art and crafts fayre of the year yesterday. Was really busy in the morning, but awful in the afternoon. So grateful to those who came and bought from me. Now back to commissions. #art #drawing #wildlife #somerset

submitted 123 days ago • 1 comment

To all scammer males - I am chronically ill and happily married. Do not try and get me into a conversation. I don't want to know you or your fake picture!

submitted 123 days ago • 0 comments

🧵 so instead of resting we put the insides of the cupboard together and tidied up. Then brother came for a visit. Then man came to quote. No longer capable of sitting in shower so currently lying in the bath & hubby will have to get me out.

submitted 123 days ago • 0 comments

Today didn't go as planned. Next doors car alarm went off at 5am. Then planned a lie in but dog had a different idea. Hubby decided we should get quotes for decorating as I am not capable & he has done his knee in. So spent morning sorting that out. One came this evening. 🧵

submitted 123 days ago • 0 comments