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brooksmeatswift.bsky.social
It’s me, Hi! I’m the problem, it’s me! . ME patient & advocate - Decode ME Ambassador - 1 day at a time… My girls, my team, my music
100 posts 114 followers 135 following
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Just had a lovely moment, Linds is taking Attie swimming and as we said goodbye- toddled to the window and they didn’t see me and Attie said to mama: “I really love papa!” 🫶 made my day that has 🥰

submitted 6 days ago • 0 comments

Happy last day of the season reds ❤️ how nice is it going into the last game not needing anything and just getting to enjoy it. All those going today and tomorrow have a boss time ❤️ #champions20 #YNWA

submitted 11 days ago • 0 comments

Gah, when you come down to take your ME/shingles/keeping you alive meds and realise last night’s are still in the compartment of my pill tray - gonna be a long day #pwME #stillgotit #neverhadit #ME #CFS #pilllife #brainfog

submitted 13 days ago • 0 comments

Today has been an incredible day. Hope everyone who is a Red has been enjoying the celebrations! 🥳 ❤️ 🏆 The content on LFC socials has been superb - more posters for my bedroom walls! While we’re at it, why haven’t LFC crossed over to BlueSky yet? 🤔 #YNWA #LFC #RedSky 🙌🏻 ❤️

submitted 39 days ago • 1 comment

***News Update*** supporters of other clubs, don’t care when a team that’s not their team, wins the league… who’d have thought it…

submitted 38 days ago • 0 comments

How we all feeling?

submitted 39 days ago • 0 comments

I just signed this important open letter on Organise, please can you add your name? A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform

submitted 41 days ago • 0 comments

House of The Holy is such a brilliant album and The Rain Song is beautiful!!

submitted 43 days ago • 0 comments

Been working my way through Becoming Led Zeppelin 🙏 what a band. Their music will never get old ❤️ had the pleasure of meeting Robert Plant a while back and what a man he is 😍

submitted 48 days ago • 0 comments

I don’t care how old I am, but if someone says “stop” I can guarantee you I will be saying “collaborate and listen!” And possibly the rest of the lyrics…

submitted 49 days ago • 0 comments

Started watching Pulse on Netflix- worth a watch, it’s not Grey’s and it’s not trying to be. But very entertaining and hooks you.

submitted 49 days ago • 0 comments

97 Angels Never Forgotten 🕯️ You’ll Never Walk Alone #YNWA #JFT97

submitted 51 days ago • 0 comments

6 more points redmen!!! Uncomfortable second half but get in there!!!

submitted 53 days ago • 0 comments

Well played West Ham fans, that was so good to not hear a murmur during that 1 minute silence #YNWA

submitted 53 days ago • 0 comments

Bernie Sanders introducing Clairo at Coachella is an absolute mood!!

submitted 53 days ago • 0 comments

I’ve been wasting all this time, trying to keep you off my mind, yeah, you off my mind, no more…

submitted 57 days ago • 0 comments

I was screaming down the line down the line, what the fuck do u know 😂😂😂 get in Macca

submitted 60 days ago • 0 comments

Remember when I was your boat and you were my sea, together we’d float, so delicately… Not quite sure I’m ready to say goodbye to @youmeatsix this week - but they have helped me through some of the hardest times, especially my battle with M.E. - but what memories we have 🫶

submitted 66 days ago • 0 comments

I just signed the petition urging the Government to invest in research to help those suffering from Long Covid. Will you sign too? you.38degrees.org.uk/petitions/in...

submitted 70 days ago • 0 comments

This international break has dragged…

submitted 70 days ago • 0 comments

Happy cup final day reds ❤️ come ed you redmen!!! #aliverbirduponmychest

submitted 81 days ago • 0 comments

I feel gopping today… this week to be fair! Proper fluey and PEMy #pwME #PEM #MyalgicEncephalomyelitis #parentingwithME

submitted 83 days ago • 0 comments

On to Sunday redmen 🙏

submitted 85 days ago • 0 comments

It is my first day since last September that I have managed no thermal anything on - though I may have to crack the socks out in a bit - I feel a stone lighter too 😂 #pwME

submitted 88 days ago • 0 comments

Yellowjackets is back 💛

submitted 111 days ago • 0 comments

Thank you for the well wishes. Nasty flare up but feeling a tad better today #pwME #parentingwithME in other news - Snoop and Dre still got it 🙌

submitted 117 days ago • 0 comments

Won’t be watching tonight redmen, really not well at the minute. Hope it’s a cracker and enjoy to all those able to go 🙏❤️ #YNWA #pwME #parentingwithME

submitted 119 days ago • 2 comments

I’m in a, be careful today - living with ME huh… thankfully Linds is taking the girls swimming and I’m resting in our downstairs bed… #pwME #chronicbuticonic #ME #CFS #LC #makingtheinvisible #visible

submitted 124 days ago • 1 comment

This audio is a summary of the paper ‘What Primary Care Practitioners Need to Know about the New NICE Guideline for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults’. The Irish ME/CFS Association sent this to all Irish GPs previously. #MEcfs #CFS

submitted 132 days ago • 0 comments

Gosh I’m one giant flu like ache tonight

submitted 134 days ago • 0 comments

When the 50th symptom hits… and you still don’t have the kids in yet #pwME #parentingwithME

submitted 135 days ago • 0 comments

I’m taking a win any which way they come today 🙏🏻 just go out there and get the 3 points redmen ❤️ #YNWA

submitted 138 days ago • 0 comments

Sometimes I’m not a big fan of people. I have problems and I know others do too. But that’s no excuse to be horrible to someone else - you never know what a day in their shoes is like #pwME #millionsmissing

submitted 139 days ago • 1 comment

Brainfog has to be one of my least favourite and most frustrating symptoms! #pwME

submitted 142 days ago • 1 comment

Argyle it is then

submitted 144 days ago • 0 comments