This will be my start to use this platform. I’d like to start by introducing my new photo project of documenting my life living with severe #MECFS.
I have thought about ways to advocate, and doing it through photography is the best way for me. 1/7
I have thought about ways to advocate, and doing it through photography is the best way for me. 1/7
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Every patient knows how poor the photos used in the media usually are. Looking at you 'the hand on the forehead' photos! 2/7
I think it’s vital to show, how we patients live and what we have to endure, to the outside world. We definitely are the millions missing, but it doesn’t mean that we are invisible. 5/7
Creativity = healing & soul food
https://www.thriftvip.co.uk/articles/on-the-subject-of-wintering-part-one1312025
Part Two will be diving more into a few extracts from the Wintering book by Katherine May which was the inspiration for me writing these articles.I’ll be talking more about PEM/PENE/PESE & using snippets from the book to highlight the comparisons #pwME and chronic illness have to deal with
And I have more, maybe something a bit more abstract. I have to look what I have and I can then show some examples to you.
Then this latest one from this week could also be useful 🤔
https://youtu.be/Twi86IsskDU?si=pOiLiDDpACfj_Vsv
And the idea photo in your first post is great. It conveys so much.
Thank you!
Your approach here though is inspirational, really ✌🏻
But i saw that it says "invalid handle" on your profile. I do not know what it means.
”If you see your handle now says “Invalid handle,” please reverify it by navigating to Settings > Change my handle > Type in your current handle > Verify DNS Record > Update.”
Thank you for sharing. We are all learning from one another to better understand these infection associated chronic illnesses, and what is working for some, and what is not. Patient-led research and self-care is the new normal.
https://open.substack.com/pub/andrewgiffordphotography/p/six-photographs-about-the-frustration?r=5nrz9&utm_medium=ios