My kiddo’s POTS specialist (peds cardio) claims that ME/CFS and long covid don’t exist - they’re “just dysautonomia.” Just need to follow POTS treatment plan. Except… my kiddo is still sick, still has severe fatigue, brain fog, immune dysfunction… despite treatment & major POTS improvement.
Reposted from
Rachel Fairbank
Unfortunately, this blind spot in regards to ME/CFS as a comorbidity seems to be quite common among POTS experts, as we’ve been seeing in recent weeks. It’s a troubling phenomenon, one that points to the divide between a patient’s experience, and the biases of researchers/clinicians.
Comments