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tanialt.bsky.social
Founder of @spcialndsjungle.bsky.social, writer, #autistic, #SENDparent, #SENDsky #EhlersDanlos #Disabled #ChildrensRights, Devoted Grandma #EHCP, ambulatory #wheelchair user
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NEW POST: Spotlight on SEND funding: Education Committee inquiry MPs refuse to be taken in by anti-parent tropes. SEND parent and journalist @samcarlisle.bsky.social has summarised the drama for us… www.specialneedsjungle.com/s...

Does your child (in England) have SEND but does NOT have an #EHCP? @contactfamilies.bsky.social & #IPSEA want to know more about your experiences of getting support for your child or young person’s learning. This 5-minute survey closes soon: Tuesday 4 March at 9am: www.surveymonkey.com/r/SENSu...

This Special school leader agrees. My funding settlement is increasingly disconnected from the cost of safely & effectively providing what our pupils require. There is something deeply troubling both nationally & locally about placing legal requirements upon schools & then choosing not to fund them.

PoTS, or Postural Orthostatic Tachycardia syndrome, seriously affects my capacity, life experience, and mobility, along with its partner in crime, Ehlers Danlos syndrome. Pre-pandemic, few people had heard of it and patients, mostly women, were told it was simply "anxiety", stress, or hormones.

#disability

I have succumbed to the tummy bug that’s ravaged through the family… if you’ve emailed @spcialndsjungle.bsky.social your response may be even more delayed than usual…

If you are multiply neurodivergent, then being monotropic will likely impact all intersections of your life & all overlapping differences you may experience. I am curious how this impacts you -possible positives & negatives. Feel free to share. Find out more: autisticrealms.com/monotropism-...

NEW POST: Alternative Provision, SEND, and Inclusion: AP expert and SEND parent, @phoenixedsarah.bsky.social asks, in an inclusive system should alternative provision even need to exist? www.specialneedsjungle.com/a...

On this very special episode of Accessible Buffalo, I attempt to tackle the big apple in my wheelchair. It does not go well www.katrinamaeleuzinger.com/post/i-nyc-b... #disabledcommunity #disabledandcute #spoonie #wheelchair #nyc #dnd #statueofliberty #unsleepingcity

🧵An important part of the primary experience is having a lovely time- adults ringfencing the unique state of childhood and ensuring that primary is a glorious place to be little. Playful and joyful are not the antonyms of high standards and aspiration.

A couple of fab books courtesy of JKP to read and review — @spcialndsjungle.bsky.social will be offering the @sendmattersuk.bsky.social book as a giveaway too!

Most Friday afternoons you’ll find me at my grandson’s school helping with his yr R class’s reading. These “pandemic babies” are bright and work hard at their learning—it’s a real privilege to be able to see their progress (even if the little chairs are a back killer 😆)

Evergreen cartoon

This is bananas. Access to Work is a scheme that specifically helps disabled people work in paid employment. The minister's comments suggest too many people know about it so it needs paring back - and responsibility shifted to employers, who as we know just lurve more responsibilities

Looking forward to listening to the afternoon session at the CYPNow /TCES #LostLearning conference before speaking about SEND issues on the last panel

This is very interesting research

IT IS A COUP says @carolecadwalla.bsky.social and I believe her broligarchy.substack.com/p/it-is-a-co...

The first answer contains my stat of the week... In the 20 days since Trump took office, 41 different legal cases have been launched against his administration. So far, none have lost.

NEW POST: What happened when parents took their councils to court over SEND Safety Valve agreements? Jen Smith, a Bristol parent carer has filed a report to SNJ on proceedings www.specialneedsjungle.com/p...

You can tell when the lobbyists have paid a visit: new greasy SEND euphemism just dropped, 'cohort-based EHCPs' DfE response parks the bus questions-statements.parliament.uk/written-ques...

This makes for a difficult listen but is so important, the brilliant @ellychapple.bsky.social and myself on The Skies We're Under podcast talking about Ella's human rights claim and the impact of unlawful care proceedings on their family open.spotify.com/episode/2rRf...

NEW POST: What happens when the LA wants to cease to maintain your young person's EHCP? Today's post gives you the law and some top tips from senior SEN solicitor, Nicole Lee www.specialneedsjungle.com/c...

It's #FeedingTubeAwarenessWeek! PINNT offer advice to parents of children being tube fed, and is a free membership group for people receiving artificial nutrition. @gutscharityuk.bsky.social also help to raise awareness and reduce the stigma surrounding feeding tubes.

“Every parent wants the best for their child. Every parent knows their child best. But most parents haven’t been teachers, and may not know why we do these things in classrooms. They’ll only know it, if we talk to them about it” sendmatters.co.uk/2025/01/29/s...

So it’s Feeding Tube Awareness Week - an opportunity to shed light on a topic that is personal to me. My children are tube fed and there are many misconceptions about it. Please read my eldest’s perspective. helen2tubies.wordpress.com/2022/10/29/a...

Some people can find connecting with people with profound and multiple learning disabilities difficult. They worry about getting it wrong, looking silly and so on - what can we do about it? Click to watch the full chat (it's just a few mins long). youtu.be/aEnNc9DLDiw

A round up from me of the inquiry and wild claims about the #SEND Tribunal

NEW POST: Parent campaigner @rachel.stopsafetyvalve.uk petition to scrap the government’s #SEND #SafetyValve scheme was cancelled when the election was called. Today, her campaign is relaunching the petition to prevent more disabled children being harmed: www.specialneedsjungle.com/p...

Solving the #SENDCrisis: The First oral hearing for the Education Committee #SENDInquiry is tomorrow morning. It starts at 10am and SNJ's Founder and Co-Director, @tanialt.bsky.social is giving evidence in the 2nd session from 11am. Watch the whole hearing: parliamentlive.tv/Event/Inde... #SENDSky

The prevalence of hypermobile #EhlersDanlos syndrome at a gender-affirming primary care clinic: 2.7% of the 2180 #TGD patients had a diagnosis of hEDS. Sample had high rates of comorbidities, plus anxiety, depression, or ADHD, consistent with emerging research: journals.sagepub.com/doi/pdf/10.1...

NEW POST: Should “SEN Support” be made a legal duty to make it work children with SEND? And what would that look like? @catrionamoore.bsky.social at IPSEA and Imogen Steele @contactfamilies.bsky.social lay it out for us www.specialneedsjungle.com/s...

NEW POST: One NHS trust has come up with a “novel” way to cut neurodiversity assessment waiting lists: Create more barriers to getting on the list in the first place. @rachel.stopsafetyvalve.uk explains more www.specialneedsjungle.com/c...

Disability benefits cuts would be 'devastating' & 'increase absolute poverty', Labour warned Labour continues to pledge to cut the disability benefits bill, despite a High Court ruling which found that the previous Gov’ts consultation into the plans was unlawful www.bigissue.com/news/social-...

If you’re new here you can find our directors here: @tanialt.bsky.social @renatawatts.bsky.social @sharonlsmith.bsky.social @gilliandoherty.bsky.social & team members @captaink77.bsky.social @catrionamoore.bsky.social @rachel.stopsafetyvalve.uk Why not give them a follow! #TeamSNJ