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synthymama.bsky.social
Be Kind | Global Health Research-Governance| Bioethics-Genomics, Data Science, Infectious Disease| I believe in love| Hugger-in-chief| Social Vegan|
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www.nature.com/articles/d41... #GlobalHealth #HealthEquity

We need to develop more holistic, inclusive, socially just & ecologically sustainable approaches to health, science & environmental stewardship for the well-being of all life on Earth. Article: link.springer.com/article/10.1.... @biomedcentral.bsky.social

"These can be appealing qualities in the classroom, of course, but overemphasizing them can undermine the learning of students who are inward-thinking and easily drained by constant interactions with others." www.theatlantic.com/education/ar...

If more academics dropped the main character syndrome, the university sector would be a much better place. The more senior you become, the more you should see your role as a facilitator and assister. You may still need to lead, but it's to lift others up, not yourself.

"My ideas matter more than how I sound". Sometimes people struggle to believe something said with an unfamiliar accent. As an international scholar, Ogochukwu Uweru says he is learning to speak up-accent and all. | Science | AAAS www.science.org/content/arti...

In this paper, we argue that addressing ethical issues in #DataScience health research and #genomics requires a holistic social contract. Thanks to @hastingscenter.bsky.social Report for considering & publishing our work (onlinelibrary.wiley.com/doi/10.1002/...).

Be Kind #tuesdaymotivations #BeKindAlways

🚨: New publication « Data management and sharing » in @jclinepi.bsky.social with Claude Pellen, @synthymama.bsky.social, Anna Catharina Armond, Ulrich Mansmann, Maximilian Siebert. A 🧵.

How much do people around the world trust scientists? "Most people have a relatively high trust in scientists. People want scientists to take an active role in society and policymaking." www.nature.com/articles/s41...

"One Humanity, Many Genomes" is a reminder of our shared evolutionary origins & African heritage-A call to explore the vast diversity of genomes & strive for an equitable genomic medicine agenda worldwide. Ambroise Wonkam proposes a 5-point agenda www.sciencedirect.com/science/arti....

“It’s going to take me longer, but I will get there. My plans have not changed, don’t give up, don’t step away from mentorship” Early-career researchers describe how they juggled workloads, emotions and finances after having children. https://go.nature.com/4gSIfhj

A major study led by the UK government and WHO quantifies the positive impact that the arts and heritage have on physical and mental health. www.theguardian.com/society/2024...

Many workplaces have parties or team meals to celebrate the end of the working year, but some show true appreciation by cultivating group traditions. Nature asked group leaders to explain these, and how they thank colleagues for their hard work. #AcademicSky

Eight years ago, a budding scientist gave a commercial airline pilot a gift that would link the two for life. Since then, they'd met in person and linked up on social media. But when she boarded a flight a week ago, she didn't expect to see him. Then an announcement came over the PA system.

New on the #EthicsBlog >> Were many clinical trials during the #COVID19 pandemic unethical?

We asked a few people what genetics is/means in their home language. Here is their response. We are adding more African languages. If you'd like to contribute to this resource, please let me know t.co/tqP4qHjteF

Still time to register for our #TARGetAMR online launch event taking place on Friday at 12pm, with guest speaker: Prof. Adrian Egli, University of Zurich. Sign up now: targetamr.org.uk/hdrevents/ta... #Genomics #AMR #TeamScience

🎯Welcome to Bluesky! @bsky.app “If I wanted to thrive in academia, I would need to actively cultivate networking habits.” @science.org AHALYA SURESH, DEAKIN UNIVERSITY #scisky #PhD #Academic #news

We report on the analysis of 37 data protection legislation in Africa, present key principles, data process, rights of data subjects, legal grounds for cross-border data transfers, & propose ethical & technical strategies to enhance compliance. health-policy-systems.biomedcentral.com/articles/10....

I'm happy to announce that my book, "The Foreign Gaze: Essays on Global Health", is now out! You can order the print copy and download the e-copy (open access) here: www.editions.ird.fr/produit/728/... The book comes with a playlist for your listening pleasure: open.spotify.com/playlist/5K5...

Very cool opportunity from the #Epilepsy Foundation. They are launching a Research Ambassador Program to strengthen connections between the epilepsy community and research, providing insight into the processes of clinical research and new therapy development. www.epilepsy.com/research-fun...

Some newer AI-powered science search engines can already help people to produce narrative literature reviews, but some researchers fear that AI tools could lead to more sloppy, inaccurate or misleading reviews polluting the literature. Read the Nature feature. 🧪

We've officially launched the #TARGetAMR network! Join us on our mission to create a #Transdisciplinary network to explore how #Genomics can combat #AMR. Together we can make a difference: Sign up now: targetamr.org.uk #AntimicrobialResistance #GlobalHealth #SaveLives

‘What’s your pain right now?’ Sickle cell, loss, and survival in America www.statnews.com/2024/11/11/c... via @statnews.bsky.social

Justifications and acceptability of coercive public health measures in the COVID-19 response in South Africa: a case study of the jurisprudence of human rights cases - By Safura Abdool Karim | Monash Bioethics Review link.springer.com/article/10.1...

Dr. David M. Levine, former Johns Hopkins professor, dies: Dr. Levine was a founding core faculty member of the Berman Institute of Bioethics. www.baltimoresun.com/2024/11/10/d...

The challenges of new requirements toshare individual participant data for US federally funded clinical trials carried out in other countries. What needs to be addressed to ensure equitable data sharing? @bmj.com t.co/ZWEj4nG2vR www.bmj.com/content/386/...

‘Not a free-for-all’: Indigenous communities want limits on how their data are shared | Science | AAAS www.science.org/content/arti...

Our 5th PUBGEM-Africa science for society virtual café is on the theme "Shaping the Future of Genetics and Data Science in Medicine in Africa." Date: Thursday 22nd August at 15:00 GMT. Register at zoom.us/webinar/regi....

Brazilian COVID-19 malpractice case: A physician had shared a protocol for managing COVID-19 cases with a warning: "Do not inform patients or their families about the drugs or the program." Classic case study for research & medical ethics. www.thelancet.com/journals/lan...

Our research project is preparing for a series of science & society cafes (virtual & in-person) on genomics, data science & health research. Sign up to get more information and join us for thought-provoking discussions on bioethics, genomics and data science.

Bioethics friends, don't forget about www.diversebioethics.org when thinking about job postings, speaker invites, potential collaborators, recommendations for media contacts, etc. Also, it's time for a list refresh. Who's missing? 📣 Please continue to spread the word. 📣

To be yourself is a revolutionary act. Be yourself

Great to see this workshop take off following a year of online meetings with sickle cell disease patient support groups across Africa. Interesting discussions on a draft framework on how to equitably involve patients as partners in health research. Thanks for the support @SickleInAfrica, CERA ELSI

The time that children and adolescents spend interacting with screens is associated with both benefits and risks to education and health, but these effects are small, according to a review of 102 meta-analyses published in Nature Human Behaviour. go.nature.com/49C6EEA 🧪

Webinar: Kadija Ferryman, PhD, "Ethics and Healthcare Artificial Intelligence" - Nov 14, 7-8p EST. Open to all, link for more info & free registration to join via Zoom | Hot Topics in Research Ethics bioethics.jhu.edu/events/hot-t...

Interested in ethics and medical imaging, join us in person or online. For virtual attendance see t.co/z6GJ1uYwmX. In-person is at the DSI_Africa meeting, Kigali-DM for details.