taraf.bsky.social - Profile | ThreadSky | a Reddit-style client for Bluesky

H5N1 U.S. Tracker Lots of H5N1 about. Source: www.ginkgobiosecurity.com/h5n1-us-trac...

submitted 96 days ago • 2 comments

This one hits too hard.

submitted 153 days ago • 99 comments

Telehealth was something disabled people had spent years begging for. It’s a game changer when you have an energy limiting chronic illness. It’s hard to imagine any legitimate reason to remove it - it will cause harm. Let patients access care in the way that is safest for them.

submitted 165 days ago • 19 comments

Today in Hell Yes, Research! When autistic children learned about autism "in a neutral and non-stigmatizing manner," & from autistic people with lived experience, it improved their self-understanding, sense of belonging, and their communication/self-advocacy skills. www.medrxiv.org/content/10.1...

submitted 166 days ago • 6 comments

Reminder: you don’t have to be good at something to enjoy it, you don’t have to get better at it, you don’t have to monetize it, and it doesn’t have to be useful.

submitted 167 days ago • 130 comments

Dr. Yellman is speaking next Friday 12/6/24, 1p Eastern US, to @renegaderesearch.bsky.social hosted by @isabelrb.bsky.social and Renegade Team. Free. Will be recorded + posted to Remission Biome channel on YouTube. Advantage of attending live? The Q&A. Register us06web.zoom.us/webinar/regi...

submitted 169 days ago • 1 comment

Big news! Every CA wastewater site monitored by #WastewaterScan has had a #H5N1 bird flu hit in the past 2 weeks. EVERY SINGLE ONE.

submitted 171 days ago • 9 comments

Our new study shows that SARS-CoV-2 spike protein accumulates & persists in the body for years after infection, especially in the skull-meninges-brain axis, potentially driving long COVID. mRNA vaccines help but cannot stop it🔬🧠🦠🧵Your weekend read👇 @cellpress.bsky.social cell.com/cell-host-mi...

submitted 169 days ago • 56 comments

Living w/ ME: Sadly, the longer it takes to get a diagnosis, the worse the condition can get, and before you know it, you’ve lost your job and your quality of life has taken a nosedive. The stigma surrounding ME is a massive barrier to getting the help we need. wellcomecollection.org/stories/livi...

submitted 170 days ago • 2 comments

For anyone who needs a reminder tonight - your value is not tied to your ability to work or participate in capitalism. In fact - being disabled IS work. People have no idea how much work. They imagine it like a vacation - laying around all day doing whatever fun activities you most enjoy. 🧵

submitted 171 days ago • 8 comments

I think we need to discuss morally questionable societal norms when we have ££ to invest on a full blown advertising campaign for MAID like it’s a free holiday, but aren’t investing the appropriate amount to ££ for research,treatment & support to improve lives of the chronically disabled community

submitted 170 days ago • 3 comments

“The number of people classed as economically inactive - not employed or actively looking for work - has jumped to more than 9 million. It surged during Covid but remains persistently high” That’s what happens when you mass infect a population with SARS. #LongCovid www.bbc.com/news/article...

submitted 173 days ago • 2 comments

#LongCOVID RESEARCH looking for participants! Research opportunity on long COVID, employment, & disability benefits for recruitment. This research is led by Deborah Lefkowitz, PhD at the University of California, Riverside, with a fellowship supported by the Social Security Administration. (1/4) 🧵

submitted 172 days ago • 5 comments

Less than two weeks away from my 3-year long covid anniversary (almost 9 years of chronic illness) and we’re dealing with unexpected unemployment (both partner & me) and major extended family issues. Lots of thoughts and feelings, but mostly working extra hard on pacing with Thanksgiving coming.

submitted 173 days ago • 2 comments

At least 5 women have died due to abortion bans in Texas & Georgia—Candi Miller, Amber Thurman, Josseli Barnica, Nevaeh Crain; and now, Porsha Ngumezi. 3 victims were Black, one Latina. 2 were immigrants. One was just 18. All women are at risk—but women of color, immigrants and teens most of all.

submitted 173 days ago • 6 comments

Do you think you've had long-term GI problems since having Covid? We are performing a study examining the characteristics of viruses, specifically persistent SARS-CoV-2 infections, in stool samples. 1/3

submitted 178 days ago • 3 comments

⚠️ BREAKING: Wastewater in Saint Petersburg, Florida has tested positive for H5 bird flu. Florida has no known active outbreak of bird flu in dairy cows or poultry.

submitted 175 days ago • 12 comments

"For women and others who’ve been victimized, and for those of us who truly care, the election of Donald Trump is a bitter reflection of the moral apathy, the violent indifference, toward female rape victims" @katemanne.bsky.social katemanne.substack.com/p/trumps-ele...

submitted 187 days ago • 0 comments

Almost everything you might do for fun CAN be done while wearing a respirator. You can “live your life” while protecting yourself an others. You can’t “live your life” the same way once you’re chronically ill. Wearing a respirator will seem like a small sacrifice compared to losing your health.

submitted 177 days ago • 3 comments

Society sees chronic illness and disability as negative, shameful, and something to overcome or defeat. It’s nothing to be ashamed of and can happen to anyone. Oftentimes, we can’t overcome it. We just have to learn to live with it in the best way we know how.

submitted 176 days ago • 0 comments

My kiddo’s POTS specialist (peds cardio) claims that ME/CFS and long covid don’t exist - they’re “just dysautonomia.” Just need to follow POTS treatment plan. Except… my kiddo is still sick, still has severe fatigue, brain fog, immune dysfunction… despite treatment & major POTS improvement.

submitted 178 days ago • 5 comments

A reminder that if you're feeling saddened by the failure of the Berlin Cures trial for Long Covid, you can check out the pipeline of #LongCovid, #MECFS & other IACC clinical trials here on CrunchME 💊👇 Just added a bunch more, and more to add still! crunchme.notion.site/4d00e39f9f87...

submitted 178 days ago • 2 comments

@putrinolab.bsky.social & CoRE are seeking participants in the NYC area for this PolyBio-supported lumbrokinase trial 👇🏻 They are accepting patients with the following diagnoses: Long COVID, Pre-2020 ME/CFS or Post-treatment Lyme Disease. Reach out to [email protected] to sign up.

submitted 178 days ago • 3 comments

I appreciate liberals suddenly caring about disinformation again, but those of us that've been tending this home fire for the past four years are gonna need y'all to recognize the covid disinformation you need to undo in your own mind if you want to stand in solidarity with disabled people.

submitted 179 days ago • 21 comments

“I want more clinical trials focused on cures and effective treatments. We want treatments that are actually getting at the underlying causes and not just sticking a band aid on symptoms,” Katherine, a parent of a 16-year old with Long COVID told The Sick Times.

submitted 178 days ago • 0 comments

Our mere existence is an act of rebellion. A rebellion against a society, a medical establishment, which denies our experiences and reality. A rebellion against a capitalist system which removes value from the lives of those who cannot work through no fault of their own. #MECFS #MillionsMissing

submitted 178 days ago • 0 comments

Urgent! ☎️📢🗣️

submitted 178 days ago • 0 comments

Long covid: A guide for primary care (Published 22 September 2022) www.bmj.com/content/378/...

submitted 178 days ago • 1 comment

He doesn't have a profile pic yet but for those that don't know: David Putrino is one of the best physicians in the ME/CFS & Long Covid game. This whole thread should be required reading for any doctor. #MedSky

submitted 178 days ago • 5 comments

I researched implementing evidence-based practices for my PhD and I wish I could go back and show myself how impossible it is to access care that is kind and helpful with no known interventions within the landscape of EBP-only care. There is none. A lot of “I’m so sorry. See me back in 6 months.”

submitted 178 days ago • 0 comments

"But as long as we're methodical in investigating potential target drugs… then we stand a chance of getting more sophisticated combination drug trials within the next 12 to 24 months. That could lead to some real hope for people living with these infection-associated chronic conditions.”

submitted 178 days ago • 0 comments