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trixyb.bsky.social
#pwme #mecfs 💙 Trying to find small joys while living with chronic illness Mostly housebound Love ginger cordial #vintage #retro #television #crochet #dogmum 🐾
48 posts 80 followers 181 following
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Posts 17 Comments 33

The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏

submitted 9 days ago • 1 comment

This illness is so frustrating 😡 #pwme #MyalgicEncephalomyelitis #mecfs #disability

submitted 46 days ago • 1 comment

Please keep watching & sharing this 27min important film on "The Greatest Medical Scandal" by @abrokenbattery.bsky.social We need everyone to be watching this #ME #MEcfs #pwME #LongCovid #MedSky youtu.be/RiwX9Y0NbiQ?...

submitted 79 days ago • 0 comments

Me every morning #pwme #myalgicencephalomyelitis #mecfs

submitted 55 days ago • 1 comment

Living with ME is difficult enough without having incorrect and dangerous guidelines still out there. Please help by signing this petition to get rid of the Cochrane review known to be harmful to patients and re start a new review and assessment. chng.it/BxJ4Wsttgk

submitted 76 days ago • 3 comments

ME peeps... If you accidentally found something that, legally, made you feel wonderfully ME free and energised for an hour or two without major PEM, despite being potentially risky and having possible longer term side effects, would you try it again?

submitted 78 days ago • 5 comments

#pwme #chronicillness #MyalgicEncephalomyelitis #ME #mecfs

submitted 78 days ago • 0 comments

Grateful to @gwynnemp.bsky.social for a really productive discussion today. It’s filled me with hope that there are people at the top genuinely fighting for change in the care of #LongCovid and #ME. Hoping to be part of that change, will keep you all posted 🙏🏽

submitted 79 days ago • 11 comments

@erinmg.bsky.social I had plans for tomorrow to go out (in my wheelchair husband pushing) to a little garden centre for a festival afternoon tea, unfortunately it's not looking very hopeful now #pwme #MyalgicEncephalomyelitis #mecfs #PEM

submitted 83 days ago • 0 comments

Happy 1st of December It's tree going up day 🎄 I shall be supervisor extraordinaire #pwme

submitted 92 days ago • 1 comment

Saturdays little moment of cuteness 😁🦉💙

submitted 93 days ago • 0 comments

#pwme #mecfs Just had to decline a Christmas invite 💙

submitted 94 days ago • 1 comment

The Evening Telegraph, Derby, England. 29th November 1991. #myalgicencephalomyelitis #cfsme #myalgice #mecfs ""Both my husband Pete and I went to bed with a bout of flu one Thursday night, but he was up by the Sunday. I was worse...by the next week I had pneumonia"".

submitted 94 days ago • 0 comments

Are you following #ThereForME on our new social media accounts? 🎄 Find links here: linktr.ee/ThereForME #ThereForMEAdventCalendar

submitted 95 days ago • 0 comments

Honoured to have been included in this article by Jeremy Jeffs on his photography project. wellcomecollection.org/stories/livi... #MyalgicE

submitted 95 days ago • 2 comments

The #ME Association, a national organisation, has been dominated by this man so long it's transformed into a mental health charity. ME is not a mental illness. I wasted months meeting MEA reps (Trustees & employees) pre inquest. 2/3 resigned after listening to me. thesicktimes.org/2024/11/22/a...

submitted 96 days ago • 3 comments

It may be worth sharing any Black Friday online sales purchases which could be helpful & have *practical* benefits for #pwME #ME #MEcfs & #LongCovid if anyone has any suggestions or good recommendations Do share links

submitted 98 days ago • 2 comments