younglivesvscancer.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

We were pleased to meet with @stevempyemm.bsky.social today to talk about the importance of the National Cancer Plan for England addressing all the needs of children and young people with cancer - including support for psychosocial needs and post-treatment. Thank you Steve.

submitted 20 hours ago • 0 comments

Thank you @clivejonesmp.bsky.social for working with charities like us to call for a robust Cancer Plan for England. We're pleased to be working through the Children and Young People's Cancer Taskforce and hope the Plan will deliver on the areas we've highlighted bit.ly/43QoqTF

submitted 5 days ago • 0 comments

“As I distanced myself from the survivor label, I distanced myself from my cancer in its entirety." Kate, 24, reflects on having leukaemia aged nine and how it’s led her to where she is today - about to start work as a junior doctor. Read Kate’s blog: ow.ly/bLzF50W0CaL

submitted 6 days ago • 0 comments

Yesterday we met with DWP Minister Timms to discuss welfare benefits for the families we support. Support like PIP and DLA is vital for children and young people with cancer and their families and we’re committed to raising their voices so they get all the support they need, when they need it.

submitted 21 days ago • 0 comments

"There are no words to describe how you feel; your world turns upside down." Nancy was diagnosed with brain cancer at only one year old. Her mum Gemma shares their story in this BBC News article: bbc.co.uk/news/article...

submitted 22 days ago • 1 comment

This #InternationalNursesDay, we’re celebrating the incredible work of all nurses who are dedicated to creating a brighter future for children and young people with cancer 🫶 Hear from our amazing Chief Nurses: bit.ly/4m6qMVJ @younglivesvscancer.bsky.social #NursesDay

submitted 23 days ago • 0 comments

A huge thank you to all the nurses this #InternationalNursesDay. Our Chief Nurses work collaboratively to shape a better future for children and young people with cancer. Read more about what they do: www.cclg.org.uk/news-updates... #NursesDay @cclguk.bsky.social

submitted 23 days ago • 0 comments

📢 Still time to have your say! Filling in the Under 16 Cancer Patient Experience Survey will help the NHS and cancer charities improve services for children and young people with cancer. Find out more: www.under16cancerexperiencesurvey.co.uk

submitted 28 days ago • 0 comments

We were pleased to join the Health Minister at this important event recognising collaboration on Adolescent and Young Adult Services in Northern Ireland www.health-ni.gov.uk/news/health-...

submitted 29 days ago • 0 comments

Last chance: Have your say on the Cancer Plan for England before 23:59 tonight. We’ve written a handy guide to help you 👉 bit.ly/3REVyaa

submitted 35 days ago • 0 comments

THEY DID IT. A huge congratulations to our London Marathon runners for crossing the finish line yesterday. We’re so proud of Team Young Lives for coming together to support children and young people with cancer. 👏

submitted 37 days ago • 0 comments

One of the most impressive things about some London Marathon runners is, after putting themselves through it all, they then (somehow) go & do it all again. On which, here's Luke, who is running his 10th (!) marathon today for @younglivesvscancer.bsky.social! www.huntspost.co.uk/news/2511108...

submitted 38 days ago • 0 comments

We’re ready to cheer on Team Young Lives at the #LondonMarathon. Our runners need all the encouragement they can get to complete this challenge. Come join us if you spot one of our cheer points, bring your loudest cheers, and help us celebrate our incredible runners. 🎉

submitted 38 days ago • 0 comments

Alex, Jasper, Ben & Jim will be running the London Marathon in a Scooby Doo mystery machine costume, in support of Young Lives vs Cancer. Watch their Sky News interview: youtube.com/watch?v=QUnk... They’re attempting to break the world record for the fastest marathon in a four-person costume. 👏

submitted 39 days ago • 0 comments

Been at the London Marathon running show today seeing our amazing @younglivesvscancer.bsky.social runners, and also the London Marathon LEGEND that is Yimmy! (If you've run the marathon, there's a decent chance you know the name)

submitted 39 days ago • 0 comments

📢 Have your say! If you received the Under 16 Cancer Patient Experience Survey in the post recently, having your say could help the NHS and cancer charities improve services for children and young people with cancer. For more information please visit: www.under16cancerexperiencesurvey.co.uk

submitted 40 days ago • 0 comments

Are you a senior Children’s or TYA cancer nurse with significant experience leading services at PTC, Shared Care, Community, Cancer Network or Research setting? @younglivesvscancer.bsky.social is looking for a new Trustee with your expertise. www.younglivesvscancer.org.uk/support-us/g...

submitted 42 days ago • 0 comments

"Cancer diagnosis at 19 left me feeling isolated." Jake shares his experience of being diagnosed with brain cancer while at university this Teenage and Young Adult Cancer Awareness Month: www.bbc.co.uk/news/article... #TYACAM

submitted 42 days ago • 1 comment

The cancer impacts wheel is always spinning for children and young people with cancer and there is often no predicting where it will land. The Cancer Plan for England is an opportunity to address these impacts. Fill in the cancer plan consultation here: bit.ly/3RUTVFo

submitted 47 days ago • 0 comments

Did you or your child receive the Under 16 Cancer Patient Experience Survey in the post recently? Your feedback could help the NHS and cancer charities improve services for children and young people with cancer. For more information please visit: www.under16cancerexperiencesurvey.co.uk

submitted 48 days ago • 0 comments

We know the best people to tell us what having cancer as a child or young person is like, and how to change the system for the better, are the people who’ve experienced it. If you’re aged 16+ with lived experience of childhood cancer, join our Voice Hub: ow.ly/oNVq50VBrJ8

submitted 49 days ago • 0 comments

"Writing this poem helped me find some light in the chaos." Aagoon wrote Tumour Humour, a poem about being diagnosed with stage 3 Hodgkin's Lymphoma when she was 19. Read it in full here: ow.ly/Yvet50VAHZC #TYACAM #WorldArtDay

submitted 50 days ago • 0 comments

“I felt as though I was building momentum in this new life and then I had to put that all on pause.” Josh, 24, shares his experience of cancer as part of Teenage and Young Adult Cancer Awareness Month. Read more 👉 ow.ly/f1f250Vy0L6 #TYACAM

submitted 54 days ago • 0 comments

Emma Wood, Voice Manager at Young Lives vs Cancer talks about how we bring young people with lived experience of cancer and their families into our work and decision-making, and how you can get involved. Read more: ow.ly/oTmu50VwjQk

submitted 57 days ago • 0 comments

Our friends at It's Never You are campaigning for better financial support for parents of seriously ill children. Sign their petition today to show your support for #HughsLaw 👉 bit.ly/3QZmbXb

submitted 61 days ago • 0 comments

This April, we're joining other cancer charities to raise awareness of the unique set of challenges facing young people with cancer during Teenage and Young Adult Cancer Awareness Month. Help us amplify their voices this #TYACAM. Read more 👉 ow.ly/Q5SQ50Vs5MS

submitted 64 days ago • 0 comments

We're redesigning the top navigation of our website to make sure that everyone who visits it can find the information they need with ease. Want to get involved by testing our prototype and sharing your thoughts? Email [email protected] and we'll be in touch.

submitted 67 days ago • 0 comments

NEW DATE ADDED - 22nd April @cclguk.bsky.social, Ellen MacArthur Cancer Trust and @younglivesvscancer.bsky.social need your expertise! Join our workshops to explore the system around children and young people with cancer, and their families 👇 Together, we have the power to improve the system 👊

submitted 68 days ago • 0 comments

Do you have lived experience of cancer? We’re created a short survey to find out more about how you use social media, so that we can share relevant content on the channels that work for you. Answer our short survey. It will only take 3 minutes: ow.ly/EbAy50VneqT

submitted 69 days ago • 0 comments

Another missed opportunity to support the needs of young cancer patients & their families Read our response to today’s Spring Statement below👇🏽 @younglivesvscancer.bsky.social will continue to amplify voices of children & young people with cancer until a Young Cancer Patient Travel Fund is here

submitted 69 days ago • 0 comments

Today's Spring Statement was a chance for UK Government to support children and young people with cancer with the extra costs that come with a diagnosis. Our CEO @rachelkirby.bsky.social shares her reflections on how the statement missed the mark for the families we support. 👉 bit.ly/4hP8PYr

submitted 69 days ago • 0 comments

It’s #SpringStatement time. We're watching The Chancellor, Rachel Reeves, share the UK Government Spring Statement and are listening for commitments to support children and young people with cancer and their families, like a Young Cancer Patient Travel Fund.

submitted 69 days ago • 0 comments

Busy morning... Our Chair, @lowrigriffiths.bsky.social @tenovuscancercare.bsky.social; Simon @cancerresearchuk.org and Hannah, plus @lauren-marks.bsky.social @younglivesvscancer.bsky.social giving evidence to the Public Accounts and Public Administration Committee @senedd.wales @senedd.cymru.

submitted 70 days ago • 1 comment

What an amazing two days we’ve had at #CCLG2025! A huge thank you to everyone who has spoken to us about our work, working together, and the psychosocial needs of children and young people with cancer.

submitted 70 days ago • 1 comment

Our reminder to Rachel Reeves ahead of the UK Government #SpringStatement tomorrow 👇 71% of children and young people with cancer struggle with the cost of travelling to treatment, and one in 10 miss or delay treatment because they can't afford to get there.

submitted 70 days ago • 0 comments

We’re excited to present our sector research at #CCLG2025. Starting at 1.15pm in hall 8, we’ll be sharing our North Star Vision and Collective Impact Initiative, followed by our oral abstract exploring the long term wellbeing of young cancer survivors at 1.45pm 👇

submitted 70 days ago • 1 comment

New research published by @younglivesvscancer.bsky.social looks at the experiences of children and young people with cancer and their families as they navigate the process of claiming disability benefits following their diagnosis. www.younglivesvscancer.org.uk/support-us/c...

submitted 71 days ago • 1 comment

It’s day two of #CCLG2025! We were blown away by how many people stopped to see us yesterday. Thank you to everyone who chatted about the psychosocial challenges faced by the families we support. If you’re here and haven’t had chance to see us yet, we’re at stand 12 👋

submitted 71 days ago • 1 comment