thezebraalliance.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

New #research from #CUAnschutz is the first to identify metabolic defects in Dravet syndrome, paving the way for future new treatment options for children with the condition. The findings were recently published in #epilepsia. 🗞️

submitted 1 day ago • 0 comments

This goes for all w/ #BipolarDisorder: "If conversations get heated, anger ‘turns on,’ or stimulates, this important part of the brain ... resulting in communication problems." : Lack Tact / ToM deficit / Lack Social Graces = Folks with BP need to be mindful also. Text Tip: Use emojis for tone 🙃🙂

submitted 1 day ago • 1 comment

➡️ As of April 11, 2025, the measles case count in the Southwest U.S. outbreak, which began in January, is 643. ➡️ Chihuahua, Mexico has seen 227 cases since February. The genotype in Chihuahua, D8, is linked to the outbreak in Texas. Read the latest measles update by our students and faculty ⬇️

submitted 1 day ago • 0 comments

"The only way to stop feeling like an impostor is to stop thinking like an impostor." Learn some tips to work on overcoming Imposter Syndrome: impostorsyndrome.com/articles/10-... linktr.ee/thezebraalliance #impostersyndrome #mentalhealth #chronicillness

submitted 2 days ago • 1 comment

It can be hard to do 💜🫂💜 but try your best 🦓🩵 #mentalhealth #chronicillness #ehlersdanlossyndrome #EDS #raredisease #invisibleillness #disability #dynamicdisability

submitted 2 days ago • 0 comments

Thank you to the medical professionals who didn't ignore me and blame my physical problems on my mental health! You guys seem to be few and far between, which means you REALLY deserve an applause 👏 🦓🩵 #Doctors #nurses #clinicians #physicaltherapy #specialists #healthcare #chronicillness #chronicpain

submitted 2 days ago • 0 comments

Skin tells a story—when you have Ehlers-Danlos Syndrome, it’s written in bruises, scars, and silky fragility. Explore how EDS impacts the body’s largest organ. #EhlersDanlos #ChronicIllness #SkinHealth #EDSawareness #hEDS www.unremarkableme.com/post/the-sca...

submitted 4 days ago • 0 comments

On IDSA’s & HIVMA’s Science Speaks blog: Five years since the start of the COVID-19 pandemic, long COVID remains a concern. Luis Del Carpio-Orantes, MD, provides an update on research efforts to find therapies.

submitted 3 days ago • 0 comments

We just drafted a list of all the new documentaries out about EDS and related conditions. Check out the growing list here now: buff.ly/hJ9BacN #EhlersDanlos #Hypermobility #hEDS #HSD #MedEd #MedSky #Zebras #NEISvoid #MECFS #Spoonies #MedStudents #Film #Documentary

submitted 3 days ago • 1 comment

THIS is one of the reasons groups/people like The Zebra Alliance are so ticked off. 😠

submitted 3 days ago • 0 comments

#disabilitysky #disabledsky #disability #PwD

submitted 4 days ago • 0 comments

My son was listening to a podcast: "Mum, come here and listen to this." People with EDS should avoid high-impact activities like hockey, combat sports, high-contact sports, and sports that focus on flexibility. #EDS #hockey #ehlersdanlossyndrome

submitted 5 days ago • 1 comment

Pretty cool!

submitted 5 days ago • 0 comments

“There is also no expiration date attached to #grief. This means it doesn’t matter if u have just been diagnosed or you have lived years with a #diagnosis. Allow yourself to visit grief when you need to. The key word is visit!”: buff.ly/4exsWcj via @themightysite.bsky.social #ChronicIllness

submitted 5 days ago • 1 comment

"These new guidelines offer hope. They show that treatment can be tailored to the individual, with careful attention to both mental and physical health." New international guidelines for the treatment of schizophrenia have been published in the Lancet 👇 tinyurl.com/yn2mfwz4

submitted 6 days ago • 1 comment

NEWS: Boosting vaccines with harmless bacteria to fight intestinal pathogens The ground-breaking study by the Slack group reveals how combining vaccines with friendly bacteria can boost vaccination efficacy and potentially reduce reliance on antibiotics. www.medsci.ox.ac.uk/...

submitted 6 days ago • 0 comments

“We must also b cognizant of the fact that many #patients don't feel comfortable questioning a #doctor given the imbalance of power. So while they may WANT u to put on a #mask ..They won't risk deterioration of care": buff.ly/4dPCHlu by @broadwaybabyto.bsky.social #healthcare #PublicHealth

submitted 6 days ago • 0 comments

Age is a major risk factor for cancer and is most typically diagnosed in people ages 65 to 74. But early-onset cancer — or cancer found in people ages 18 to 49 — is rising at an alarming rate. cle.clinic/44nNkuD

submitted 6 days ago • 0 comments

#Meningitis can kill within hours - and survivors may face lifelong impacts. It affects people of all ages, everywhere. WHO’s new guidelines aim to boost diagnosis treatment and care - so more survive, and fewer live with lasting effects. bit.ly/4jbQC96 #DefeatMeningitis

submitted 6 days ago • 7 comments

"I'm out of the disability closet. My mum put me in there. Society put me there. And at the age of 35, I'm saying no, disabled people deserve to be seen. We belong everywhere, we have a lot to offer the world. We're not people's trauma porn, we're not inspiration." www.abc.net.au/everyday/kha...

submitted 483 days ago • 0 comments

It’s Autism acceptance & as the foremost charity with Patron @bendybrain.bsky.social & Chair @jgjanegreenmbe.bsky.social we’re proud to share our pioneering advocacy. Watch the @ehlersdanlos.bsky.social GLC keynote closing conference here: www.youtube.com/watch?v=McKt... #AutismAcceptance #Autistic

submitted 14 days ago • 0 comments

Scary! If you don't know why we need the FDA and the impact they have on healthcare, never mind food and human products - like skincare - give this article read. linktr.ee/thezebraalliance #chronicillness #FDA #health #drugs #foodsupply #consumerproducts

submitted 7 days ago • 0 comments

Let's do this, Colorado! 🙌 We need all of you voters to stand with Colorado against RFK Jr.! linktr.ee/thezebraalliance #vaccinations

submitted 7 days ago • 0 comments

🥺

submitted 7 days ago • 0 comments

We need to get it through to Trump and RFK: RESEARCH IS NECESSARY, and research requires funding.

submitted 8 days ago • 0 comments

😆

submitted 8 days ago • 0 comments

A UCHealth patient is the first in the nation to receive adaptive deep brain stimulation treatment for her Parkinson's disease! Researchers Andrew Kern, MD, and John Thompson, PhD, developed this breakthrough technology at our Clinical Translational Research Center (CTRC). @cuanschutz.bsky.social

submitted 9 days ago • 0 comments

Once a rarity, Tommy John surgery has taken on a mythical following for baseball players, especially pitchers. Our sports medicine physician explains the truth behind this surgery: cle.clinic/3G09CbT ⚾⚾

submitted 8 days ago • 0 comments

Awesome news!

submitted 8 days ago • 0 comments