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thattillyrose.bsky.social

🩺 Snippets from my chapters of 20 years of life as the #patient #chronicillness #eds 📲 Full chapters on Instagram @thattillyrose 🌼Founder @thatpatientcollective 📖 Pre-order ‘Be Patient’ : https://linktr.ee/bepatientbook

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On #WorldBookDay2025 I am so excited to share these incredible endorsements for my upcoming book ‘Be Patient - life, loss and laughter from behind the hospital curtain’ Out 17th April, available to pre-order NOW: linktr.ee/bepatientboo...

submitted 28 days ago • 0 comments

Delighted to be collaborating with @addisonsdisease.bsky.social to share my upcoming book ‘Be Patient’ for World Book Day 2025! Part 2 of ‘Be Patient’ covers my experience or living with adrenal insufficiency. This book is part of my wider mission to impact patient care 🌼📖💪

submitted 29 days ago • 0 comments

I learnt so much on my @cbcreative.bsky.social memoir course and seeing how many successful authors had gone onto receive publishing deals after these courses, made me keep believing I could do it! Curtis Brown are now offering a scholarship for a low income writer ⬇️

submitted 36 days ago • 0 comments

From Ig chapter 494: Scroll Hole #scrollhole #chronicillness #chronicallyill #raredisease #diagnosis #pots #eds #ehlersdanlos #vascularcompressions #medicine #chronicillnessawareness

submitted 48 days ago • 0 comments

When you meet another #patient who actually knows what you are going through 💛. From Ig Chapter 485: Patient Pals #chronicillness #chronicallyill #raredisease #medicine #eds #pots #vascularcompressions #chronicpain #patientlife

submitted 49 days ago • 1 comment

From Ig chapter 4️⃣6️⃣9️⃣ Bicycle: #chronicillness #raredisease #rarediseaseuk #chronicillnessrs #chronicallyill #eds #eherlsdanlos #pots #me #cfs #undiganosed #belief #chronicillnessmemes #motitvationalquotes

submitted 52 days ago • 0 comments

From Ig chapter 497: Heal #healing #healingmantras #reiki #reikihealer #energyhealing #chronicillness #heavymetal #nutrition #motivationalquotes #chronicallyill

submitted 53 days ago • 1 comment

From Ig chapter 4️⃣8️⃣2️⃣: Belief #chronicillness #chronicallyill #nhs #patientlife #diagnosis #medicine #healing #belief #motivationalquotes #healingmantras #book #author #eds #ehlersdanlos #vascularcompressions #avcs #chronicfatigue #pots #ME #firbomylalgia

submitted 55 days ago • 1 comment

From Ig chapter 4️⃣9️⃣6️⃣ ‘Comfort’: #chronicillness #chronicallyill #nhs #motivationalquotes #patientlife #pots #eds #ehlersdanlos #vascularcompressions #gastrparesis #bepatient

submitted 56 days ago • 1 comment

From Ig chapter 4️⃣9️⃣6️⃣: #chronicillness #pots #eds #chronicallyill #mcas #me #mcas #gastroparesis #ehlersdanlos #vascularcompressions #mum #women #femaleempowerment #motivationalquotes

submitted 60 days ago • 0 comments

From Ig chapter 4️⃣9️⃣4️⃣ Nurse: #chronicillness #chronicallyill #nursing #quotes #eds #vascularcompressions #patientlife

submitted 61 days ago • 0 comments

From Ig chapter 491: #chronicillness #chronicallyill #chronicillnesswarriors #eds #ehlersdanlos #avcs #raredisease #friendship #kindnessquotes

submitted 64 days ago • 2 comments

From Ig Chapter 495 - Cry #chronicillness #eds #ehlersdanlos #vascularcompressions #health #patientlife

submitted 65 days ago • 0 comments

💙💙💙

submitted 131 days ago • 0 comments

I share chapters on my 20 years of life as the #patient over on my Instagram www.instagram.com/thattillyros... Maybe I’ll start sharing them here too 📖✨

submitted 131 days ago • 1 comment