I wish there was a way of simply wishing someone well who has ME/CFS/Long Covid. But no matter how I try to phrase it, it always feels f'd up because I know they are not ok and it feels like I'm not acknowledging that if I hope for it. Even something like "better day" feels f'd #MECFS #LongCovid - ThreadSky

whitneydafoe.bsky.social • 66 days ago

I wish there was a way of simply wishing someone well who has ME/CFS/Long Covid. But no matter how I try to phrase it, it always feels f'd up because I know they are not ok and it feels like I'm not acknowledging that if I hope for it. Even something like "better day" feels f'd

#MECFS #LongCovid

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marushka-t.bsky.social•66 days ago

I have ME and find that most people will solve that problem very simply by avoiding the subject altogether. Wishing every PwME all possible ease and continued hope.

prowerfox.bsky.social•66 days ago

I've found that regardless of my pain, etc, "stable" is the word that actually feels appreciated when being wished well. Stable here meaning (for myself) I don't have to work *as hard* as usual to do basics like breathe

suzanneforbes.bsky.social•66 days ago

I know exactly what you mean.

cindym.bsky.social•66 days ago

Genuine sentiment is always appreciated when you're speaking to a person grappling with health issues.
If I knew that you were struggling to wish me well?
I would assure you that your thoughts are appreciated and in fact, do make me feel emotionally better!
Good energy and good vibes back at you!🫂

robertb1.bsky.social•66 days ago

In Dutch we sometimes say "sterkte" to a person which roughly translates as "I wish you strength".

hildec.bsky.social•66 days ago

It’s difficult. I’ve started saying something in Norwegian that I’ll try to translate: I wish/hope you will have many good moments.
In Norwegian I’m using a word that indicates something that lasts a bit longer than a mere moment, but I don’t know what that word would be in English.

phillygirl106.bsky.social•66 days ago

I have ME/CFS/LC and would like to hear “wishing you a day of less suffering” or maybe even “hoping for a slightly improved baseline for you?”

cabruce.bsky.social•66 days ago

Yes! Language really fails us when trying to articulate anything concerned with ME. It’s so outside the bounds of normal human experience it defeats us. We aren’t understood, we don’t understand and we don’t have the words for it. Meanwhile 🫂💙

poncin-sue.bsky.social•66 days ago

❤️‍🩹 I like:
Hoping you have more good hours/days than bad; or
Hoping you see the horizon or a rainbow of hope today

hollychessman.bsky.social•66 days ago

I appreciate if I’m having a bad day and people say something like “sending love” or “I hope you are able to enjoy the sunshine” or something specific that doesn’t have to do with my body. That way it’s more about caring or appreciating life, less about how ok I am.

#longcovid #mecfs

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