brooksmeatswift.bsky.social
It’s me, Hi! I’m the problem, it’s me! . ME patient & advocate - Decode ME Ambassador - 1 day at a time… My girls, my team, my music
100 posts
114 followers
135 following
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There she is ❤️ xxx
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Thank you 🙏🙏
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Thank you so much ❤️ YNWA
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Sorry to hear that mate 😢 he you bounce out of it xx
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I did see you mention you studied yesterday. Was so lovely to seee you managed it. You are so not lazy at all - people just don’t understand and as you say are ignorant as it doesn’t directly affect them xx
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Xx
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So true! I think sometimes, especially with things like ME - people can’t grasp how we can have so many symptoms at once and also have good moments where we can manage things. Fluctuating conditions suck. Complete lack of sympathy and empathy a lot of the time, sadly.
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Yeeeeers!!!! This! In the house I can move about as there’s so many points I can rest on. Outside is way too unpredictable- plus I can’t walk at before muscle fatigue so I need the chair - also can’t guarantee a rest spot so again, need the chair!
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I’m so annoyed that I had to reread that 😂 #goslow
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This is spot on!!! They also don’t see you when you are at your worse either. And when they see you and you are on aids etc… to help - I’d rather be able to walk and not flare up.
You do realise how ableist the world is when you are sat in a wheelchair.
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I mean he does support us
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It really is. At times it can be funny, well, to Aurora it is, when I mix words up. But it is so infuriating and frustrating xx
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It is dead smart that
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I love this!