torres-amy.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

“We want to help… but let us know when you have a biomarker.” #longcovid Currently: Silos. Every lab works separately, mostly on the same thing, without coordination. Michael Peluso, M.D., Science Translational Medicine Webinar, Feb 21

submitted 6 hours ago • 2 comments

The mother of a teenager who acquired a brain injury after a bout of Covid-19 says it changed life "pretty much overnight". www.bbc.co.uk/news/article... #LongCovid #LongCovidKids

submitted 7 hours ago • 1 comment

open.substack.com/pub/longcovi...

submitted 6 hours ago • 0 comments

Health Rising: “Nalmefene: Has Jarred Younger Discovered a Better LDN + an LDN / Rapamycin Osteoporesis Connection” “More and more treatment options are appearing” www.healthrising.org/blog/2025/02...

submitted 8 hours ago • 0 comments

A lot of people demonstrating this incapacity every day through a variety of abstracting mechanisms to justify the neglect, torture, or murder of kids.

submitted 16 hours ago • 0 comments

Thank you so much, @virusesimmunity.bsky.social for your insight on #LongCovidKids. Immunology is key—my daughter has developed multiple COVID-triggered autoimmune conditions, and the list keeps growing. It’s more debilitating than it seems.

submitted 1 day ago • 0 comments

Update on NIH RECOVER-TLC Neurological Agents Working Group 1- The first meeting was quite productive. All group members are renowned scientists in the field. The meeting was confidential and predecisional, but everyone was willing to learn from each other and very open to collaboration. (1/2)

submitted 1 day ago • 1 comment

All hands on deck! My union, Natl Treasury Employee Union, is hosting a civil service rally March 15 in Kansas City, and we need your help! Looking for civic leaders, speakers, & supporters to join us. Please DM for more info. Thank you! open.substack.com/pub/nteu66/p...

submitted 1 day ago • 7 comments

Shoutout to @diatoma.bsky.social who connected to a writer on here awhile back and pitched the idea!!! 👏👏👏

submitted 2 days ago • 1 comment

"The resolved Long COVID cohort had moderately worse physical and mental health compared with those never-having-Long COVID. COVID-19 vaccination was associated with better outcomes."

submitted 2 days ago • 1 comment

If you're wondering why a lot of what's here is stuff I've conveyed, I was interviewed for this episode of SciShow. #MECFS

submitted 2 days ago • 16 comments

This was an adult longitudinal study. Children are continually being reinfected, thus increasing their risk of getting Long Covid. No matter the percentage of kids that “resolve” their Long Covid, there will be a large number that won’t. 💔💔💔 #LongCovidKids #CleantheAir

submitted 2 days ago • 1 comment

🚨Executive order terminating the Advisory Committee on #longcovid 👉Orwellian doublethink is upon us as disability discrimination & sidelining is portrayed as economic & bureaucratic savings 👉Yarvin's neoreaction RAGE - 'retire all government employees' continues www.whitehouse.gov/presidential...

submitted 2 days ago • 3 comments

🧠 Daily Feed of Brain Damage 🧠 With thanks to my endless supply of good people on this shit App @atranscendedman.bsky.social journals.plos.org/plosone/arti...

submitted 2 days ago • 2 comments

C&EN: 'Long COVID studies stymied by pharma’s lack of cooperation' 'Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them' 'Avindra Nath believes he has a way to treat certain people with long COVD...' cen.acs.org/pharmaceutic...

submitted 3 days ago • 5 comments

🧪We still need more high quality research for #longcovidkids GI issues are a common complaint & deserve to be investigated & taken seriously To read more: tinyurl.com/4schsuw2

submitted 3 days ago • 1 comment

My #LongCovid heart is singing! Thanks for keeping hope alive! polybio.org/cutting-edge...

submitted 3 days ago • 0 comments

"The cohort consisted of 1 576 933 pediatric patients" "the risk of abdominal pain was higher in COVID-19–positive patients during the postacute (2.54% vs 2.06%; ARR, 1.14; 95% CI, 1.11-1.17) & chronic (4.57% vs 3.40%; ARR, 1.24; 95% CI, 1.22-1.27) phases." #LongCovidKids #LCKids

submitted 5 days ago • 1 comment

Measles is also highly contagious because it is #AIRBORNE. @who.int could mention that in one of their texts, but never do. 🤦

submitted 4 days ago • 5 comments

📢 Join us 🗓 March 11 | ⏰ 3 PM CT Pediatric neurology providers are often undertrained in diagnosing & managing POTS, a condition still stigmatized in medicine. With rising awareness post-Long COVID, treatment remains symptom-focused—often inadequate for many. Register today: bit.ly/3WMjKuh

submitted 4 days ago • 1 comment

Dr. Janna Friedly is the founder of the @uwmedicine.bsky.social Long COVID clinic. It’s one of 12 federally funded long-COVID clinics, but Friedly says the funding still isn’t enough.

submitted 4 days ago • 0 comments

As part of our output for #LongCovidAwareness Month we have arranged a Q & A for children and young people on the 7th March with DR @buonsenso.bsky.social #LongCovidKids #PaediatricLongCovid #LongCovid #YouthAdvocacy #Patients

submitted 5 days ago • 1 comment

Funny how when a real scientist responds to an ideologue about their dated beliefs the cracks start to show re: #LongCOVID. Initially I was annoyed that Nature even legitimized such a weak response from Garner et al, but now all the world can see that the emperor has no clothes.

submitted 7 days ago • 0 comments

Breaks my heart to hear about these poor children with long covid and society is doing nothing to prevent more children getting infected 😭

submitted 5 days ago • 0 comments

#GreatestMEdicalScandal #JohnVsJonVsME This disease is a life-ruiner, but there are ways to prevent it & prevent decline. Journalists can save lives & prevent decline by informing about this. The medical field has failed at this, it’s time for journalism to pick up the baton.

submitted 7 days ago • 1 comment

thesicktimes.org/2025/02/06/m... Welch Albtraum 😢 #MECFS #LongCovidKids

submitted 7 days ago • 0 comments

To all my colleagues at NIH and CDC: I know that you worked so hard to get the position you had. I know how seriously you took your oath. I'm sorry that we've abandoned you and are willing to just let you go after all your training. I know we'll regret this but I'm afraid that'll come too late.

submitted 8 days ago • 6 comments

A warning RE this new study to those with severe Long Covid or ME/CFS: high doses of Vit D can make us feel MUCH worse. I made the mistake of trying 25,000iu of D3 today and my goodness I feel so sick, and so much worse (I take K2 + Magnesium daily already) onlinelibrary.wiley.com/doi/10.1111/...

submitted 7 days ago • 13 comments

www.longcovidkids.org/post/real-li... Olivia’s story, one of many children suffering long covid.

submitted 8 days ago • 1 comment

This research paper goes in my binder (actually I am on my second binder three years in). #LongCovidKids

submitted 8 days ago • 0 comments

MedPage Today: “Neurologic Complications of Flu in Kids May Be Up This Year” “it's "been a very active flu season" with "a lot of flu-related [intensive care unit] admissions" happening right now” link.broadcaster3.medpagetoday.com/click/386122...

submitted 9 days ago • 0 comments

I haven't actually run the numbers, but it seems like I've seen more GI issues in the past few years than at any time in the previous 20 years. I've talked about long COVID with many of the families, but without clear diagnostic criteria or testing, none have been diagnosed - even after seeing GI.

submitted 9 days ago • 2 comments

Looking for some fun advocacy that will make you laugh and bring joy? Check out this playful campaign happening tomorrow/Feb 14!!! Info below on how you can get involved!!! 👇 #pwLC #pwME #NEISVoid #DisabilityJustice #ValentinesDay

submitted 9 days ago • 0 comments

Oh, ✨LGB✨ rights? Tonight's mini-advocacy action. 1. Click on the article! 2. Scroll down 3. "Unhelpful" 4. Give them a piece of your mind.

submitted 9 days ago • 1 comment

On a day like this, it’s important to say THANK YOU to all the science and public health communicators for all you do. Your work will be even more critical in the coming years. Keep going! You are very much needed and appreciated. ❤️

submitted 9 days ago • 10 comments

@meactnet.bsky.social you may find this incredible piece of interest

submitted 9 days ago • 1 comment

The evidence linking long Covid with viral persistence is growing - and there are several trials underway. Treatment may be needed for months, not weeks 😢😬 www.thelancet.com/journals/lan...

submitted 9 days ago • 7 comments

We believe many neuro problems associated with #COVID come from the virus hijacking blood vessels to gain access to the brain. This is what it looks like for me, using super-resolution microscopy. With thanks to @harryspoelstra.bsky.social, combining vascular and neuro to understand #NeuroCovid 💪

submitted 10 days ago • 15 comments

PHAN @publichealthaction.bsky.social invited me to write about my experience with Long COVID. “Fallout” is a new essay from me about struggling with basic tasks, and the disorienting feeling of watching the world ignore the disaster you live inside. publichealthactionnetwork.org/julias-story...

submitted 11 days ago • 3 comments

CIDRAP Feb. 7: After COVID-19, kids more likely to have GI symptoms for up to 2 years / 4% are getting #LongCovid RNZ Feb 12: "The good news is that we are no longer in the Covid era" 😢 #Covid #StillCoviding Links: - www.cidrap.umn.edu/covid-19/aft... - www.rnz.co.nz/news/nationa...

submitted 11 days ago • 1 comment

MRI study uncovers enlarged hippocampus in long COVID and ME/CFS patients medicalxpress.com/news/2025-02...

submitted 10 days ago • 1 comment

@eddavey.libdems.org.uk #WeAreStillInAPandemic 3.1 million and climbing with long covid. Restricted vaccines to vulnerable Most cv left without vaccine access and access to lifesaving antivirals. No drugs to protect hundreds of thousands left with zero protection 6 years on! No vaccines for 🧵

submitted 10 days ago • 1 comment