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thelizarmy.bsky.social
Be one, do one, teach one. Co-Investigator for opennotes.org. Living with brain cancer since 2008. Bringing punk rock to health care. Blog: https://thelizarmy.com
142 posts 2,535 followers 382 following
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To make yourself less valuable to Meta, @lastweektonight.com recommends EFF's Privacy Badger extension and Surveillance Self-Defense guide to disable mobile ad tracking on your phone: www.johnoliverwantsyourraterotica.com

submitted 2 days ago • 27 comments

"At present, his main concern is that he has one week's time until he defends his PhD thesis, & he is hopeful to have better pain control & less nausea in order to do this." In my feelings as I (perhaps inadvisedly) read my husband's chart for the 1st time. It only took me 18 yrs to get this brave.

submitted 6 days ago • 3 comments

👀 Who was at #ViVEvent? OpenNoters @cait-desroches.bsky.social and @chethan.bsky.social took a break to grab some Nashville Hot Chicken 🍗🔥 with two local research collaborators—Bryan Steitz and Trent Rosenbloom from Vanderbilt! Check out the research here: 🔗 www.opennotes.org/publications...

submitted 8 days ago • 1 comment

🗺️ Our recent study mapped the evidence that exists regarding the delivery of palliative and end-of-life care for adolescents and young adults living with cancer 👇Check it out: lnkd.in/gRkp6QWF #AYACSM #AYACancer #TYACancer #BCSM #BTSM #CancerResearch #HPM #PalliativeCare

submitted 8 days ago • 0 comments

“Health records fundamentally belong to patients.” An engaging discussion with Dr Aditi Singh and @thelizarmy.bsky.social on optimizing the EHR to be more useful to providers and more patient-centered. 🎙️A new @ascocancer.bsky.social podcast. Listen and subscribe. ascopubs.org/do/optimizin...

submitted 9 days ago • 1 comment

In a surprising twist, my most recent interaction with Reviewer #2 was quite plesant! Thank you, unnamed hero. You are changing the legacy of a much stigmatized community. #academicsky

submitted 14 days ago • 0 comments

In honor of International Day of Women and Girls in Science, listen to @thelizarmy.bsky.social's patient story. ascopubs.org/do/overcomin... “As a person living with a brain tumor for the last 17 years, I’m a chronic research participant." #WomenInScience #medsky #btsm #cansky #February11

submitted 15 days ago • 0 comments

@shawncarey42.bsky.social @mcintose.bsky.social, @stuartselby.bsky.social, Guy Lipof & I met tonight discussing the 2025 version of #btsm chats. The 1st Bluesky #Btsm chat will take place on 3/30..! Follow @btsmchat.bsky.social for updates, details, and more

submitted 21 days ago • 0 comments

We did TWENTY focus groups with patients, care partners, and clinicians to understand what they think about having sensitive information documented in the EHR. I think it's pretty timely!

submitted 21 days ago • 0 comments

✅ I started an #AYACSM (Adolescent and Young Adult Cancer Societal Movement) starter pack! ⭐ This is the beginnings of gathering all of us around the globe 🌍 who are involved in #AYACancer work/advocacy 💡 Please share and let me know who you would like to have added! go.bsky.app/Vfp4JWE

submitted 39 days ago • 13 comments

Transparency is always the best policy. 👇👇👇 #opennotes #sdoh

submitted 21 days ago • 0 comments

Academic decision algorithm v 7.0- a testament to #SocialMedia peer review, as all versions past 1.0 were improved upon by feedback from colleagues on social media

submitted 103 days ago • 15 comments

This is worth a listen open.spotify.com/episode/2SIS...

submitted 24 days ago • 6 comments

🧪 A @ai.nejm.org study found that GPT-4 translation of discharge notes significantly improved patient understanding, especially for Black, Hispanic, and older patients. AI-driven readability could help close health literacy gaps. 🩺💻 tagging: @downing.bsky.social @thelizarmy.bsky.social

submitted 27 days ago • 1 comment

Remote coworkers meeting up is a magical thing. 🪄 @thelizarmy.bsky.social and Sarah from our communications and dissemination team "met" IRL for the first time yesterday in Washington, DC. They tried to make sense of the news and plotted their next moves on social media. #medsky #cansky #btsm

submitted 28 days ago • 0 comments

NEW: Trump administration cancels health tech meetings (ASTP/ONC's HITAC, for the real heads out there) Reminder that my colleagues & I encourage you to reach out if you want to talk anything HHS or ONC-related. I'm btrang.01 on Signal & my email is on @statnews.com

submitted 29 days ago • 0 comments

So appreciative of my scientific community and colleagues, who I now consider dear friends. Loved seeing Liz and Cait IRL for an important funded project meeting. @thelizarmy.bsky.social @cait-desroches.bsky.social #doingthework #nextneededthing

submitted 29 days ago • 1 comment

How does a patient advocate cash in on all the CME credits I’ve earned over the years? 🤣 #medsky

submitted 35 days ago • 2 comments

Attention patient advocates (including care partners): Who are the cool #palliativecare advocates these days? Has anyone at @aahpm.bsky.social yet figured out a patient scholarship program for their society? Asking for friends. #pallisky #pallonc

submitted 35 days ago • 6 comments

I have started #writing backwards for my #PhD papers, and I have noticed a clear improvement in my sentence structure, grammar, and flow. I never thought about starting with the #conclusion, but now that I have, I am not going back — only backwards! I highly recommend doi.org/10.1007/s429.... 🧪

submitted 36 days ago • 1 comment

Our family will honor Dr. King's legacy this weekend by volunteering with @comfortcases.bsky.social. Our beginnings began through a loving foster family and adoption. I would repeat this journey without hesitation. Organizations need your support year-round. Honor #MLK through love.

submitted 40 days ago • 1 comment

Anyone else here waking up between 3-5am rethinking every figure you submitted with your manuscript, and realizing there was a better way to communicate that information had you gone a different route? Or is it just me? #researchsky #academicsky

submitted 40 days ago • 1 comment

Any @opennotes.org fans out there? 👋 We’re working on so much new stuff that it has necessitated a major website redesign. 😅 Its a big/fun challenge for a #healthcomms #scicomms person like me. What do you want to see MORE OF at opennotes.org? #opennotes

submitted 40 days ago • 1 comment