clairabelle.bsky.social
Mostly a lurker as I have pretty severe cognitive dysfunction these days, please be nice if I do post. ME/CFS, disability and chronic illness. Used to be a bioscientist. PhD. She/They
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1,245 following
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Actually it has been recommended by disability organisations to ask for your assessment to be recorded/record it yourself for a while now. They are less likely to invent stuff/write down the opposite of what you actually told them if they know they are being recorded. So this is maybe a good thing?
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Yes, absolutely the same for me. I always wake up from a dream with a dull headache/hot brain feeling. I learned how to lucid dream years ago and had to stop because it was giving me PEM and making all my symptoms worse. Even sleeping is exhausting with this stupid illness.
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I got a code too, thank you for making this so easy, Julie! I’ve been wanting to come over for ages but didn’t have the brain power to figure out how to make it happen 😅