cinnamonrollalong.bsky.social
#pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids
#CovidisNotOver #CovidisAirborne
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Mind you, that would just give an excuse to make successfully claiming even more difficult.
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I assume the descriptors were set many years ago.
They really aren’t great even before anyone starts setting arbitrary cut offs.
The whole assessment process needs a big shakeup.
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The 4 point PIP cut off is so arbitrary.
Needing help with washing your upper body scores 4 points. Needing help with washing your lower body or hair (which for many conditions & disabilities is harder) only scores 2 points.
Needing prompts to eat scores 4, but needing supervision scores 2.
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I struggle with the same.
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Well done. I had 3 letters correct in row 2 but still failed today.
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That wouldn’t be surprising would it? In this case, no it wasn’t him.
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Lizzy you have a lot on your plate. Please don’t let this be pressure to do more. I wouldn’t have suggested your name if I realised it has to be an account mainly about the poetry etc.
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A "stocktake"? wtf does that mean? Also very telling that he uses the outdated term "CFS/ME".
And just who is in this "working group"?
They shouldn't need to determine *if* [whether] extra support is required. Archer has told them it *is* required and that something needs to be done about it.
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Well thanks to this interview (see end of longer video), it's now clear who is doing this "stocktake" audit of ME services for NHS England.
(hint: rhymes with "f&ck me")
bsky.app/profile/abro...
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📌
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The starter pack owner can add you. Starter packs can be found by searching for keywords. There is a search facility for starter packs, but I have forgotten where. People search a starter pack on a topic of interest and add people from it. I think a feed can be made from it but not entirely sure.
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Hi Oonagh! Thanks for raising the profile of ME LC & other chronic illnesses.
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Far from a trustworthy review.
Suggests the PACE trial should be believed. Links to studies don’t support the points being made.
Unhelpful at best.
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Please look into ME/CFS. It’s a devastating illness.
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HART and GREAT BARRINGTON DECLARATION etc were/are using the tried and tested playbook CREATING DOUBT. Unfortunately it works (and lots of people die but they don’t care about that). #Confuse #CreateDoubt #BuryTheEvidence bsky.app/profile/adyb...
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Thank you @catinthehat.bsky.social for bringing all these clips and observations together to give a very clear picture.